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Autoimmune diseases, Bone, joint, and muscle disorders, Caregivers, Chronic pain, Healthy Aging, Healthy Living, Heart and blood vessel disorders, Immune disorders, Men's health issues, Mental health disorders, Neurology (brain and nervous system), Other

Posts (3185)

1 hour ago · Neuropathy and other strange symptoms in Brain & Nervous System

@jakedduck1, The vitamin D is just one of the supplements I take for neuropathy so I can't really quantify how much relief I get from it. When I started taking the supplements back around September 2016 my neuropathy was getting worse in both feet and legs and the neurologist told me it would get worse and I could call back if it did. After taking the supplements for 2 months the progression seemed to have stopped. It hasn't gotten any better and it hasn't gotten any worse so I think it has slowed or stopped the progression. Even though I only have numbness with my small fiber peripheral neuropathy, I think it's a win if I can keep it from getting worse.

21 hours ago · Neuropathy and other strange symptoms in Brain & Nervous System

Hi Jake @jakedduck1 — I take the D3 – 5000 IU capsule twice a day as part of my neuropathy supplements I found in the closed Facebook Group Solutions to Peripheral Neuopathy Pain & Discomfort – https://www.facebook.com/groups/SPNPD/. They also have a website (http://solutions2pnpd.com/). The D3 is at a therapeutic dosage level which helps get the usable form into the body. Best description I've found that supports the higher dosage is here:

Driving up the dose: implications for high-dose vitamin d therapy – NCBI

Vitamin D – Doses & Uses

Dose vitamin D supplementations improve peripheral diabetic neuropathy? A before-after clinical trial.

I get blood labs on a yearly basis as part of my regular checkup.

1 day ago · Small Fiber Neuropathy? in Neuropathy

@somisgirl, I don't have the pain with my idiopathic small fiber peripheral neuropathy but I also was concerned about it progressing and was looking for something other than drugs to help. I found something that works for me and may or may not work for you but it may be worth a try. You can read my neuropathy story and what helps me here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985. I tried a few of the so called nerve regenerating vitamins with no success also.

I'm not sure if this is helpful but it may give you a better understanding of how neuropathy is diagnosed and why it sometimes is idiopathic because they are not able to diagnose a specific cause.

This short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.

Fri, Apr 19 1:44pm · Diagnosing SFN in Neuropathy

Hi @jager5210 — I think I've posted it in several places but here is a link to the video.

This short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.

1 day ago · IVIG Infusions in Neuropathy

Hello @fomdelia, Welcome to Connect. There is another active discussion where your post may receive more visibility. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where you meet other members discussing IVIG infusions.

> Groups > Neuropathy > IVIG Infusions

The manufacturer of Hizentra lists diarrhea as one of the possible side effects.

NIH has more information here – Immune Globulin Subcutaneous (Human), 20% Liquid

Hopefully other members with similar symptoms will be able to share their experience with you. Has your doctor discussed any other treatments to help with the chronic diarrhea?

1 day ago · Living with Neuropathy - Welcome to the group in Neuropathy

Hello Peggy @pfbacon, I know it must really be hard for you to deal with the pain. You mentioned that you had to retreat to the previous dose and it's still not adequate. When your pain doctor increased the dose and you took it a few days do you mean you didn't have any pain or that you slept for 2 days? I would talk with the pain doctor and see if they have some suggestions on the dosage and maybe lowering it somewhere in between what it was and what you went back to taking.

Hoping you have some relief from the pain soon.

1 day ago · Neuropathy and other strange symptoms in Brain & Nervous System

Hello Vreadifegary´s mother @vradifegari — I have no medical training or background so I am not able to give advice on taking medications or supplements. I can share my own personal experience. One of the vitamins I take is D3 5000 iu capsules. I take one in the morning and one in the evening along with other supplements. I would check with your daughter's doctor just in case there might be an issue with taking it with her other medications.

1 day ago · Stem Cell Therapy for Neuropathy in Neuropathy

Hello @pjfrahm, There is another similar discussion where your question will receive more visibility and you can meet other members discussing stem cell therapy for neuropathy. I'm tagging our moderator @lisalucier to see if she is able to move your post to the following discussion:

> Groups > Neuropathy > Stem Cell Therapy for Neuropathy

I can tell you that I'm pretty sure insurance doesn't cover it and I don't believe it's even had any clinical trials to prove whether or not it works for neuropathy. You might want to read through the above discussion and learn what other members have shared.