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Oral Lichen Planus

Posted by jhollifield @jhollifield, Jan 14 4:26pm

Hello
I have had OLP for many years. It always presented on the side of my tongue or inside my cheeks. In 2016 I got Clear Choice dental implants. I still get it on in my cheeks sometimes but now I get flare ups around my implants. Has anyone else had this and, if so, do you know if it is due to the material of the implant?

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kjoeme1978 | @kjoeme1978 | 3 days ago
In reply to @kathy333 "@lkirnbauer: The white lacey swirls seem "suspect" to me. If you can find someone to do..." + (show)
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@lkirnbauer: The white lacey swirls seem "suspect" to me. If you can find someone to do a biopsy, that would give you a definitive diagnosis...or not. This OLP stuff is truly annoying and frustrating. A dermatologist did a biopsy of my lip which was positive, and by association, the OLP diagnosis was confirmed. I'm now seeing an oral medicine specialist at a University hospital. Not making much progress even with the specialists involved. Good luck!

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@kathy333 I have the lacy OLP it is called Reticular OLP. Chat GPT this and it can show you pictures. I also got this after Covid. I have had for 3 years. I recently gone to Mayo and comment from physician was they are seeing many more cases since Covid! I have been on Plaquinil now for 9 months. It has calmed down but tongue, lips, roof of mouth the worst. I have various topicals Clobetasol, and another swish and spit steroid but then have to use Mycelex Troche to treat Thrush. So it is on going autoimmune. I had two tongue biopsies by an oral medicine physician who was at a teaching institution. He is an oral pathologist. Very hard to find usually with a dental school. The biopsy was brutal but confirmed OLP. Very hard to find physicians who know how to treat this. I have seen 15 different doctors. Any stress makes it worse. Good luck on finding help. Oral Medicine and Derm specializing in Oral diseases in a medical school setting is best route to try.

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West Coast | @kathy333 | 3 days ago
In reply to @kjoeme1978 "@kathy333 I have the lacy OLP it is called Reticular OLP. Chat GPT this and it..." + (show)
Profile picture for kjoeme1978 @kjoeme1978

@kathy333 I have the lacy OLP it is called Reticular OLP. Chat GPT this and it can show you pictures. I also got this after Covid. I have had for 3 years. I recently gone to Mayo and comment from physician was they are seeing many more cases since Covid! I have been on Plaquinil now for 9 months. It has calmed down but tongue, lips, roof of mouth the worst. I have various topicals Clobetasol, and another swish and spit steroid but then have to use Mycelex Troche to treat Thrush. So it is on going autoimmune. I had two tongue biopsies by an oral medicine physician who was at a teaching institution. He is an oral pathologist. Very hard to find usually with a dental school. The biopsy was brutal but confirmed OLP. Very hard to find physicians who know how to treat this. I have seen 15 different doctors. Any stress makes it worse. Good luck on finding help. Oral Medicine and Derm specializing in Oral diseases in a medical school setting is best route to try.

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@kjoeme1978 Thank you! I will share your information with my MD. I have a follow up visit in a few weeks.

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kjoeme1978 | @kjoeme1978 | 2 days ago
In reply to @kjoeme1978 "@kathy333 I have the lacy OLP it is called Reticular OLP. Chat GPT this and it..." + (show)
Profile picture for kjoeme1978 @kjoeme1978

@kathy333 I have the lacy OLP it is called Reticular OLP. Chat GPT this and it can show you pictures. I also got this after Covid. I have had for 3 years. I recently gone to Mayo and comment from physician was they are seeing many more cases since Covid! I have been on Plaquinil now for 9 months. It has calmed down but tongue, lips, roof of mouth the worst. I have various topicals Clobetasol, and another swish and spit steroid but then have to use Mycelex Troche to treat Thrush. So it is on going autoimmune. I had two tongue biopsies by an oral medicine physician who was at a teaching institution. He is an oral pathologist. Very hard to find usually with a dental school. The biopsy was brutal but confirmed OLP. Very hard to find physicians who know how to treat this. I have seen 15 different doctors. Any stress makes it worse. Good luck on finding help. Oral Medicine and Derm specializing in Oral diseases in a medical school setting is best route to try.

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@kjoeme1978 the swish and spit from Mayo Dr prescribed Dexamethasone oral .05 mg / ml solution. And lidocaine viscous 2Percent solution and Mycelex
Hope this helps.

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sillyduffer | @sillyduffer | 2 days ago

Hi
I was diagnosed with OLP in NOV 2020. This was confirmed by biopsy in July 2021.
I have had recurring mouth ulcers; I have had 2 molars removed; steroid injections and a 2nd biopsy in July 2025.
I been seen by doctors who say 'never heard of it' - very reassuring!!
I used no alcohol mouth washes, tried oil pulling, had my teeth cleaned every 3 months- nothing helped.
I haven't eaten citrus, tomatoes and capsicums for 6 years, my appetite was non-existent, I lived on cottage cheese and grated apple.
I was referred by my dental specialist to the dermatology clinic at Princess Alexandra hospital in Brisbane in Feb 2026. They prescribed HYDROXYCHLOROQUINE at 2 tablets daily.
It's unbelievable the difference that this medication has made to my life.
The pain, redness and ulcers have cleared from my mouth, I'm back to eating fruit, including mangoes, kiwi fruit, tomatoes and caps.
I've has no reaction the medication unlike some people who suffer from nausea with it.
I should point out that auto immune diseases, eg coeliac, type 1 diabetes and lupus are present in members of my family - both maternal and paternal sides.
I return the clinic next month for an update and I'll post the findings.
This disease is insidious, and demoralising.
Cheers

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chrisanon | @chrisanon | 1 day ago
In reply to @sillyduffer "Hi I was diagnosed with OLP in NOV 2020. This was confirmed by biopsy in July..." + (show)
Profile picture for sillyduffer @sillyduffer

Hi
I was diagnosed with OLP in NOV 2020. This was confirmed by biopsy in July 2021.
I have had recurring mouth ulcers; I have had 2 molars removed; steroid injections and a 2nd biopsy in July 2025.
I been seen by doctors who say 'never heard of it' - very reassuring!!
I used no alcohol mouth washes, tried oil pulling, had my teeth cleaned every 3 months- nothing helped.
I haven't eaten citrus, tomatoes and capsicums for 6 years, my appetite was non-existent, I lived on cottage cheese and grated apple.
I was referred by my dental specialist to the dermatology clinic at Princess Alexandra hospital in Brisbane in Feb 2026. They prescribed HYDROXYCHLOROQUINE at 2 tablets daily.
It's unbelievable the difference that this medication has made to my life.
The pain, redness and ulcers have cleared from my mouth, I'm back to eating fruit, including mangoes, kiwi fruit, tomatoes and caps.
I've has no reaction the medication unlike some people who suffer from nausea with it.
I should point out that auto immune diseases, eg coeliac, type 1 diabetes and lupus are present in members of my family - both maternal and paternal sides.
I return the clinic next month for an update and I'll post the findings.
This disease is insidious, and demoralising.
Cheers

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@sillyduffer Wishing you healing.. i have had OLP and Esophageal LP and Lichen Sclerosus, and a number of other debilitating issues for decades. Now told AMD- dry - and NOW learn the meds for the OLP/ELP. Lichen Sclerosus, the ointments for LS and the meds for OLP-pantaprozol for OLP/Gerd which causes the inflammation and further irritates the linings of the esophagus for which i get EGD/dilations to stop choking- ALL of them, plus hypertensive meds and high cholosterol meds- and even the AREds FOR AMD are associated with vision issues which I am having. I am so sick of meds making me sicker. I know the whole matter of do the risks outweigh the benefits- but geez. my allergy pills and more likely caused the OLP i was told by my rheumatologist and on and on it goes. Can't win/. Getting discouraged. Even Ozempic can worsen OLP (slowing digestion causes more burping, hence more inflammation, hence the webbing... I try to hard to eat clean and very small amounts, small bites.. etc.. but- here I am.. Sick of being sick. Venting because arthritis so painful- RLT helped but was very expensive- so now back to that pain and it's affected me systemically- so hands, shoudlers feet ankles-- already have bilateral hips and knees- also dealing with advanced cervical stenosis and my spine is a laugh. LIke a gme of Jenga. Might make a board game :-))

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jeraberkana | @jeraberkana | 10 hours ago
In reply to @sassy1 "@minnesota10 I found the toothpaste called, Salvia. Flavia is very gentle on my gums and very..." + (show)
Profile picture for sassy1 @sassy1

@minnesota10
I found the toothpaste called, Salvia. Flavia is very gentle on my gums and very effective at cleaning my teeth. Also, I use Closys a non-flavored, ultra- senstive mouthwash, which, when combined with the toothpaste, really helps make my mouth feel clean. I’ve been managing my oral Lichen Planus by using a red -light therapy and that has minimized the number of episodes of breakouts in my mouth. But I must stay away from any acidic or spicy foods which will bring back the painful mouth sores. Hope this helps?

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@sassy1 What red light therapy are you using? I'm trying to find one that will help but there are so many out there now. Thanks for any advice!

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