How do you manage daily life with IBS-D?

Posted by pjss48 @pjss48, Dec 11, 2018

I have IBS with diarrhea. I'm taking med for it. Had several bowel movements already today. How do you get things done in house and go out on errands and going to Dr appointments? Driving me crazy!

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Leeman25 | @leeman25 | Feb 2 11:19am

In reply to @surechamp "Thanks for your reply & clarification. I have both & have had for over 20 years..." + (show)

@surechamp
I have had what I characterize as IBS since I contracted Covid in October 2023. It never disappeared. I took the covid cure pills (Paxlovid) which introduced diarrhea through out the day. Now have passage every time I eat, an hour later. Can't keep anything in. doctors tried many tests, are mystified; want me to repeat colonoscopy (the remedy for everything from the common cold on up) which will likely be normal.

Am now on my second Gastroenterologist. No clue as to what is causing this. Just keep on doing tests, and them maybe drink sandy milkshakes, and take a series of prescription drugs (Arrgh!)

At this point, I am reconciles for the moment to just deal with it. Thankfully, I can eat anything I want...

surechamp | @surechamp | Feb 2 11:57am

I’ve been to many gastro dr’s over the years & have had many colonoscopies & have been treated like one size fits all & couldn’t be anymore untrue as each case is different. Bottom line is there’s no cure for IBS! When I think I have condition figured out with what I can eat, meds etc condition changes & I’m back to square one Ugh!!! Don’t mean to have you lose hope with what I’m saying but just to let you know history of my journey with IBS. I wish you well.

gussie | @gussie | Feb 2 1:54pm

I have also had IBS-D for forty years. Many endoscopies and colonoscopies later all clear except hiatal hernia, and inflamation. I went gluten free almost 15 years ago and it has helped but not taken it away. It could be wheat and not gluten but no way to know. I am immune deficient and for a lot of us the trouble is in our GI tract. Since about 80 percent of our immune system is in our gut. The well known IBS doctor, Mark Pimental, at Cedars Sinai in Los Angeles believes that people with IBS-D at one time had food poisoning. Which I have had.

Janell, Volunteer Mentor | @jlharsh | Feb 2 7:11pm

In reply to @pragna54 "I have been in this situation 40 years . It’s not easy ." + (show)

@pragna54, I am glad to see you comment and beginning to share on Connect. 40 years is a long time to deal with IBS-D.

Have you learned any tricks that help, at least at times? Maybe things that don’t work?

pragna54 | @pragna54 | Feb 3 1:35am

In reply to @jlharsh "@pragna54, I am glad to see you comment and beginning to share on Connect. 40 years..." + (show)

@jlharsh
First I started noticing what I ate and if I got more sick than usual-
I stop eating milk and milk products. Start reading every label to see there is not any trace of milk. Only one I found is sourdough bread which works for me. Second I stop eating anything raw including vegetables.

cjval52 | @cjval52 | Feb 3 11:47am

In reply to @katydurgin "@cjval52 currently been going on for about a year. Nothing has changed other than my MEN1..." + (show)

@katydurgin maybe you need to talk to your oncologist

katydurgin | @katydurgin | Feb 3 12:52pm

In reply to @cjval52 "@katydurgin maybe you need to talk to your oncologist" + (show)

@cjval52 can I ask why you suggest that? Remind me what an oncologist does?

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