Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

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Profile picture for theglobalnomad1 @theglobalnomad1

@tryingtimes10 Mayo's HABIT program is EXCELLENT! Grueling in a way, but my husband and I both got a tremendous amount of useful info from it and we recommend it to anyone with MCI. Our group had some who had been diagnosed with Alzheimer's (my husband), some with LBD, others with no diagnosis at all except MCI. We get together once a month for a "reunion" and to hear about new trials and theories and get tips and advice and support from each other and Dr. Chandler, who is the head of the Jacksonville HABIT program. Well worth the time and Medicare pays for all but a little bit and if I remember right, our supplemental took care of the rest. You'll not regret it! Best of luck to your and God bless!

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@theglobalnomad1

Are there any Habit programs in New England?

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Unfortunately since it is a Mayo program is only at the Mayo campuses in Minnesota, Florida, and Arizona, but check the web, maybe they have a virtual class!

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Profile picture for annie1946 @annie1946

Yes. I too have a spouse diagnosed with MCI. We have been together for 53 years. It’s difficult having to repeat things. I sense she is slowly slipping away to some other place. She is not enjoying life in the way she used to and tends to be quite negative. She also does not reach out to her friends anymore. I find I also want to be alone as it is easier. One thing I do is make sure I set up social engagements, lunches, visits etc. That is good for both of us. Oh yes, another thing is that is is sometimes quite “clingy”.

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@annie1946, good for you to make the effort to set up social engagements. I bet that is hard when all you want to do is be alone. Do you find that your spouse is less negative when you are with others? How are you doing today?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@annie1946, good for you to make the effort to set up social engagements. I bet that is hard when all you want to do is be alone. Do you find that your spouse is less negative when you are with others? How are you doing today?

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@colleenyoung Well, I love the social connections as well. And I know now for myself how important and meaningful they are!

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Profile picture for valjo @valjo

@sunnygardens This sounds all too familiar. Really struggle with my patience and become a short fuse when the smallest tasks become overwhelming and if I try to assist it becomes worse...adding fuel to the fire. No diagnosis as he is in denial and recently has escalated to losing credit cards, keys, and increased rage. I, too, lose things and memory is a task so I feel I have 2 people to focus on. My previous healthcare provider experience did not prepare me for this as much as I would have expected, but, I am much older now too. Thank you for listening.

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@valjo Welcome to MayoClinicConnect! This forum is for folks to share their experiences and to ask for, and give, help. The group cannot diagnose or treat since we are not medical professionals, just people helping each other. Again, welcome!

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Profile picture for 2me @2me

@joycel10 My husband just made that same decision this past Friday at the Neurologist’s office. All the tests seem to point to it being a good idea, to help slow the memory loss. He will be starting Lequembi as soon as insurance is sorted out, which hopefully will not take long. Best wishes to you!

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@2me I just had the MRI and getting ready for the Pet scan soon hopefully. Was pretty sure I'd go with Leqembi but now I'm thinking there's a chance the other infusion may only be 6 months or so if everything goes well. (I'm an optimist). With Leqembi, it seems like a forever drug...any thoughts.\?

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Profile picture for midnightwalker @midnightwalker

@2me I just had the MRI and getting ready for the Pet scan soon hopefully. Was pretty sure I'd go with Leqembi but now I'm thinking there's a chance the other infusion may only be 6 months or so if everything goes well. (I'm an optimist). With Leqembi, it seems like a forever drug...any thoughts.\?

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@midnightwalker There are others on this forum who are more experienced to help you with this question. In our case, it was the neurologist who steered the ship toward Lequembi…maybe from the scan results, or individual patient? IDK. I had hoped for the Kinsula for the same reason you mention. Best to you!

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Profile picture for valjo @valjo

@sunnygardens This sounds all too familiar. Really struggle with my patience and become a short fuse when the smallest tasks become overwhelming and if I try to assist it becomes worse...adding fuel to the fire. No diagnosis as he is in denial and recently has escalated to losing credit cards, keys, and increased rage. I, too, lose things and memory is a task so I feel I have 2 people to focus on. My previous healthcare provider experience did not prepare me for this as much as I would have expected, but, I am much older now too. Thank you for listening.

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I'm going through this everyday. My stepchildren know this about there father but know he won't do anything about it. If they would just come to visit it would be good. My health is not good. I start seeing a therapist next week. I hope it helps.

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I hope the therapy helps as I know how kids can be in denial or just simply don't want or know what to do. I have one son and one step daughter. They both see some of the issues but not sure what to offer themselves. I think therapy is your best bet.

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Profile picture for 2me @2me

@midnightwalker There are others on this forum who are more experienced to help you with this question. In our case, it was the neurologist who steered the ship toward Lequembi…maybe from the scan results, or individual patient? IDK. I had hoped for the Kinsula for the same reason you mention. Best to you!

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@2me I agree. Our doc will steer me towards one drug or the other or my pet scan results will do the same. Thanks for the note. Nice to know I'm not the only one on the boat...

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