Started Repatha - Side Effects

Posted by HomeAgainLA @llynch17056, Mar 21, 2024

I had terrible side effects with statins (any statin, any dosage). For about 30 years my doctors have pushed statins and
I have resisted. Finally I agreed to Repatha. The first week I had zero side effects. With my second dose, 2 weeks in, i woke up and my joints and muscles hurt a LOT.
1. Does this side effect go away?
2. What do you know about the recent information that the Repatha trials underreporting deaths from cardiac events while taking Repatha.

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Profile picture for HomeAgainLA @llynch17056

@rhondaj I’m so sorry you experienced that. UTIs are awful. I sometimes think it’s all a big pharma/ cardiologist scam.

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@llynch17056 Yes, it is very frustrating. Now that I am off the drug, I am gradually improving but these side effects should be disclosed prior to us taking any drug. They did not disclose all of the symptoms that I had... but my side effects are improving or have dissipated since being off the drug. The only one that did not improve with time was the venous insufficiency, which surgery is my only option other than compression stockings. I did not have anything wrong with my legs or veins until this drug, and each time I injected it got worse.

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Profile picture for HomeAgainLA @llynch17056

@prunella1111 I eat healthy and am very careful, but I’m not vegan. I eat a lot of wild caught salmon and organic chicken. I believe that if it’s not organic there are so many poisons in it that I’m not willing to go with it. I quit sodas, artificial sweeteners, fast food and ultra processed foods decades ago. So far, it seems to be working well compared to my peers. I’ll be 80 on my next birthday, but am well aware that anything can happen any day, but that’s ok. What matters to me is that I live an active healthy life for as long as possible. I have been doing yoga for 13 years, just started playing mah Jongg, do my own yard work, clean my home, clean and wax my car, and get between 7,000-10,000steps a day. One lady in my yoga class is 93 and completely independent. It all matters

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@llynch17056 Wow, you are amazing and I applaud you! I just turned 70 yrs young but my Angina from my heart damage and the inherited family cholesterol disease limits me, ugh. I used to play ladies soccer when I was in my 50's, then I gave it up because I didn't want to have a heart incident on the field.
Here's hoping you make it to 100, Godspeed!

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Profile picture for rhondaj @rhondaj

@llynch17056 Yes, it is very frustrating. Now that I am off the drug, I am gradually improving but these side effects should be disclosed prior to us taking any drug. They did not disclose all of the symptoms that I had... but my side effects are improving or have dissipated since being off the drug. The only one that did not improve with time was the venous insufficiency, which surgery is my only option other than compression stockings. I did not have anything wrong with my legs or veins until this drug, and each time I injected it got worse.

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Profile picture for phobson @phobson

A couple of days ago I administered my third dosage to myself of repatha. Yes, I am experiencing sore joints and hurting muscles. And, that is in addition to feeling like my nerve endings are sizzling! I'm not sure if repatha caused my last symptom because I have been dealing with that for almost a year. But sore joints and hurting muscles, I am not prepared to deal with because it would mean I would have to go back on painkillers. I'm already on a muscle relaxer and I am unwilling to go on any other painkiller.
Thank you for your post because I can now realize that the symptoms I'm having are probably common for someone taking this truck. Good luck and Godspeed and I will be monitoring this site to see what you decide to do. I'm going to stop taking repatha. I have too many other health issues to deal with to take this. I'm 69 years old and my carotid artery on the right side inside my head above my ear is blocked 78% and that is due to a high cholesterol diet, stress and maybe one or two other things. On September 8th I am asking my cardiologist for a full body arteriogram to determine what other arteries might be blocked and by what percentage. I want to have these things taken care of ASAP. I cannot afford to have a stroke or a heart attack because I'm raising my granddaughter and I must be here for her!

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@phobson If you want better help with your hearth & vascular health, may I suggest you see a higher tier Intervention Cardiologist that are located at hospitals like University of Virginia, Duke Hospital in Durham, NC, Johns Hopkins, Mayo Clinic, etc... Dr. Othman at Duke Hospital has given me more info than the cardiologists in my area of Tidewater, VA. We drove 3 hours for each appointment but it was worth it. These doctors are advanced and when a Catheterization is done, they know what to look for.

I wish you well. My problem is Family Cholesterol which is difficult to deal with. I eat clean and visit the gym 5xweek. My CABGX3 has closed up after 11 years and I am living with just my LIMA artery and meds to keep my heart from overworking to keep me alive. I'm praying that the Repatha doesn't destroy my body; I just took my 15th injection. I would like to stay around for our 5 grandchildren.

May God help us all!

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Profile picture for HomeAgainLA @llynch17056

@prunella1111 I eat healthy and am very careful, but I’m not vegan. I eat a lot of wild caught salmon and organic chicken. I believe that if it’s not organic there are so many poisons in it that I’m not willing to go with it. I quit sodas, artificial sweeteners, fast food and ultra processed foods decades ago. So far, it seems to be working well compared to my peers. I’ll be 80 on my next birthday, but am well aware that anything can happen any day, but that’s ok. What matters to me is that I live an active healthy life for as long as possible. I have been doing yoga for 13 years, just started playing mah Jongg, do my own yard work, clean my home, clean and wax my car, and get between 7,000-10,000steps a day. One lady in my yoga class is 93 and completely independent. It all matters

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@llynch17056 you are a light in the darkness! You truly are living your best life and I believe that it is due to your changes in diet, exercise and other things you mentioned. Thank you for sharing your story.

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Profile picture for prunella1111 @prunella1111

@phobson If you want better help with your hearth & vascular health, may I suggest you see a higher tier Intervention Cardiologist that are located at hospitals like University of Virginia, Duke Hospital in Durham, NC, Johns Hopkins, Mayo Clinic, etc... Dr. Othman at Duke Hospital has given me more info than the cardiologists in my area of Tidewater, VA. We drove 3 hours for each appointment but it was worth it. These doctors are advanced and when a Catheterization is done, they know what to look for.

I wish you well. My problem is Family Cholesterol which is difficult to deal with. I eat clean and visit the gym 5xweek. My CABGX3 has closed up after 11 years and I am living with just my LIMA artery and meds to keep my heart from overworking to keep me alive. I'm praying that the Repatha doesn't destroy my body; I just took my 15th injection. I would like to stay around for our 5 grandchildren.

May God help us all!

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@prunella1111 I’m so proud of what you do to help yourself be the best you can be. Lots of people sit in recliners, taking pills for ailments that life style could correct while eating McDonald’s then wonder why their health is so bad. I do think lifestyle can improve inherited diseases, but some simply need excellent medical intervention, like yours. I’m so happy you can go see such wonderful doctors. My Medicare would not cover that and I can’t afford to pay out of pocket. I am regularly seeing more and more that Medicare won’t cover. Oh, well. I will continue to do the best I can for optimum health, live a happy energetic life and check out when the time comes.

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Profile picture for HomeAgainLA @llynch17056

@prunella1111 I’m so proud of what you do to help yourself be the best you can be. Lots of people sit in recliners, taking pills for ailments that life style could correct while eating McDonald’s then wonder why their health is so bad. I do think lifestyle can improve inherited diseases, but some simply need excellent medical intervention, like yours. I’m so happy you can go see such wonderful doctors. My Medicare would not cover that and I can’t afford to pay out of pocket. I am regularly seeing more and more that Medicare won’t cover. Oh, well. I will continue to do the best I can for optimum health, live a happy energetic life and check out when the time comes.

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@llynch17056
Thank you so much! I am so sorry that Medicare won't cover these special Cardiologists. That makes no sense to me, however, we are living in an upside down world right now. Good is considered bad and Bad is considered good. Hopefully, that will change shortly.

Sending you health and healing mercies.

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