IBS-D

Posted by pjss48 @pjss48, Dec 11, 2018

I have IBS with diarrhea. I’m taking med for it. Had several bowel movements already today. How do you get things done in house and go out on errands and going to Dr appointments? Driving me crazy!

@jackiem95

I have a long term problem with GERD and more recently with IBS-D. Am on the low Fodmap diet and recently saw a new GI who changed my PPI to Dexilant along with two Pepcid tablets—one before dinner and another at bedtime. This was working—until I became terribly constipated. Dr. told me to take Citrucel for the constipation. I tried the powder and the caplets, both of which caused really bad acid reflux. Forget that! Now I am supposed to take Miralax. I think to myself: here I am on this restrictive Low FODMAP diet to control diarrhea—and now I am supposed to take a laxative
that causes it?? I am wondering why I just don’t eat some of the restricted foods on the diet that used to give me diarrhea? Dr. says Metamucil causes a lot of gas. Well, if I go back to the Metamucil wafers I successfully used for years before the IBS, having gas is better than being plugged up and uncomfortable.

Am I losing my mind here? Has anyone had the problems with constipation on Pepcid or similar meds? Were you able to solve it without a heavy duty laxative like Miralax that more or less restricts you to the house while you wait for it to work?

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Have you tried the FODMAP diet for 2 to 6 weeks to see if it helps your IBS? Also I’ve been told to try one solution at a time to see if it works, so the diet alone without other meds might be a good first approach. It worked for me. Of course that doesn’t mean that exercise, esp yoga or tai chi, lots of water, no carbonated drinks or use of straws (to reduce bloating), and stress relief such as meditation aren’t important along with any medical solution. Stress is a major trigger for IBS and other GI issues.

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@coralbells1

I just read some more replies and saw some on Linsess. I get very severe diarrhea with the full dose and still some diarrhea, but not as much on a lower dose. I don’t use it any more. Prunes or prune juice give me bad gas. I take Dexilant in the morning and Ranitidine at night for reflux. I also take 2 Colace in the morning and 3 at night. I also have very bad reflux because the opening to my stomach doesn’t close at all. Citracel gives me severe reflux as does anything with citrus. I also have endometriosis so bad that all of my intestines are one big lump of scar tissue. My bowels and bladder have dropped again and my Urology doctor said no surgery now, it won’t help much.
So I eat a lot of vegetables (not in the cabbage family-too much gas) and fruits, especially bananas and blueberries and exercise like taking a walk or stretching or even lots of vacuuming, gardening, etc. The oatmeal recommended by my urologist is to add bulk to my bowel movements. I soak it with milk and eat it raw not cooked. Try it, it has a nutty texture. I also make a pumpkin mousse which is just pumpkin pie filling made with skim milk, eggs, 3 packs of sweetener, pumpkin and a little pumpkin pie spice. I bake it at 370’ for 55 minutes uncovered and it keeps in the fridge for a week. I add it to my morning cereal like bran flakes or wheat Chex plus the soaked oatmeal, 1 tablespoon of ground flax, some sliced banana and 1/2 cup of frozen blueberries. This breakfast keeps me full and satisfied and keeps my bowels moving.

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Are your constipation issues related to Crohn's disease by any chance ? The reason I ask, is that I have Crohn's and chronic constipation that has turned into a daily battle. I'm always looking for new strategies to try because I feel like I'm running out of options.

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@jcarndt

Are your constipation issues related to Crohn's disease by any chance ? The reason I ask, is that I have Crohn's and chronic constipation that has turned into a daily battle. I'm always looking for new strategies to try because I feel like I'm running out of options.

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No, no Crohn's. Just celiac disease and long-standing irritable bowel. In the last two and 1/2 years I have gone from being on no medications to being on three: metoprolol, prolia and repatha. There is a definite connection between the medications and the worsening constipation.
At the moment, while waiting to see the gastroenterologist, I am now swallowing tablespoons of that delightful milk of magnesia topped up with an occassional senokot. The m of m is helping. Also, one of the Mayo Clinic Connect members mentioned a product available on Amazon called H2Go (magnesium tablets). Waiting for my order to arrive.

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@hopeful33250

@jackiem95 I can certainly sympathize with your problem as I've had three surgeries of the upper digestive tract and I'm always trying to figure out a diet that will work to keep my system regulated, but not work so well as to cause diarrhea. You mentioned Miralax and referred to it as a "heavy duty laxative" however, it is not a laxative but a stool softener. Have you ever tried it? There are other stool softeners like Colace (that is the brand name but it is available as a generic) It does take a few days of treatment before you notice a difference.

A balanced diet is always important as well as exercises, especially after eating. Stretches and bending at the waist, walking, etc. can also be good ways to prevent and/or treat constipation. Also, drinking lots of water is important as well. I have heard of some members who do self-massage on the abdomen, massaging in a clock-wise manner.

I suppose, as @colleenyoung said, you have to keep working to find the right balance that will work for you.

Have you tried mild exercises after eating?

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Miralax, (called Restoralax or Lax-a-day in Canada) is an " osmotic" laxative (believe Milk of Magnesia falls into this category as well). Recently, Miralax stopped being effective and caused unpleasant side effects. Until I see the gastroenterologist in two weeks, I have started taking Senokot (a stimulant laxative) and magnesium supplements.
I also find it sometimes helps to start the day with two mugs of hot water with lemon slices.

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@sue225

Miralax, (called Restoralax or Lax-a-day in Canada) is an " osmotic" laxative (believe Milk of Magnesia falls into this category as well). Recently, Miralax stopped being effective and caused unpleasant side effects. Until I see the gastroenterologist in two weeks, I have started taking Senokot (a stimulant laxative) and magnesium supplements.
I also find it sometimes helps to start the day with two mugs of hot water with lemon slices.

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Have u talked to doctor about this? All laxatives I tried caused stomach aches and gas pains. Now I have LINZES5. Works great

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@irenec

Have u talked to doctor about this? All laxatives I tried caused stomach aches and gas pains. Now I have LINZES5. Works great

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I tried Linzess only once about a year and a half ago. Only two capsules. It worked (and its effects continued into the next week), however it gave me awful bloating and pain (enough that I couldnt sleep). So, I am nervous about trying it again. Someone on Mayo Clinic Connects mentioned a 70 mg dose which sounds like 1/2 of the standard dosage. Will ask the gastroenterologist if that's a possibility (if available in Canada in the lower dosage). So far, the Senokot is causing the least amount of trouble but who knows. I have a long history of adverse drug reactions.

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@pjss48

I have ibsd and having diarrhea a lot. I’m on bentyl and immodium. Can they quit working? I don’t know what to do.

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Every morning upon awakening I have a dull stomachache, just an overall feeling of malaise. Usually around noon I start to feel better and continue with my regular activities. Could this just be anxiety? Anybody have this problem?

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@jackiem95

I have a long term problem with GERD and more recently with IBS-D. Am on the low Fodmap diet and recently saw a new GI who changed my PPI to Dexilant along with two Pepcid tablets—one before dinner and another at bedtime. This was working—until I became terribly constipated. Dr. told me to take Citrucel for the constipation. I tried the powder and the caplets, both of which caused really bad acid reflux. Forget that! Now I am supposed to take Miralax. I think to myself: here I am on this restrictive Low FODMAP diet to control diarrhea—and now I am supposed to take a laxative
that causes it?? I am wondering why I just don’t eat some of the restricted foods on the diet that used to give me diarrhea? Dr. says Metamucil causes a lot of gas. Well, if I go back to the Metamucil wafers I successfully used for years before the IBS, having gas is better than being plugged up and uncomfortable.

Am I losing my mind here? Has anyone had the problems with constipation on Pepcid or similar meds? Were you able to solve it without a heavy duty laxative like Miralax that more or less restricts you to the house while you wait for it to work?

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I was taking Linzess 290mg & immediately gained weight. I quit taking it & lost 3 pounds in 2 days! Plus, it didn't help my constipation. Anyone have experience with Linzess?

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@jackiem95

I have a long term problem with GERD and more recently with IBS-D. Am on the low Fodmap diet and recently saw a new GI who changed my PPI to Dexilant along with two Pepcid tablets—one before dinner and another at bedtime. This was working—until I became terribly constipated. Dr. told me to take Citrucel for the constipation. I tried the powder and the caplets, both of which caused really bad acid reflux. Forget that! Now I am supposed to take Miralax. I think to myself: here I am on this restrictive Low FODMAP diet to control diarrhea—and now I am supposed to take a laxative
that causes it?? I am wondering why I just don’t eat some of the restricted foods on the diet that used to give me diarrhea? Dr. says Metamucil causes a lot of gas. Well, if I go back to the Metamucil wafers I successfully used for years before the IBS, having gas is better than being plugged up and uncomfortable.

Am I losing my mind here? Has anyone had the problems with constipation on Pepcid or similar meds? Were you able to solve it without a heavy duty laxative like Miralax that more or less restricts you to the house while you wait for it to work?

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Hi @nancydowling you may have noticed I moved your post to this existing discussion on IBS medications so that you can connect with others who may have similar experiences as you. Simply click VIEW & REPLY in your email notification to get to your post.

That must be so frustrating to have these side effects.

I wanted to tag fellow Connect member @sue225 @tracy430 @irenec and @agoodmind4u as they may be able to share their experiences with you.

Back to you @nancydowling how long were you on linzess?

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@pjss48

I have ibsd and having diarrhea a lot. I’m on bentyl and immodium. Can they quit working? I don’t know what to do.

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How can a person with IBSD have surgery on knee or hammer toes when I also have depression and anxiety disorder. I can't

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@pjss48

I have ibsd and having diarrhea a lot. I’m on bentyl and immodium. Can they quit working? I don’t know what to do.

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How do others handle constipation? Usually I have diarrhea. Been taking IbGard.

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I have ibsd and having diarrhea a lot. I’m on bentyl and immodium. Can they quit working? I don’t know what to do.

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Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

Liked by srobison

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I was diagnosed with IBS-D when I was 16. In my 20’s I went gluten free and I had a wonderful 4 years! Then I got a stomach bug after Thanksgiving Nov 2012 and by 12/23/12 I guess I started having GERD and IBS-C. It was an awful year to follow. Lansoprazole, pantropazole, omeprazole, all took the edge off but did not work. Finally I tried Nexium and it worked! But, I still could not cheat and have chocolate, coffee, alcohol, sugar (including fruit), or seasonings. I also started having panic attacks. I used essential oils and took a zantac twice a day up to ween myself off the Nexium. To this day I still can only eat brown rice, chicken or turkey (no red meats) and safe vegetables: zucchini, yellow squash, and carrots. I eat 2 eggs and a slice of gluten free bread for breakfast. I can take a probiotic and a biotin vitamin but all other vitamins go right thru me. With this limited diet I am concerned I am not getting the proper nutrients I need but I also can’t take supplements or drink vitamin drinks. Does anyone else have this similar issue? Is there something I can do to improve my situation/symptoms. If I cheat and have sugar, fruit, or even just one sip of alcohol, I get acid indigestion which makes me nauseous. I used to feel strong and used to be able to work out but now I’m limited to work outs cause I can only work out in the morning on an empty stomach and can’t push to hard. Thanks for any advice!

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I have a long term problem with GERD and more recently with IBS-D. Am on the low Fodmap diet and recently saw a new GI who changed my PPI to Dexilant along with two Pepcid tablets—one before dinner and another at bedtime. This was working—until I became terribly constipated. Dr. told me to take Citrucel for the constipation. I tried the powder and the caplets, both of which caused really bad acid reflux. Forget that! Now I am supposed to take Miralax. I think to myself: here I am on this restrictive Low FODMAP diet to control diarrhea—and now I am supposed to take a laxative
that causes it?? I am wondering why I just don’t eat some of the restricted foods on the diet that used to give me diarrhea? Dr. says Metamucil causes a lot of gas. Well, if I go back to the Metamucil wafers I successfully used for years before the IBS, having gas is better than being plugged up and uncomfortable.

Am I losing my mind here? Has anyone had the problems with constipation on Pepcid or similar meds? Were you able to solve it without a heavy duty laxative like Miralax that more or less restricts you to the house while you wait for it to work?

REPLY
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