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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: May 26 10:50am | Replies (6004)

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@brklimeks

I too have painful neuropathy in my feet. I was on 3600 mg of gabapentin and Cymbalta. Wanted to use marijuana so doctor took me off both. Long story short I ended up in a psychiatric hospital with suicidality. MJ didn’t work for me. I ended up getting a spinal cord stimulator which greatly helped. Just found out after 20+ years of meds I have stage 3 chronic kidney disease. I was doing well with healty eating but now I’m soothing myself with food. I feel like a hamster on a wheel. Aargh!

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Replies to "I too have painful neuropathy in my feet. I was on 3600 mg of gabapentin and..."

@brklimeks, I'm sorry to hear that you also have stage 3 chronic kidney disease. You might find the following discussions helpful.

-- Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD): https://connect.mayoclinic.org/discussion/confused-about-stage-3-ckd-diet/
-- Just diagnosed Stage 3 CKD: Should I be referred to a nephrologist?: https://connect.mayoclinic.org/discussion/just-diagnosed-with-stage-3-ckd/
-- Chronic Kidney Disease (CKD): How do I stop progression?: https://connect.mayoclinic.org/discussion/ckd/

I think a lot of us feel like a hamster on a wheel at times. It's understandable to feel down about it. You mentioned you were doing well with healthy eating before you were diagnosed. Are you able to get back to healthy eating?

Hello @brklimeks, I just responded to another of your posts and was reviewing your story. I really am shocked that you were taken off Gabapentih and Cymbalta totally by your provider before starting medical cannabis. I have been using both of those medications for quite some time along with the cannabis. I need Gabapentin for the tingle tangles in my hands. I need the Cymbalta to help control my anxiety level. Anxiety creates pain. Neither interferes with my "marijuana" program for pain control. MJ is not a be all end all option, in my opinion in that it doesn't take care of every neuropathic symptom.

I am so sorry about your psychotic episode. That had to be very frightening. I understand what it feels like to be on that hamster wheel. Do you feel mentally safe now?

Chris