IBS-D

Posted by pjss48 @pjss48, Dec 11, 2018

I have IBS with diarrhea. I’m taking med for it. Had several bowel movements already today. How do you get things done in house and go out on errands and going to Dr appointments? Driving me crazy!

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@irenec

Have u talked to doctor about this? All laxatives I tried caused stomach aches and gas pains. Now I have LINZES5. Works great

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I tried Linzess only once about a year and a half ago. Only two capsules. It worked (and its effects continued into the next week), however it gave me awful bloating and pain (enough that I couldnt sleep). So, I am nervous about trying it again. Someone on Mayo Clinic Connects mentioned a 70 mg dose which sounds like 1/2 of the standard dosage. Will ask the gastroenterologist if that's a possibility (if available in Canada in the lower dosage). So far, the Senokot is causing the least amount of trouble but who knows. I have a long history of adverse drug reactions.

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@jackiem95

I have a long term problem with GERD and more recently with IBS-D. Am on the low Fodmap diet and recently saw a new GI who changed my PPI to Dexilant along with two Pepcid tablets—one before dinner and another at bedtime. This was working—until I became terribly constipated. Dr. told me to take Citrucel for the constipation. I tried the powder and the caplets, both of which caused really bad acid reflux. Forget that! Now I am supposed to take Miralax. I think to myself: here I am on this restrictive Low FODMAP diet to control diarrhea—and now I am supposed to take a laxative
that causes it?? I am wondering why I just don’t eat some of the restricted foods on the diet that used to give me diarrhea? Dr. says Metamucil causes a lot of gas. Well, if I go back to the Metamucil wafers I successfully used for years before the IBS, having gas is better than being plugged up and uncomfortable.

Am I losing my mind here? Has anyone had the problems with constipation on Pepcid or similar meds? Were you able to solve it without a heavy duty laxative like Miralax that more or less restricts you to the house while you wait for it to work?

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I was taking Linzess 290mg & immediately gained weight. I quit taking it & lost 3 pounds in 2 days! Plus, it didn't help my constipation. Anyone have experience with Linzess?

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@jackiem95

I have a long term problem with GERD and more recently with IBS-D. Am on the low Fodmap diet and recently saw a new GI who changed my PPI to Dexilant along with two Pepcid tablets—one before dinner and another at bedtime. This was working—until I became terribly constipated. Dr. told me to take Citrucel for the constipation. I tried the powder and the caplets, both of which caused really bad acid reflux. Forget that! Now I am supposed to take Miralax. I think to myself: here I am on this restrictive Low FODMAP diet to control diarrhea—and now I am supposed to take a laxative
that causes it?? I am wondering why I just don’t eat some of the restricted foods on the diet that used to give me diarrhea? Dr. says Metamucil causes a lot of gas. Well, if I go back to the Metamucil wafers I successfully used for years before the IBS, having gas is better than being plugged up and uncomfortable.

Am I losing my mind here? Has anyone had the problems with constipation on Pepcid or similar meds? Were you able to solve it without a heavy duty laxative like Miralax that more or less restricts you to the house while you wait for it to work?

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Hi @nancydowling you may have noticed I moved your post to this existing discussion on IBS medications so that you can connect with others who may have similar experiences as you. Simply click VIEW & REPLY in your email notification to get to your post.

That must be so frustrating to have these side effects.

I wanted to tag fellow Connect member @sue225 @tracy430 @irenec and @agoodmind4u as they may be able to share their experiences with you.

Back to you @nancydowling how long were you on linzess?

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@jcarndt

Are your constipation issues related to Crohn's disease by any chance ? The reason I ask, is that I have Crohn's and chronic constipation that has turned into a daily battle. I'm always looking for new strategies to try because I feel like I'm running out of options.

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I'm just now being tested and awaiting results on a Crohns or UC diagnosis with a specialist. When I had my initial appointment with him, he showed me 2 images on his computer of my recent MRI and my recent CT scan. They showed 3 sizable balls of stool in one image and 2 in the other image. I'd been pretty ill for 4 months with daily diarrhea 5 or 6 times every morning.
I had intermittent constipation too
While waiting one month for him to call me with his follow-up, in the meantime, he directed me to drink 2 litres of water per day and take 1 tsp of Metamucil per day. My constipation stopped, and my diarrhea improved! Two litres of water daily is a lot of water to drink but I complied because I was so ill. It may be worth a try for your constipation.
The doc has just ordered another Fecal Calprotectin test so I'm waiting again for a final diagnosis. I've suffered an awful outbreak of mouth cankers lately, which I've read can be a Crohns symptom, so my educated guess is that it may be Crohns. We'll see. I may have a colonoscopy, but the doctors say it would be risky for me due to my multiple conditions.
I hope this info might help you. My specialist is imminent in his field and highly respected by his colleagues.

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@artist01

I'm just now being tested and awaiting results on a Crohns or UC diagnosis with a specialist. When I had my initial appointment with him, he showed me 2 images on his computer of my recent MRI and my recent CT scan. They showed 3 sizable balls of stool in one image and 2 in the other image. I'd been pretty ill for 4 months with daily diarrhea 5 or 6 times every morning.
I had intermittent constipation too
While waiting one month for him to call me with his follow-up, in the meantime, he directed me to drink 2 litres of water per day and take 1 tsp of Metamucil per day. My constipation stopped, and my diarrhea improved! Two litres of water daily is a lot of water to drink but I complied because I was so ill. It may be worth a try for your constipation.
The doc has just ordered another Fecal Calprotectin test so I'm waiting again for a final diagnosis. I've suffered an awful outbreak of mouth cankers lately, which I've read can be a Crohns symptom, so my educated guess is that it may be Crohns. We'll see. I may have a colonoscopy, but the doctors say it would be risky for me due to my multiple conditions.
I hope this info might help you. My specialist is imminent in his field and highly respected by his colleagues.

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Hello. I have had ibs-d maybe from pelvic radiation damage although they say thats healed by now; cdiff in 2018 and since then fecal incontinence. I dont want another colonoscopy at 77 and many other illnesses and my family just noticed a test called Faecal calprotectin. Would I be in line to ask a doctor for this test.. I have no family dr just a walkin clinic and emerge dept. Thanks.J. Ontario

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@lacy2

Hello. I have had ibs-d maybe from pelvic radiation damage although they say thats healed by now; cdiff in 2018 and since then fecal incontinence. I dont want another colonoscopy at 77 and many other illnesses and my family just noticed a test called Faecal calprotectin. Would I be in line to ask a doctor for this test.. I have no family dr just a walkin clinic and emerge dept. Thanks.J. Ontario

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I just had a colonoscopy at age 78. I deal with the same issues as you and still have no luck. I had a procedure yesterday to check anal muscles. I see the Dr. on Thursday with the results of the procedure.

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@basslakebabe19

I just had a colonoscopy at age 78. I deal with the same issues as you and still have no luck. I had a procedure yesterday to check anal muscles. I see the Dr. on Thursday with the results of the procedure.

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Thanks. I know colonoscopies have a small percentage of possible problems like bowel perforation but reading that after age 65 is more risky so am nervous to have another, last one 2008 he said showed nothing (but when I got copy of my dr file saw his report, a few years later, which showed some issue with colon.
Although he said radiation from 1985 (for cancer of cervix 4 times a day each side for 5 weeks) he said radiation damage has healed.. but surely it scars the bowel or must do "something." It was about 10 years later diarrhea started occasionally and has progressed, with the help of too many antibiotics for uti's, to C.Diff in 2018 and another 140 antibiotics (VAncomycin) and then to fecal incontinence and never a firmed stool, just mush on and off all day.. so am pretty fed up along with other medical issues.
Not looking for sympathy but just dont think can go through another colonoscopy at this time…. but was interested to know if I could have mri or another xray of abdomen or the calprotectin test which my daughter just saw on tiktok.
Living with this (and other issues) at 77 is a life changer and, no, diapers do not soak up pasty and I had a problem while having blood test the other day, so embarrassing and a little goes a long way! ugh !!!

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@lacy2

Thanks. I know colonoscopies have a small percentage of possible problems like bowel perforation but reading that after age 65 is more risky so am nervous to have another, last one 2008 he said showed nothing (but when I got copy of my dr file saw his report, a few years later, which showed some issue with colon.
Although he said radiation from 1985 (for cancer of cervix 4 times a day each side for 5 weeks) he said radiation damage has healed.. but surely it scars the bowel or must do "something." It was about 10 years later diarrhea started occasionally and has progressed, with the help of too many antibiotics for uti's, to C.Diff in 2018 and another 140 antibiotics (VAncomycin) and then to fecal incontinence and never a firmed stool, just mush on and off all day.. so am pretty fed up along with other medical issues.
Not looking for sympathy but just dont think can go through another colonoscopy at this time…. but was interested to know if I could have mri or another xray of abdomen or the calprotectin test which my daughter just saw on tiktok.
Living with this (and other issues) at 77 is a life changer and, no, diapers do not soak up pasty and I had a problem while having blood test the other day, so embarrassing and a little goes a long way! ugh !!!

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I'm so sorry you are going through this and I hope you can get some help soon. I had radiation for endometrial (uterine) in 1995. I had episodes of diarrhea starting about 10 years later. I told the doctors that I was sure it was from the radiation but just like you I was told it had healed. During the years I had a lot of polyps so I had colnoscopies every 2-3 years. In 2015 exactly 20 years after the first cancer a Colonoscopy discovered a malignant tumor in my colon . Genetic testing concluded that the cancer was caused by the radiation. The surgeon removed almost 2 feet of my small bowel in addition to the almost one foot of the colon where the tumor was. He never told me that he would remove anything other than the tumor and margins around it. When i asked why he did that he said it was "funky " from the radiation and wasn't doing me any good. I had tried to tell him that I had a lot of radiation and my system was a mess but he said it was a long time ago.

Since the surgery I have episodes where stuff shoots out of me. I have cramps snd terrible gas and gas pains. I eat a lot of white rice and my activities are limited.

However I am not incontinent and am so sorry that you are. I am 78 and I have a Colonoscopy every year.

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@rits

I'm so sorry you are going through this and I hope you can get some help soon. I had radiation for endometrial (uterine) in 1995. I had episodes of diarrhea starting about 10 years later. I told the doctors that I was sure it was from the radiation but just like you I was told it had healed. During the years I had a lot of polyps so I had colnoscopies every 2-3 years. In 2015 exactly 20 years after the first cancer a Colonoscopy discovered a malignant tumor in my colon . Genetic testing concluded that the cancer was caused by the radiation. The surgeon removed almost 2 feet of my small bowel in addition to the almost one foot of the colon where the tumor was. He never told me that he would remove anything other than the tumor and margins around it. When i asked why he did that he said it was "funky " from the radiation and wasn't doing me any good. I had tried to tell him that I had a lot of radiation and my system was a mess but he said it was a long time ago.

Since the surgery I have episodes where stuff shoots out of me. I have cramps snd terrible gas and gas pains. I eat a lot of white rice and my activities are limited.

However I am not incontinent and am so sorry that you are. I am 78 and I have a Colonoscopy every year.

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@rits Seems for every medical problem or issue fifty percent turn out "ok" and fifty per cent not… well, generalizing of course. With due respect to most doctors, I must say that some of my illnesses mental and physical were NOT helped by the doctors I had. I knew in my heart I had cancer of cervix as years ago even in my Readers Digest Health Book listed my symptoms which I had,and my GP said it was a hygiene problem – I will never, ever forget it, he said it 3 times. Retired now.
So left him and next dr i saw, female, new to City looked inside vagina: said, and this is the truth: I cant see anything!! By the time I saw specialist months and months later he checked me and I bled on table before going back to work: he said, need d and c as soon as possible… his receptionist booked me for 2 months time. Iwrote a letter, they never answered. I was a coward and should have gone back into the office and reminded them of the urgency or gone to emerge and sat there!! Needless to say by the time i had the d&c and diagnosis was a Stage 2. More sadness to the story but I must say that similar things happened to me with other doctors .. I know they make mistakes and I realize it can be difficult to diagnose sometimes, but time after time…..being passive in nature I just accepted what I often felt was wrong prognosis etc. but always was intimidated by doctors and hairdressers! (I also had D&C years later and woke up with appendix taken out, dr said, oh must have had problems down there… I hadn't). ONE YEAR LATER I found out he had punctured my uterus while doing D&C and tubal …. and I could go on. I would recommend we SPEAK UP when feel something is wrong but, at 77, was raised to keep my mouth closed and not make a fuss. See where it got me??? I too am on limited food intake and I so miss all those fruits and vegetables! Hopefully the women of today speak up more than we did, or were allowed to years ago.p.s. I know there are a lot of "good" drs out there: thank you!

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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4663381/
Pelvic radiation therapy: Between delight and disaster

(this is a long read and complicated but there are many shorter articles on late state radiation damage and as patients we may not realize these side effects , but surely oncologists/gastroenterologists should know about them) as one article states they have come a long way since the 1980s and are more precise with the radiation and not affecting such a large area; am of course thankful that cancer can be treated but as articles state, the long lasting effects are not being addressed and causing pain and suffering…. as most things, good/bad mixture. J.

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@lacy2

Hello. I have had ibs-d maybe from pelvic radiation damage although they say thats healed by now; cdiff in 2018 and since then fecal incontinence. I dont want another colonoscopy at 77 and many other illnesses and my family just noticed a test called Faecal calprotectin. Would I be in line to ask a doctor for this test.. I have no family dr just a walkin clinic and emerge dept. Thanks.J. Ontario

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@lacy2 Hello Lacy. I'm 85, and just had a CT Colonography, because the doctors say I'm too big a risk for the more invasive Colonoscopy. I've also had the Faecal Protectin test, which was elevated. My advice is that you certainly can ask a doctor for those tests. Both were covered by my public Healthcare.

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@lacy2

Thanks. I know colonoscopies have a small percentage of possible problems like bowel perforation but reading that after age 65 is more risky so am nervous to have another, last one 2008 he said showed nothing (but when I got copy of my dr file saw his report, a few years later, which showed some issue with colon.
Although he said radiation from 1985 (for cancer of cervix 4 times a day each side for 5 weeks) he said radiation damage has healed.. but surely it scars the bowel or must do "something." It was about 10 years later diarrhea started occasionally and has progressed, with the help of too many antibiotics for uti's, to C.Diff in 2018 and another 140 antibiotics (VAncomycin) and then to fecal incontinence and never a firmed stool, just mush on and off all day.. so am pretty fed up along with other medical issues.
Not looking for sympathy but just dont think can go through another colonoscopy at this time…. but was interested to know if I could have mri or another xray of abdomen or the calprotectin test which my daughter just saw on tiktok.
Living with this (and other issues) at 77 is a life changer and, no, diapers do not soak up pasty and I had a problem while having blood test the other day, so embarrassing and a little goes a long way! ugh !!!

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@lacy2 hi again Lacy. I just saw your second text, and I hear you. Same problems, same embarrassing accidents. Do look into having the CT Colonography and Faecal Protectin test. You deserve whatever tests that are available!

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