How do you manage daily life with IBS-D?

Posted by pjss48 @pjss48, Dec 11, 2018

I have IBS with diarrhea. I'm taking med for it. Had several bowel movements already today. How do you get things done in house and go out on errands and going to Dr appointments? Driving me crazy!

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Profile picture for safetyshield @safetyshield

srobison I also have IBS=D and it really was out of control. After my first meal within an hour of going outside I would get diarrhea and it was bad. So when I finally went to a gastroenterologist he gave me amitriptoline, dyclomine and Put me on over the counter fiber like Metamucil and yogurt which I take daily. This combo seems to be working. I rarely get diarrhea and if I do I take something over the counter. These combos are still working for me. I hope this was helpful

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I can imagine just how happy I would be and I am going to try it at once...can you give me any brand of yogut or cereal?

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Profile picture for safetyshield @safetyshield

srobison I also have IBS=D and it really was out of control. After my first meal within an hour of going outside I would get diarrhea and it was bad. So when I finally went to a gastroenterologist he gave me amitriptoline, dyclomine and Put me on over the counter fiber like Metamucil and yogurt which I take daily. This combo seems to be working. I rarely get diarrhea and if I do I take something over the counter. These combos are still working for me. I hope this was helpful

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Absolutely! Dannon Activia probiotic yogurt, 4 oz. green container (make sure to get the one that has about 100 to 120 calories per serving). Comes in an assortment of flavors and has real sugar in it. For me personally, I avoid artificial sweeteners as they tend to make my IBS worse, promoting gas, bloating, etc. So check the container to make sure you aren't buying the one with artificial sweetener/reduced calorie types if you also have this concern . I eat 1/2 cup of General Mills Fiber One cereal (original, not the flakes) - usually mixing the yogurt with it. Activia peach is one of my favorite flavors, and mixed in with the cereal is a great afternoon snack.

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Profile picture for philjody @philjody

I understand your problems--I also have suffered with IBS for years. Used Alosetron for a year and for some reason it quit working. Dr. switched me to Viberzi I had severe cramps and was throwing up--Dr. said try to stick with it--I am looking for a second opinion. Anyone have a diet suggestion?

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Sir, I appreciate all your wise advice, however, I have had IBSD for well over 20 years and never could tolerate Veg. or fruit, cooked or raw. One piece of fruit or veg. and within 10 minutes I am in full blown IBSD crisis. I do ,however, like the fact that you have found a concoction that works for you via your liver. Please tell me where I can get it and how do I begin a regime for myself. Fiber is also my enemy. The truth of it is, no matter what I eat, I have a problem, but fruit and vegetables are number one on my list of no nos. thank you for all your very inspiring words of wisdom. And I thank you in advance for any information you would care to share regarding your formula for a healthier life style.

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Profile picture for safetyshield @safetyshield

srobison I also have IBS=D and it really was out of control. After my first meal within an hour of going outside I would get diarrhea and it was bad. So when I finally went to a gastroenterologist he gave me amitriptoline, dyclomine and Put me on over the counter fiber like Metamucil and yogurt which I take daily. This combo seems to be working. I rarely get diarrhea and if I do I take something over the counter. These combos are still working for me. I hope this was helpful

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Thank you so much....to the store I go tomorrow. Thank you, thank you....

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Profile picture for srobison @srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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Interesting how the system works. I heard from
DrBerg.com that the pancreas produces some hormons that digest vegetables. He doesn't have the ability to digest broccoli. I am very fortunate that it helps me and don't react to it. The liver, pancreas, and gallbladder work together. Stress impacts them and the medication for stress is exercise. Also the splin have a lot to do with such problems. There are tests to check each organ. My experience have been a clean liver gives you all the health and removes many symptoms. If the pancreas is not working properly a doctor can guide you to heal it properly. I also heard from nutritionist that coloidal or certain minerals help rebuild the pancreas. Check with Dr Wallach he has a book on "Dead Doctors Don't Lie" there are a lot of websites that sell items, but your interest is your specific problem. Have you gone to Mayo Clinic for examination? What did they recommend? They are the best in the world. I hope soon they will combine nutrition with drugs to help heal us.
For me flaxseed is making my intestines work properly. It it is a fiber item that will react with you. Have you taken any stress management class? It maybe the source of your symptoms. Under stress the organs don't work properly. Since I was able to put Crohn's in remission I have a good understanding how the system is operating. The doctor setup my next appointment four months from now. I have not resolve my inflammation problem that I had for many years but now I have it isolated and responds to vegetables. But I do eat items out of diet and get the pain. My best wishes to you.

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Profile picture for safetyshield @safetyshield

srobison I also have IBS=D and it really was out of control. After my first meal within an hour of going outside I would get diarrhea and it was bad. So when I finally went to a gastroenterologist he gave me amitriptoline, dyclomine and Put me on over the counter fiber like Metamucil and yogurt which I take daily. This combo seems to be working. I rarely get diarrhea and if I do I take something over the counter. These combos are still working for me. I hope this was helpful

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I too, eat yogurt, eat a high fiber cereal, and take Metamucil-type fiber therapy pills every day. It's been over four years now and I seldom experience diarrhea. I sometimes still have cycles of stomach pain and discomfort, but the unpredictable diarrhea that made life so miserable for many years - I no longer have. Just so thankful not to have the sudden and intense episodes of diarrhea that use to plague my life!

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<p>I was diagnosed with IBS-D when I was 16. In my 20's I went gluten free and I had a wonderful 4 years! Then I got a stomach bug after Thanksgiving Nov 2012 and by 12/23/12 I guess I started having GERD and IBS-C. It was an awful year to follow. Lansoprazole, pantropazole, omeprazole, all took the edge off but did not work. Finally I tried Nexium and it worked! But, I still could not cheat and have chocolate, coffee, alcohol, sugar (including fruit), or seasonings. I also started having panic attacks. I used essential oils and took a zantac twice a day up to ween myself off the Nexium. To this day I still can only eat brown rice, chicken or turkey (no red meats) and safe vegetables: zucchini, yellow squash, and carrots. I eat 2 eggs and a slice of gluten free bread for breakfast. I can take a probiotic and a biotin vitamin but all other vitamins go right thru me. With this limited diet I am concerned I am not getting the proper nutrients I need but I also can't take supplements or drink vitamin drinks. Does anyone else have this similar issue? Is there something I can do to improve my situation/symptoms. If I cheat and have sugar, fruit, or even just one sip of alcohol, I get acid indigestion which makes me nauseous. I used to feel strong and used to be able to work out but now I'm limited to work outs cause I can only work out in the morning on an empty stomach and can't push to hard. Thanks for any advice!</p>

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Profile picture for Pookith85 @Pookith85

<p>I was diagnosed with IBS-D when I was 16. In my 20's I went gluten free and I had a wonderful 4 years! Then I got a stomach bug after Thanksgiving Nov 2012 and by 12/23/12 I guess I started having GERD and IBS-C. It was an awful year to follow. Lansoprazole, pantropazole, omeprazole, all took the edge off but did not work. Finally I tried Nexium and it worked! But, I still could not cheat and have chocolate, coffee, alcohol, sugar (including fruit), or seasonings. I also started having panic attacks. I used essential oils and took a zantac twice a day up to ween myself off the Nexium. To this day I still can only eat brown rice, chicken or turkey (no red meats) and safe vegetables: zucchini, yellow squash, and carrots. I eat 2 eggs and a slice of gluten free bread for breakfast. I can take a probiotic and a biotin vitamin but all other vitamins go right thru me. With this limited diet I am concerned I am not getting the proper nutrients I need but I also can't take supplements or drink vitamin drinks. Does anyone else have this similar issue? Is there something I can do to improve my situation/symptoms. If I cheat and have sugar, fruit, or even just one sip of alcohol, I get acid indigestion which makes me nauseous. I used to feel strong and used to be able to work out but now I'm limited to work outs cause I can only work out in the morning on an empty stomach and can't push to hard. Thanks for any advice!</p>

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Hi @Pookith85
Welcome to Connect. You may wish to explore the discussions in the Digestive Health group (https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/)

I found this thread where @bettyann, @madelinehowell @roxie43, @rebeccah and others are talking about IBS-D
https://connect.mayoclinic.org/discussion/does-anyone-have-these-symptoms-along-with-ibs-would-really-appreciate-your-comments/
Eventhough you can't push too hard, do you find that exercise helps manage the IBD?

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Profile picture for Pookith85 @Pookith85

<p>I was diagnosed with IBS-D when I was 16. In my 20's I went gluten free and I had a wonderful 4 years! Then I got a stomach bug after Thanksgiving Nov 2012 and by 12/23/12 I guess I started having GERD and IBS-C. It was an awful year to follow. Lansoprazole, pantropazole, omeprazole, all took the edge off but did not work. Finally I tried Nexium and it worked! But, I still could not cheat and have chocolate, coffee, alcohol, sugar (including fruit), or seasonings. I also started having panic attacks. I used essential oils and took a zantac twice a day up to ween myself off the Nexium. To this day I still can only eat brown rice, chicken or turkey (no red meats) and safe vegetables: zucchini, yellow squash, and carrots. I eat 2 eggs and a slice of gluten free bread for breakfast. I can take a probiotic and a biotin vitamin but all other vitamins go right thru me. With this limited diet I am concerned I am not getting the proper nutrients I need but I also can't take supplements or drink vitamin drinks. Does anyone else have this similar issue? Is there something I can do to improve my situation/symptoms. If I cheat and have sugar, fruit, or even just one sip of alcohol, I get acid indigestion which makes me nauseous. I used to feel strong and used to be able to work out but now I'm limited to work outs cause I can only work out in the morning on an empty stomach and can't push to hard. Thanks for any advice!</p>

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My Mayo gastroenterologyist permormed botox treatments through endoscopy finding to relieve my symptoms similar to yours. I have GERD and a "jack hammer" esophagus. I had high pressures at the end of my esophagus at the stomach-esophagus sphincter. The treatment lasted one year before it got painful to eat and swallow again even my meds. The only other cure is surgery. I just had it done again and is wonderous. The procedure takes a bit over 2 hrs pre to post op. This may be an answer to your issues. Ask your specialist. Good luck.

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Profile picture for jackiem95 @jackiem95

I have a long term problem with GERD and more recently with IBS-D. Am on the low Fodmap diet and recently saw a new GI who changed my PPI to Dexilant along with two Pepcid tablets—one before dinner and another at bedtime. This was working—until I became terribly constipated. Dr. told me to take Citrucel for the constipation. I tried the powder and the caplets, both of which caused really bad acid reflux. Forget that! Now I am supposed to take Miralax. I think to myself: here I am on this restrictive Low FODMAP diet to control diarrhea—and now I am supposed to take a laxative
that causes it?? I am wondering why I just don’t eat some of the restricted foods on the diet that used to give me diarrhea? Dr. says Metamucil causes a lot of gas. Well, if I go back to the Metamucil wafers I successfully used for years before the IBS, having gas is better than being plugged up and uncomfortable.

Am I losing my mind here? Has anyone had the problems with constipation on Pepcid or similar meds? Were you able to solve it without a heavy duty laxative like Miralax that more or less restricts you to the house while you wait for it to work?

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@coralbells1 check out heathers website. https://www.heatherstummycare.com

She has special fiber and try her tummy tamer tablets with meals Tummy tamers have peppermint, ginger and Finnell which calm things down a lot as you digest. Her products are for sale there or on amazon. Good luck.

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