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United States of America

Health Interests
Autoimmune diseases, Bone, joint, and muscle disorders, Caregivers, Chronic pain, Healthy Aging, Healthy Living, Heart and blood vessel disorders, Immune disorders, Men's health issues, Mental health disorders, Neurology (brain and nervous system), Other

Posts (2278)

2 hours ago · Low levels of igg Iga igm in Autoimmune Diseases

Hello @adah, welcome to Connect. I have no medical training or background but have read that if your immune system makes low levels of antibodies, you may have a greater chance of developing repeated infections. There are some good explanations of the tests here:

University of Michigan – Immunoglobulins: Test Overview

Blood Tests Explained: Immunoglobulins (PDF)

2 hours ago · Living with Neuropathy - Welcome to the group in Neuropathy

Hello @deenie07, welcome to Mayo Clinic Connect. I have no medical training or background but the pain may be caused by nerve damage or compression of a nerve near the ankle. I think it would be good to discuss it with your foot doctor at your upcoming appointment. Have you had an injury to the ankle?

The Arthritis Foundation has some information on treating ankle pain that might be helpful.

You mentioned it felt better after a couple of weeks of taking anti-inflammatory medication but then got worse. Is your ankle still swollen or was it swollen?

5 hours ago · Paralyzed Diaphragm in Lung Health

Hello @usmccam, I have been using a CPAP machine since last summer and have went through quite a few different masks trying to find something that works for me. I'm wondering if that might be part of your problem of the suffocating feeling with the BiPAP nasal mask.

There is an active discussion here you might want to read where you will meet other members using a CPAP/BiPAP machine and learn tips that they have shared. @thankful, @cece55, @jjspokane61, @dawn_giacabazi may be able to share some suggestions to help with your BiPAP machine.

Groups > Sleep Health > Cpap and sleep

Have you discussed with your doctor that the mask causes you to feel suffocated? I would see if there is another alternative for the mask or nasal pillow you currently have. It's the key piece to helping a person use the BiPAP or CPAP machine and get the sleep the body needs.

6 hours ago · Lichen planus and Pregnancy hormones in Autoimmune Diseases

Hello @gamora24, welcome to Mayo Clinic Connect. I'm tagging our Director @colleenyoung to see if we should move your discussion into the following discussion where it will have more visibility and you can meet other members discussing lichen planus.

Groups > Autoimmune Diseases > Erosive oral lichen planus

While we wait for other members to respond to your post you may want to read through the discussion above and post any questions you might have by tagging other members (typing their @username to tag a member so they will receive an email notification of your post). Also, you may be interested in listening to the following Medical Edge Radio episode, Mayo Clinic Dr. Phillip Sheridan discusses Treating Oral Lichen Planus.


Have you had a chance to discuss if hormones could be playing a part in your lichen planus flare ups with your doctor?

21 hours ago · Thymic Tumors in Cancer

Hello @anotherfinemass, I'm not sure if you are familiar with Google Scholar (https://scholar.google.com/) but thought I would mention it in case you are not familiar with it. I use it a lot trying to find the newest research information including medical treatments. It lets you sort the sources/articles it finds by year to get the newest first.

Hoping you find some answers…

1 day ago · Cleaning your CPAP mask. in Sleep Health

@kentyunker when I was working for IBM back in the day it stood for I've Been Moved ☺

1 day ago · Autoimmune disease and temperature regulation in Autoimmune Diseases

Hello @1corinthians926, I have issues staying warm myself. In the winter I sleep in a sweatshirt and use electric blankets. When my mother-in-law lived with us for many years before she passed away, we always had to have the house at 78 degrees and I was sweating profusely and would find refuge in the basement. Now it seems I have become her except that I keep the temp around 70 degrees in the winter. I have small fiber PN and my hands get really cold easily. My feet are always cold, even in the summer. It maybe related to autoimmune diseases or just poor circulation but that might also be related to autoimmune diseases. I'm just happy to have a warm coat and gloves when I have to go outside and a warm house to retreat to.

Hoping we can all stay warm ☺

1 day ago · Prednisone in Digestive Health

Hi Rex @rexbeer, welcome to Mayo Clinic Connect. Prednisone is that magic pill for arthritis. I have polymyalgia rheumatica (PMR) which is currently in remission. I have had two occurrences of PMR six years apart. Both were treated starting with 20 mg prednisone dosage. The first time it took me about 3 years to taper off of prednisone. The second occurrence it took me about 1-1/2 years to taper off. The biggest side effect I had was weight gain – about 50+ pounds the first time but knowing that the second time I was able to make some lifestyle changes that helped me control the weight gain. I was able to keep it between 5 and 10 pounds. Mayo Clinic has some information here:

Prednisone and other corticosteroids

Two of the long term effects I already have but I'm not sure if the two uses of prednisone were to blame – thin bones (osteoperosis) and thin skin. I'm forever bumping into things with my arms and surprised to see a trickle of blood or a wound and I never even felt what caused it. I had figured it was part of my aging at 75. I think it might depend on if you are in a high risk group but I'm not sure. I did find a study that talks to this point a little…

Monitoring long-term oral corticosteroids | BMJ Open Quality

Have you asked your doctor what they think about any long term side effects that might apply to you?