1. < Autoimmune Diseases
Profile picture for jhollifield

Oral Lichen Planus

Posted by jhollifield @jhollifield, Jan 14 4:26pm

Hello
I have had OLP for many years. It always presented on the side of my tongue or inside my cheeks. In 2016 I got Clear Choice dental implants. I still get it on in my cheeks sometimes but now I get flare ups around my implants. Has anyone else had this and, if so, do you know if it is due to the material of the implant?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for kjoeme1978
kjoeme1978 | @kjoeme1978 | 11 hours ago
In reply to @kathy333 "@lkirnbauer: The white lacey swirls seem "suspect" to me. If you can find someone to do..." + (show)
Profile picture for West Coast @kathy333

@lkirnbauer: The white lacey swirls seem "suspect" to me. If you can find someone to do a biopsy, that would give you a definitive diagnosis...or not. This OLP stuff is truly annoying and frustrating. A dermatologist did a biopsy of my lip which was positive, and by association, the OLP diagnosis was confirmed. I'm now seeing an oral medicine specialist at a University hospital. Not making much progress even with the specialists involved. Good luck!

Jump to this post

@kathy333 I have the lacy OLP it is called Reticular OLP. Chat GPT this and it can show you pictures. I also got this after Covid. I have had for 3 years. I recently gone to Mayo and comment from physician was they are seeing many more cases since Covid! I have been on Plaquinil now for 9 months. It has calmed down but tongue, lips, roof of mouth the worst. I have various topicals Clobetasol, and another swish and spit steroid but then have to use Mycelex Troche to treat Thrush. So it is on going autoimmune. I had two tongue biopsies by an oral medicine physician who was at a teaching institution. He is an oral pathologist. Very hard to find usually with a dental school. The biopsy was brutal but confirmed OLP. Very hard to find physicians who know how to treat this. I have seen 15 different doctors. Any stress makes it worse. Good luck on finding help. Oral Medicine and Derm specializing in Oral diseases in a medical school setting is best route to try.

REPLY
1 reply
Profile picture for West Coast
West Coast | @kathy333 | 9 hours ago
In reply to @kjoeme1978 "@kathy333 I have the lacy OLP it is called Reticular OLP. Chat GPT this and it..." + (show)
Profile picture for kjoeme1978 @kjoeme1978

@kathy333 I have the lacy OLP it is called Reticular OLP. Chat GPT this and it can show you pictures. I also got this after Covid. I have had for 3 years. I recently gone to Mayo and comment from physician was they are seeing many more cases since Covid! I have been on Plaquinil now for 9 months. It has calmed down but tongue, lips, roof of mouth the worst. I have various topicals Clobetasol, and another swish and spit steroid but then have to use Mycelex Troche to treat Thrush. So it is on going autoimmune. I had two tongue biopsies by an oral medicine physician who was at a teaching institution. He is an oral pathologist. Very hard to find usually with a dental school. The biopsy was brutal but confirmed OLP. Very hard to find physicians who know how to treat this. I have seen 15 different doctors. Any stress makes it worse. Good luck on finding help. Oral Medicine and Derm specializing in Oral diseases in a medical school setting is best route to try.

Jump to this post

@kjoeme1978 Thank you! I will share your information with my MD. I have a follow up visit in a few weeks.

REPLY
View MoreView Less
Please sign in or register to post a reply.