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wietop
@wietop

Posts: 4
Joined: Dec 13, 2017

Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD)

Posted by @wietop, Dec 13, 2017

I was diagnosed with Stage 3 CKD four years ago, but my doctor didn’t tell me. When he retired and I had to find a new doctor is when I found out. I’m new to this and completely confused when it comes to diet. I am currently eating a sandwich for lunch, made with Ezekiel Low-Sodium bread, which is sprouted whole grain bread. In my research I have found some sites that say never eat whole grain bread, while others say you can eat it with no problem. My doctor has told me I don’t need to change my diet, but, as you can imagine, my trust factor is pretty low right now. I’m trying to find some solid information about which breads I should avoid and which ones are okay.

REPLY

@wietop Good Morning and welcome to Mayo clinic Connect. I am a volunteer mentor here on Connect I want to share with you what Mayo Clinic has to say about Chronic Kidney Disease (CKD).
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521

I had acute kidney failure that was related to liver failure, and was immediately placed on dialysis and a restricted diet that was monitored by a nutritionist. So, I’m afraid that I don’t have any experience about your particular dietary question.

While we wait for someone else to add their input, would you mind telling us a little more about yourself? Are you being monitored for your CKD? Have you been seen by a nephrologist? Have you asked to be referred to a nutritionist?

Rosemary

@rosemarya

@wietop Good Morning and welcome to Mayo clinic Connect. I am a volunteer mentor here on Connect I want to share with you what Mayo Clinic has to say about Chronic Kidney Disease (CKD).
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521

I had acute kidney failure that was related to liver failure, and was immediately placed on dialysis and a restricted diet that was monitored by a nutritionist. So, I’m afraid that I don’t have any experience about your particular dietary question.

While we wait for someone else to add their input, would you mind telling us a little more about yourself? Are you being monitored for your CKD? Have you been seen by a nephrologist? Have you asked to be referred to a nutritionist?

Rosemary

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Just to add my voice, @wietop, I like what @rosemarya says here and the questions she raised. In addition, I have no reason to avoid bread that is made from whole grains, although I minimize my bread intake for reasons other than CKD. If bread is your choice, whole grain is the way to go (in order to avoid the glucose loads that come from processed white grain flour or the arsenic loads that may come from rice). Preference for a low-sodium bread is a good choice, whether that is in the brand name, the advertising slogans, or the ingredient list. My HMO offered nutrition counseling for free after my CKD diagnosis. I hope you’ll have a similar service opportunity. Finally, set a goal of developing a trusting relationship with your medical team; that will involve face-to-face conversations, perhaps more often than is customary or even comfortable, but you’ll like it! Martin

@rosemarya

@wietop Good Morning and welcome to Mayo clinic Connect. I am a volunteer mentor here on Connect I want to share with you what Mayo Clinic has to say about Chronic Kidney Disease (CKD).
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521

I had acute kidney failure that was related to liver failure, and was immediately placed on dialysis and a restricted diet that was monitored by a nutritionist. So, I’m afraid that I don’t have any experience about your particular dietary question.

While we wait for someone else to add their input, would you mind telling us a little more about yourself? Are you being monitored for your CKD? Have you been seen by a nephrologist? Have you asked to be referred to a nutritionist?

Rosemary

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Thank you for your quick response. To give you more information, I’m 69 years old. As for medical conditions in addition to CKD, I have high blood pressure. It is completely under control with medication and diet (I keep my limit at 1500mg per day and usually reach around 1000mg). Through diet and exercise, I have lost 100 pounds, so I’m very familiar with foods and their positives and negatives. My original doctor, who retired in May, neglected to tell me I had CKD for 4 years. I only discovered it when my new doctor mentioned it in a review, as though I was aware. At that time, I asked her what I needed to change, if anything, and if my diet needed to be adjusted. She said nothing needed to be changed. She also said that because I’ve been stable for 4 years, she didn’t think it necessary to send me to a nephrologist. My doctor even confided in me that she, herself, has Stage 2, so she’s personally familiar with the disease. I am definitely working at trusting her, but I now I ask more questions than I did before. Diet is what I’m most confused about.

@rosemarya

@wietop Good Morning and welcome to Mayo clinic Connect. I am a volunteer mentor here on Connect I want to share with you what Mayo Clinic has to say about Chronic Kidney Disease (CKD).
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521

I had acute kidney failure that was related to liver failure, and was immediately placed on dialysis and a restricted diet that was monitored by a nutritionist. So, I’m afraid that I don’t have any experience about your particular dietary question.

While we wait for someone else to add their input, would you mind telling us a little more about yourself? Are you being monitored for your CKD? Have you been seen by a nephrologist? Have you asked to be referred to a nutritionist?

Rosemary

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Thank you, Martin, for sharing with me. The reason bread is so important to me is because I have an egg-white sandwich everyday for lunch. Although the packaging says “Low-Sodium,” the content is listed as 0mg. I have high blood pressure, so finding something for lunch has always been a problem. For the past year, I’ve been eating a sandwich and have really done well with it, so I hate to give it up. I have 2 pieces every day. The ingredients are listed as Organic Sprouted 100% Whole Wheat, Filtered Water, Organic Spouted Barley, Organic Sprouted Millet, Organic Malted Barley, Organic Sprouted Lentils, Organic Sprouted Soybeans, Organic Sprouted Spelt, Fresh Yeast, Organic Wheat Gluten. On my next doctor visit, I am going to discuss nutrition counseling. Thanks again for your input. It’s been very valuable.

@rosemarya

@wietop Good Morning and welcome to Mayo clinic Connect. I am a volunteer mentor here on Connect I want to share with you what Mayo Clinic has to say about Chronic Kidney Disease (CKD).
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521

I had acute kidney failure that was related to liver failure, and was immediately placed on dialysis and a restricted diet that was monitored by a nutritionist. So, I’m afraid that I don’t have any experience about your particular dietary question.

While we wait for someone else to add their input, would you mind telling us a little more about yourself? Are you being monitored for your CKD? Have you been seen by a nephrologist? Have you asked to be referred to a nutritionist?

Rosemary

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Thanks for the additional information, @wietop. In my case, too, CKD is a result of hypertension. My HMO has a basic policy of referring cases like yours and mine to a nephrologist, because kidneys are so deeply involved in hypertension. In addition, my primary care physician (PCP) is such a busy-body (and I love it, because she’s not satisfied with patients being stable, even over many months). She’s always trying to cure — or mitigate the symptoms of — a condition, and I’ve adopted that approach as well.

Since diet is your main quandary, perhaps you can ask your PCP for help in getting nutrition counseling, which Medicare usually will pay for. Martin

@rosemarya

@wietop Good Morning and welcome to Mayo clinic Connect. I am a volunteer mentor here on Connect I want to share with you what Mayo Clinic has to say about Chronic Kidney Disease (CKD).
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521

I had acute kidney failure that was related to liver failure, and was immediately placed on dialysis and a restricted diet that was monitored by a nutritionist. So, I’m afraid that I don’t have any experience about your particular dietary question.

While we wait for someone else to add their input, would you mind telling us a little more about yourself? Are you being monitored for your CKD? Have you been seen by a nephrologist? Have you asked to be referred to a nutritionist?

Rosemary

Jump to this post

We’re ships passing in the night, @wietop, so if my comments appear to be ignoring yours, it’s a matter of timing. We’re on the same wave-length here, though, and that’s encouraging. Keep us posted on your evolving relationship with your PCP! Martin

@rosemarya

@wietop Good Morning and welcome to Mayo clinic Connect. I am a volunteer mentor here on Connect I want to share with you what Mayo Clinic has to say about Chronic Kidney Disease (CKD).
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521

I had acute kidney failure that was related to liver failure, and was immediately placed on dialysis and a restricted diet that was monitored by a nutritionist. So, I’m afraid that I don’t have any experience about your particular dietary question.

While we wait for someone else to add their input, would you mind telling us a little more about yourself? Are you being monitored for your CKD? Have you been seen by a nephrologist? Have you asked to be referred to a nutritionist?

Rosemary

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Thanks again. I’m following your advice and asking my doctor for a referral to a dietician who specializes in CKD.

I was just diagnosed with stage 1 chronic Kidney disease. I need to change my diet and I don’t have a clue where to start. I have been reading online and I’m getting confused with different answers. Help!! Thank you!!!

I was just diagnosed with CKD. I need to change My diet and I dont know where to start.

Hi @spiritualgangster,

Living with CKD and making good nutrition choices must be challenging. You may notice that I moved your discussion and combined it with your message in this existing discussion as I thought it would be beneficial for you to reconnect with other members who are talking about CKD and diet.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences. I'd also like to introduce you to Mentor @rosemarya, who is the recipient of simultaneous liver/kidney transplant, and to @trishanna @2011panc @weezielou @valb68

You might wish to go through some of these discussions about CKD taking place on Connect:
https://connect.mayoclinic.org/discussion/ckd/
https://connect.mayoclinic.org/discussion/diet-for-diabetes-and-stage-4-ckd-very-confusing
Here are some resources from Mayo Clinic that I would like to share with you:
– Low-phosphorus diet: Best for Kidney Disease? – https://www.mayoclinic.org/food-and-nutrition/expert-answers/faq-20058408
– Chronic Kidney Disease – https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/diagnosis-treatment/drc-20354527

@spiritualgangster, as @cehunt57 mentioned, it would be good to seek the advice of a dietitian or nutritionist; have you consulted one?

@spiritualgangster

I was just diagnosed with CKD. I need to change My diet and I dont know where to start.

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@spiritualgangster, I have a transplanted kidney (and liver), I don't have much information to add from my kidney failure experience since it was sudden. My nutritional needs were closely monitored during my dialysis treatment at Mayo before my transplant. I think that @cehunt57, and @kanaazpereira have provided you with some good information to get you pointed in the right direction.

In my experience, my mind goes 'blank' when my provider gives me any new medical information. I need to have someone to go to my appointment with me to be my ears. Who could you ask to go with you to learn about your nutritional needs and dietary changes?

Am in stage 3 CKD and living with an atrophied left kidney and a 37 % functioning right kidney and am on a renal vegetarian "sorta" diabetic diet. It's been an adventure creating kidney-friendly, diabetic-friendly meatless meals that are tasty and filling but the adventure has improved my kidney function from 28 % to 37 % within nine months. All the info I have says either to avoid whole grains or limit them, which I can't do 100% and stay on a reasonably low carb diabetic diet. What a challenge, eh?

@kamama94

Am in stage 3 CKD and living with an atrophied left kidney and a 37 % functioning right kidney and am on a renal vegetarian "sorta" diabetic diet. It's been an adventure creating kidney-friendly, diabetic-friendly meatless meals that are tasty and filling but the adventure has improved my kidney function from 28 % to 37 % within nine months. All the info I have says either to avoid whole grains or limit them, which I can't do 100% and stay on a reasonably low carb diabetic diet. What a challenge, eh?

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@kamama94 Goodness! I thought I had a challenge with an IBS/kidney diet! Congrats on your success!

Thanks. But an IBS diet is a real challenge, too – many kidney-friendly veggies to avoid? I really don't miss meat but sure as heck do miss tomatoes and beans. Not enough to fudge and eat them but enough that could justify feeling sorry for myself if I had time, LOL.

Liked by coereen

Just FYI for everyone struggling with a renal diet, as soon as I'm allowed I'd like to share a couple of excellent nutrient-information websites. For now, I can say I've discovered dozens of low-potassium, low-phosphorus food items and several good combinations of them. I'm willing to share those as well but with the caveat that anyone trying them absolutely must clear doing so with his or her medical care providers whether a primary care doctor or a nephrologist or other specialist and/or a renal dietitian. One of my favorites is tortilla pizza which calls for a "strict smidgen" of tomato paste, a little diced onion, a spoonful of pimientos, a (VERY) few slices of canned, no-sodium mushrooms,and non-dairy mozarella-flavored shreds; preheat oven to 350, smear an eensy bit of tomato paste on a flour tortilla, sprinkle with onion and pimiento, arrange mushroom slices then sprinkle "cheese" & bake about 6 minutes or until tortilla edges start to turn golden. 504.6 mg K (24 % DV for renal patients, lower than regular DV) 222.5 mg P (22 % DV for renal patients, lower than regular DV) Yummy! If you like this, feel free to share it. I made it up but you can experiment with your own ingredients.

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