Started Repatha - Side Effects

Posted by HomeAgainLA @llynch17056, Mar 21, 2024

I had terrible side effects with statins (any statin, any dosage). For about 30 years my doctors have pushed statins and
I have resisted. Finally I agreed to Repatha. The first week I had zero side effects. With my second dose, 2 weeks in, i woke up and my joints and muscles hurt a LOT.
1. Does this side effect go away?
2. What do you know about the recent information that the Repatha trials underreporting deaths from cardiac events while taking Repatha.

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Profile picture for rochelle369 @rochelle369

@prunella1111 You believe cholesterol in the 200's is great? Really? The lower the better, if you have have coronary artery disease you want your LDL under 50 for reversal. Studies have shown this. Under 50 is the standard for the European standards.

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@rochelle369 Yes, I do. You are chatting with a cholesterol queen here. I have Familial Cholesterolemia, nothing can be done about that. My total Chol was 376 when I was 25 years old. Fast forward to 70 yrs young, after my 11 yr old CABGX3 closed up from 2014, I am now living on my LIMA artery; nothing else can be done. I am a cholesterol pro. Our bodies need cholesterol but we don't want it to oxodize or get inflamed inside our vessels. It's not all numbers, it's inflammation and oxidization that are the enemies.
I'm on #15 Repatha inject; only God knows what that's doing to my poor body.
Good luck with your numbers.

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Profile picture for prunella1111 @prunella1111

@rochelle369 Yes, I do. You are chatting with a cholesterol queen here. I have Familial Cholesterolemia, nothing can be done about that. My total Chol was 376 when I was 25 years old. Fast forward to 70 yrs young, after my 11 yr old CABGX3 closed up from 2014, I am now living on my LIMA artery; nothing else can be done. I am a cholesterol pro. Our bodies need cholesterol but we don't want it to oxodize or get inflamed inside our vessels. It's not all numbers, it's inflammation and oxidization that are the enemies.
I'm on #15 Repatha inject; only God knows what that's doing to my poor body.
Good luck with your numbers.

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@prunella1111 You didn't state you had Familial Cholesterolemia earlier. What is your diet

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Profile picture for prunella1111 @prunella1111

@rochelle369 Yes, I do. You are chatting with a cholesterol queen here. I have Familial Cholesterolemia, nothing can be done about that. My total Chol was 376 when I was 25 years old. Fast forward to 70 yrs young, after my 11 yr old CABGX3 closed up from 2014, I am now living on my LIMA artery; nothing else can be done. I am a cholesterol pro. Our bodies need cholesterol but we don't want it to oxodize or get inflamed inside our vessels. It's not all numbers, it's inflammation and oxidization that are the enemies.
I'm on #15 Repatha inject; only God knows what that's doing to my poor body.
Good luck with your numbers.

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@prunella1111 I wish you well. ❤️

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Profile picture for prunella1111 @prunella1111

@rochelle369 Yes, I do. You are chatting with a cholesterol queen here. I have Familial Cholesterolemia, nothing can be done about that. My total Chol was 376 when I was 25 years old. Fast forward to 70 yrs young, after my 11 yr old CABGX3 closed up from 2014, I am now living on my LIMA artery; nothing else can be done. I am a cholesterol pro. Our bodies need cholesterol but we don't want it to oxodize or get inflamed inside our vessels. It's not all numbers, it's inflammation and oxidization that are the enemies.
I'm on #15 Repatha inject; only God knows what that's doing to my poor body.
Good luck with your numbers.

Jump to this post

@prunella1111 I wonder about that. The first time I had my cholesterol checked was in the mid-eighties and it was high. That was the first time the doctor put me on statins. I felt so bad I quit taking it. That was the first time a doctor “threatened” me to take statins. I changed doctors. It’s been a long road with doctors and meds about my cholesterol. I exercise and eat organic fresh foods. I quit sodas, ultra processed foods and all fast foods over 30 years ago. Been doing yoga for 13 years. Been getting between 6,000 - 10,000 steps a day.

So, yes, I am very happy with 200.

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Profile picture for HomeAgainLA @llynch17056

@prunella1111 I wonder about that. The first time I had my cholesterol checked was in the mid-eighties and it was high. That was the first time the doctor put me on statins. I felt so bad I quit taking it. That was the first time a doctor “threatened” me to take statins. I changed doctors. It’s been a long road with doctors and meds about my cholesterol. I exercise and eat organic fresh foods. I quit sodas, ultra processed foods and all fast foods over 30 years ago. Been doing yoga for 13 years. Been getting between 6,000 - 10,000 steps a day.

So, yes, I am very happy with 200.

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@llynch17056 Wow, you are doing great! I've also been trying to eat clean: no fast food junk, only ginger ale if I feel a little green, we've been eating plant based for 5 years now, don't eat anything that breathes (poor animals), do the gym 5 days a week. Just wish I hadn't inherited that blasted Lipid gene.

Thanks for sharing and Godspeed!

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I have hereditary high cholesterol. If any doctor insist you take a statin, but refuses to hear how it makes you feel, time to find a new doctor who listens. There is a simple blood test which can prove you can’t take statins. Have you doctor check your immuno-globulins. There are 5 sets of immunoglobulins. The one you need is IgE. It will prove what you’re telling the doctor is true.

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HomeAgainLA, there’s a new med for people like us (hereditary high cholesterol, allergic to statins). Ask your heart doctor about LEQVIO. Its second name is( Inclisiran). Nocked my cholesterol out of the ballpark. Side effects are really bad, but I’ll live to see another 20-30 yrs!

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I took my only shot on aug 3 2026. I can stand the runny nose but two days later my neck shoulders and arms hurt so bad I could not raise my left arm at all and my neck would not turn. I read that the pain could last for 11 to 17 days or up to 2 or 3 months. It's a little better now but I could not sleep for over a week the pain was so bad. I cried for days the pain made my sick at my stomach. I WILL NEVER TAKE THAT STUFF AGAIN.

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Profile picture for Tessa @vojro2pekmozi

I have hereditary high cholesterol. If any doctor insist you take a statin, but refuses to hear how it makes you feel, time to find a new doctor who listens. There is a simple blood test which can prove you can’t take statins. Have you doctor check your immuno-globulins. There are 5 sets of immunoglobulins. The one you need is IgE. It will prove what you’re telling the doctor is true.

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@vojro2pekmozi wow. Thanks I didn’t know and never been tested. Ugh.

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Profile picture for urkeymom @urkeymom

I took my only shot on aug 3 2026. I can stand the runny nose but two days later my neck shoulders and arms hurt so bad I could not raise my left arm at all and my neck would not turn. I read that the pain could last for 11 to 17 days or up to 2 or 3 months. It's a little better now but I could not sleep for over a week the pain was so bad. I cried for days the pain made my sick at my stomach. I WILL NEVER TAKE THAT STUFF AGAIN.

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@urkeymom don’t blame you. I quit it, too and had to find a new cardiologist because me quitting made him so angry. Then he said “I have nothing for you!” Bye bye

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