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United States of America

Health Interests
Autoimmune diseases, Bone, joint, and muscle disorders, Caregivers, Chronic pain, Healthy Aging, Healthy Living, Heart and blood vessel disorders, Immune disorders, Men's health issues, Mental health disorders, Neurology (brain and nervous system), Other

Posts (2676)

3 hours ago · Does anyone find that a brand of shoes helps your foot neuropathy? in Neuropathy

@lorirenee1 and @retiredteacher — I buy Sketchers slip ons but like any shoes with memory foam inserts they aren't much good after 5 or 6 months. For me I need shoes that I can easily slip on but yet give support sideways. Most tennis shoe type shoes don't give me ankle support.

8 hours ago · Progressive neuro-degenerative syndrome in primary immunodeficiency in Brain & Nervous System

Hi, @steph73 – I have no experience to share with your son's symptoms but I was able to find a few articles that may provide more information for you.

Progressive neurodegeneration in patients with primary immunodeficiency disease on IVIG treatment.

Neurologic Involvement in Primary Immunodeficiency Disorders

Neurological Manifestations of Primary Immunodeficiencies

9 hours ago · Living with Neuropathy - Welcome to the group in Neuropathy

Hi Victoria @vilee, welcome to Connect. Thanks for tagging me @artscaping. Victoria I had neuropathy for 20+ years before deciding to see if there was anything that would help. You can read my story in a post earlier on Connect here:


I only have numbness with my idiopathic small fiber peripheral neuropathy so none of the pain drugs do anything for numbness for me. I take supplements that seem to have slowed down or stopped the progression of my PN but it's a little subjective on my part. I found the supplements in a closed Facebook group and most of the over 6000 members of the group have found relief from the pain and been able to taper off of all pain drugs by taking the supplements. The link to the group and their website is in my story/experience link above.

I was referred to the Mayo neurologist by my Mayo primary care doctor. Have you already been diagnosed with idiopathic PN?


14 hours ago · Recipes, Food Tips, Healthy Eating & More in Just Want to Talk

@merpreb — my daughter makes a salad that I really like that is great for lunches. It's probably pretty flexible for adding different veggies you like.

Alyssa’s Quinoa Salad
2 cups red, white or black quinoa (cooked according to package directions)
1 cup mango chunks (frozen and thawed is okay)
1 ½ cups black beans (drained and rinsed)
1 cup edamame, use frozen and cook according to package directions
1 whole red, yellow and orange pepper, diced
1 cup broccoli florets (steamed or raw)
½ cup cilantro, finely chopped
2 tablespoons rice wine vinegar
½ tablespoon olive oil
1 tablespoon Newman’s Own Lite Raspberry Walnut Vinaigrette
½ teaspoon salt
Ground black pepper to taste
Toss all ingredients in a large bowl and serve at room temperature or chilled.
Feel free to add more vegetables, such as yellow or orange peppers, or increase the amount of beans for added fiber and nutrients. This recipe is great served with grilled chicken or served alone, and works as a meal or side dish.

1 day ago · Dim Sum and 5K Races: Meet @ihatediabetes in About Connect: Who, What & Why

@rosemarya you really need to make some Minnesota hot dish ☺

How to Make Hotdish Like a Minnesotan

1 day ago · New to this forum, please help me, have SMALL FIBER NEUROPATHY in Neuropathy

@alladria and @dwilkin, there is another discussion on Connect that might be helpful.

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain

1 day ago · Sural nerve biopsy in Neuropathy

Hello @lillian32, welcome to Connect. I did a search and found one other member @peggyella who has discussed sural nerve biopsy in a post. She may be able to share some suggestions and experience with you. Are you able to share a little more about the type of treatment you are currently on?