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@gypsyblue I live in Stl and went to an OM dr At St. Louis University. He is an oral pathologist. Dr Vargo. . He did biopsy but didn’t treat for very long. Said that was all he could try. Just a pathologist. Who is the Washington U dr. Anakat? He is the only Dr I have heard of at Wash u. Love to know. I went to Mayo in February. Steroid swish and spit given for bad times. In there for 15 min. Quite an expense but felt I needed to check the box. I keep looking for the one who has treated this condition and cares. It has been difficult for sure. Let me know who you saw. Thank you.
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@kjoeme1978 Nice to meet you neighbor! Thank you for the SLU info. I was referred to Dr. Caroline Mann at WU. Her office is located at the BJC West County location off Olive and Mason. She was recommended by my dental hygienist. Pleasant physician, unfortunately nothing to offer my situation. I did feel very rushed through the visit. I wish I had known about the red light oral device when I went. I would have asked about it. Did you see Dr Anakat as well? I will look into that too. Good luck! There must be something in today’s technology to help with this issue.
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@kjoeme1978 je vous écris de France. Je suis atteinte de plusieurs maladies auto-immunes dont le Goujerot (pas de salive yeux très secs).
Il y a quelques mois, ma bouche étant très sèche je sortais des morceaux blancs sans comprendre ce que c’était. Puis ça s’est aggravé langue fissurée sillons sur la langue , perte de goût, et aphtes partout. J’ai consulté une Stomatologue spécialisé buccal : elle a tout de suite fait le diagnostic.
Lavage après chaque repas avec un liquide spécial et cortisone en lavages.
Ça va un peu mieux . J’ai appris à reconnaître les aliments qui aggravent le lichen (fromage et fruits).
J’ai appris que un lichen ne guérit jamais.
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