Hi @kdmorris, welcome to Connect. Thank you for sharing your journey with PMR/GCA and how you were able to manage tapering off. It really helps others when you can share what worked for you.
Country of Residence
United States of America
Autoimmune diseases, Bone, joint, and muscle disorders, Caregivers, Chronic pain, Healthy Aging, Healthy Living, Heart and blood vessel disorders, Immune disorders, Men's health issues, Mental health disorders, Neurology (brain and nervous system), Other
Hi @azza1 – I tagged our moderator to have them remove your email address to protect your privacy and prevent spammers from gatthering your email address in a public post. You can share email addresses and other personal information in a private message to another member. Get Started on Connect (link at the bottom of every page in left footer column) has step by step instructions.
How to Send a Private Message
Hello @wisfloj, I would like to add my welcome to Connect along with Chris @artscaping and other members. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following similar discussion so that you can meet other members asking the same question about laser therapy.
> Groups > Neuropathy > Laser ?
Here are a couple of Low Level Laser Therapy Notes/Posts you may be interested in reading:
Can Low-Level Laser Therapy Have An Impact For Small Fiber Neuropathy?
Hello @doneuro, you may want to post your question in the following discussion where more members with neuropathy will see it.
> Groups > Neuropathy > Living with Neuropathy – Welcome to the group
Are you scheduled to have hernia repair surgery?
Hello @susieflamilngo, welcome to Connect. I have had two occurrences of PMR but it is currently in remission. There is another discussion where your post will receive more visibility. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where I'm sure other members with PMR may be able to share their experience with leflunomide and methotrexate,
> Groups > Autoimmune Diseases > PMR Anyone?
You mentioned you are stuck at 7 mg prednisone dosage. Can I ask what tapering schedules you've tried? I know we are all different but what has helped me get off prednisone was slow and easy tapering. The first occurrence of PMR took me 3 years to taper off. The last six months was going between 1 mg and 1/2 mg dosage until I was finally able to stop taking it. The second occurrence was much easier for me. It only took 1-1/5 years to taper off.
Hello @margarita514, welcome to Connect. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where it will receive more visibility and you can meet others who share your symptoms.
> Groups > Autoimmune Diseases > Rheumatoid Arthritis (RA) – Introduce yourself and meet others
I did find an article that discusses your question on interference in immunoassay that you might be interested in.
How to Detect and Solve Immunoassay Interference
I recently saw this informative article on Medical Marijuana on the Foundation for Peripheral Neuropathy's website. I thought it might be helpful for those members looking for more unbiased information.
Foundation for Peripheral Neuropathy – Medical Marijuana for Peripheral Neuropathy
Hi Barry @barry51, welcome to Connect! I can really relate to the feeling of incredible aging overnight. Except in my case I finally found the old guy. I've had 2 occurrences of PMR which is currently in remission. The first them it took me three years to taper off and the second time 1-1/2 years to get off. Don't be discouraged. You mentioned getting down to 2.5 mg before crashing. Is it just a little more pain or is it the full blown aches and pain that come back?
When I was tapering the first time I was stuck at 1/2 mg, going back and forth between 1 mg and 1/2 mg for about six months before I was finally able to stop taking prednisone and only have some minor aches. The only advice I can give to anyone who is diagnosed with PMR is don't push yourself to do stuff that you used to do. You need to rest, accept your limitations, and look after yourself. I do think cleaning up one's diet and eating healthier makes a difference but is not the total answer. Here's an article that may be helpful.
What to eat if you have polymyalgia rheumatica
Hoping some other PMR warriors will jump in and offer some tips on how to deal with what I call Mr. Nasty. Here is another discussion you might want to join and meet others with PMR.
> Groups > Autoimmune Diseases > PMR Anyone?