Hi @roq, welcome to Mayo Clinic Connect. Thank you for sharing your experience with the tests. Did the tests confirm a diagnosis?
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I had a blood test prior to the MRI and meeting with the neurologist. I'm guessing a biopsy is not really as simple as a blood test but I have no medical background or training so don't really know the reasons. Can you seek a second opinion or help from another doctor or neurologist?
Hi @klro0001, I had an MRI before I was able to meet my neurologist at the Mayo Clinic where I was diagnosed with idiopathic small fiber PN. The MRI is not a test for peripheral neuropathy, but is performed to exclude other disorders that produce similar symptoms.
Peripheral neuropathy – Diagnosis & Treatment
This short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.
@wgatap21 I would probably be skeptical too if I wasn't able to tolerate using my CPAP. I really don't like using it and I have my challenges but have made it my mission to use it despite not liking it. I'm guessing there haven't been many members who have tried it that are following this discussion. I did find an article that was recently updated on Dec 1, 2019 that may help you decide.
Inspire Hypoglossal Nerve Stimulator Surgery for Sleep Apnea Treatment
Hello @anniem1650, Welcome to Mayo Clinic Connect. I don't have AIPD but I am a Rochester Mayo Clinic patient and think that they are excellent at diagnosing hard to diagnose health conditions from my experiences.
Here are a few links that may give you more information:
Dermatitis care at Mayo Clinic — Advanced diagnosis and treatment
Autoimmune progesterone dermatitis
Three Cases of Autoimmune Progesterone Dermatitis
If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.
Hello @emily793, It's been awhile since you've last posted. How are you doing with your Autoimmune Progesterone Dermatitis? Are you still on Xolair or have you found another treatment that helps you?
I did find an article using Google Scholar (https://scholar.google.com/) that talks about using Danazol as a treatment.
Case of autoimmune progesterone dermatitis presenting as necrotic migratory erythema successfully controlled by danazol
Hello @harper7745, There is another discussion with the same name that you created in Sept of last year. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the other discussion here:
> Groups > Autoimmune Diseases > autoimmune pancreatitis