1. < Heart Rhythm Conditions

Heart Rhythm Conditions – Welcome to the group

Posted by Kanaaz Pereira, Connect Moderator @kanaazpereira, Feb 14, 2018

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

anniegk | @anniegk | May 4, 2018

Is this something new that has developed? If it is i think i would be checking in with my doctor. I have had heart beat irregularities for the last 45 years. I notice mine are getting worse the last couple of years. Iam having it checked out.

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1 reply
TWPTRUSTREK | @twptrustrek | May 5, 2018
In reply to @anniegk "I was told by a doctor that i have a hiatial hernia. I have Irregular heart..." + (show)
@anniegk

I was told by a doctor that i have a hiatial hernia. I have Irregular heart beat that gets worse when iam full of gas. It is very nerve wracking to have the irregular heartbeat. I notice when i wake in the morning, i have a full feeling in my upper chest. My hearbeat problems have been worse the last couple of years. I just recently had a 24 hour monitor and Iam waiting results. I have had this on and off for 40 +years. Along with this, i have the sensation of not being able to get a deep breath.

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I have accented pvc s and skips with gas as well

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jeannieg7 | @jeannieg7 | May 5, 2018
In reply to @anniegk "I was told by a doctor that i have a hiatial hernia. I have Irregular heart..." + (show)
@anniegk

I was told by a doctor that i have a hiatial hernia. I have Irregular heart beat that gets worse when iam full of gas. It is very nerve wracking to have the irregular heartbeat. I notice when i wake in the morning, i have a full feeling in my upper chest. My hearbeat problems have been worse the last couple of years. I just recently had a 24 hour monitor and Iam waiting results. I have had this on and off for 40 +years. Along with this, i have the sensation of not being able to get a deep breath.

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I know how you feel. Just had a 30 day event monitor, now also have a fib. High anxiety with this whole situation. I should be acclimated by now, have had them for a very long time

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | May 5, 2018
In reply to @sydneysmom "Hi Kanaaz Glad to be joining the group. Hoping in finding out how others manage their..." + (show)
@sydneysmom

Hi Kanaaz
Glad to be joining the group. Hoping in finding out how others manage their symptoms of POTS/Dysautonomia.
My daughter was recently diagnosed with dysautonomia. Her heart stops while having fainting episodes. On the tilt table test her pause was 30 seconds. She has been dealing with this since a teenager she is now 28. Her fainting episodes are triggered by anxiety or pain. It happens on average 3 times a yr. Many yrs of wrong medications & misdiagnosis has allowed this disorder to control her daily activities in her life.
Her new neuroscience dr recommends a pacemaker & is referring us to Mayo Clinic to see an Autonomic Specialist. We have been put on a waiting list at Mayo. It could be 6 months before we get in. It’s hard to wait so long for relief since she also suffers with migraines, neck pain, weakness, overall just never feeling “normal”. She is extremely thin, pale & always Cold.
Curious if others with similar symptoms/ diagnosis found relief from a pacemaker implant?
Concerned mom

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Hi @sydneysmom,

I was wondering if you had a chance to see these other discussions on Connect:
– Diagnosed with dysautonomia. Looking for treatment options http://mayocl.in/2bKzAwa
– Managing POTS (Postural Orthostatic Tachycardia Syndrome) https://connect.mayoclinic.org/discussion/managing-pots-postural-orthostatic-tachycardia-syndrome/
– Learning to Live Well with POTS Brightens Daily Life for Christine Esposito: https://sharing.mayoclinic.org/2016/12/15/learning-to-live-well-with-pots-brightens-daily-life-for-christine-esposito/

I'd also like to invite @neeci @mojoearle @morgandickson @jenniferjjjj @widman @flick027 @kfletch to join this discussion, and share their experiences or insights that might help your daughter.

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balubeje | @balubeje | May 5, 2018
In reply to @farmor "Hi, Great site, I am new here! my problem is that when I go to bed..." + (show)
@farmor

Hi, Great site, I am new here! my problem is that when I go to bed I have this fast beating heart and it makes me feel very hyper. I have a very easy life but this insomnia makes me very tired doing the day. I do not take any naps and I am on thyroid medication, that is getting adjusted all the time.

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Hi, just curious on my end. Do you have an endocrinologist who is adjusting your thyroid medication? I would be wary of a family practice doctor adjusting your thyroid medication. Please disregard my concern if your meds are adjusted by an endocrinologist-that's their speciality. You might touch base with your pharmacist to see if you have medications that might cause the reaction you are experiencing. It may be nothing or it might be a timing of when you are taking your meds. Just some thoughts.

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farmor | @farmor | May 5, 2018
In reply to @anniegk "Is this something new that has developed? If it is i think i would be checking..." + (show)
@anniegk

Is this something new that has developed? If it is i think i would be checking in with my doctor. I have had heart beat irregularities for the last 45 years. I notice mine are getting worse the last couple of years. Iam having it checked out.

Jump to this post

I did have my heart checked and it's fine, except for the extra beats

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farmor | @farmor | May 5, 2018
In reply to @farmor "Hi, Great site, I am new here! my problem is that when I go to bed..." + (show)
@farmor

Hi, Great site, I am new here! my problem is that when I go to bed I have this fast beating heart and it makes me feel very hyper. I have a very easy life but this insomnia makes me very tired doing the day. I do not take any naps and I am on thyroid medication, that is getting adjusted all the time.

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You are so right, I am going to check with the pharmacist if he can recommend a doctor who will prescribe a natural thyroid supplement. My own doctor wont do that, he is an endocrinologist..

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lucija | @lucija | May 7, 2018
In reply to @anniegk "I was told by a doctor that i have a hiatial hernia. I have Irregular heart..." + (show)
@anniegk

I was told by a doctor that i have a hiatial hernia. I have Irregular heart beat that gets worse when iam full of gas. It is very nerve wracking to have the irregular heartbeat. I notice when i wake in the morning, i have a full feeling in my upper chest. My hearbeat problems have been worse the last couple of years. I just recently had a 24 hour monitor and Iam waiting results. I have had this on and off for 40 +years. Along with this, i have the sensation of not being able to get a deep breath.

Jump to this post

M

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enfermo | @enfermo | May 11, 2018

I am enfermo from Los Angeles CA. I have lived with PVCs for many years. Doctors tell me that these are a kind of event that is not serious. I had a triple by-pass three years ago. I have had several episodes of atrial fib, but none too recently. I don't like to take so many pills, but my cardiologist tells me I minimize the risk of a heart attack or a stroke w/o the meds. I take metoprolol, a statin, losarton and aspirin. Recently I was put on Pradaxa, a blood thinner. The PVCs are bothersome, but I can live with them. Otherwise I feel OK. I walk for 45 minutes at least 5 times a week. I am concerned about the side effects of these meds, especially the statin, but my doctor says the advantages outweigh the risks. I hope he is right!

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | May 12, 2018

Welcome to Connect, @enfermo. I'd like to introduce you to a few members who've shared their thoughts about the medications you mentioned. Please meet @kenny48 @jackj @karenatmayo @jigglejaws94 @grandmar @mikefox909 @teatime @faith123 @dfsmitty @twptrustrek @mac4life @crashnam. I’d also like to bring @predictable and @hopeful33250 into this discussion.
If it helps, I have been taking Losartan for years to treat my hypertension, and have done well on it, with no side effects.

You may also be interested in reading and joining in these discussions:
– Atrial fibrillation and medication side effects https://connect.mayoclinic.org/discussion/side-efectshopeful33250
– Afib & PVC's https://connect.mayoclinic.org/discussion/afib-pvcs/
– New to Afib, warfarin and metoprolol (beta blocker) https://connect.mayoclinic.org/discussion/new-to-afib-warfarin-and-metoprolol-beta-blocker/

@enfermo, what are your main concerns about the meds?

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