Oral Lichen Planus

Posted by jhollifield @jhollifield, Jan 14 4:26pm

Hello
I have had OLP for many years. It always presented on the side of my tongue or inside my cheeks. In 2016 I got Clear Choice dental implants. I still get it on in my cheeks sometimes but now I get flare ups around my implants. Has anyone else had this and, if so, do you know if it is due to the material of the implant?

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Profile picture for help4lichen @help4lichen

I was diagnosed with OLP in 1999, with flare-ups every few years. But for the last three years, it has been worse. It started after my doctor put me on Carvedilol 6.25mg x2 a day (Beta blocker). After taking Carvedilol for 5-6 months, the flare-ups started again. Beta blockers can cause flare-ups. Finally, my Cardiologist reduced the dosage to 3.125mg. The flare-ups are not as severe.
The dental specialist recommended Clobetasol Propionate Gel, 0.05% with Lidocaine. It helps sometimes. However, I find that Turmeric mixed with coconut oil helps the most. It soothes the erosion and pain; it helps a lot, but not 100%. Warm water and salt also help. Any suggestions, please let me know.
B.

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@help4lichen yeah i read tumeric didnt know bout coconut oil. thanks. i read about the clobetesol isnt it a steroid cream or gel or rinse. u got to be careful long term use of them will thin and atrophy your lining mouth cheeks gums etc which if u are on osteoporosis drugs could cause more problems with onycrenosis of the jaw if your skin is thinning to break thru to the jaw bone. i do not want to be on any kind of a steroid with my osteopenia already and an l4l5 fusion with screws and rods. im just terrified of hardware failure.

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Profile picture for MichM @wmcool

I have had OLP since end of 2024. I remember the side of my tongue hurt, like I had bitten it, but don’t recall biting it. I was under a lot of stress at the time. I just dealt with the pain of it. Before I knew it, months had gone by and it hadn’t healed. I would cry when eating because everything made it hurt. It was torture, because I had to eat. I went to my dentist who recommended I see an oral surgeon. Biopsy came back with OLP. I had never heard of it before. I had a red lesion on the side of my tongue, and a couple on the inside of my lower lip. I started using a corticosteroid at night. Over a few weeks time, it became less painful. Eventually subsiding completely. I still feel it, but at least I can eat without intense pain.
Interesting though, I had started taking a magnesium supplement last year, and within a couple weeks, my OLP flared up pretty intensely. I immediately stopped talking the magnesium, and it went away again. All the hype over magnesium these days, but for me, it was not well received, because of the OLP.
I recently tried adding Celtic sea salt back into my diet, but after a week, OLP has started back up. I’ll have to stop or cut back again.
For a period of time when no toothpaste was helping, I used essential oils in warm water along with flossing, and that actually seemed to help with the pain. My mouth felt clean and fresh. I have finally found a toothpaste that I can tolerate. Now I use the essential oils as a mouth rinse after gentle brushing and flossing. It seems to be working for me.
I’ve had to give up some of my favorite foods, but this is manageable now. The first year was a total learning curve. Still is, but less so.

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@wmcool what tooth pasye u use and what essential oils. ? why does hardly any one here go into detsils give names of stuff or things thst help you because thot thats what these forums are for in order to really help someone tell people specifics what device ir treatment works etc so we dont have to always ask. 50 times. please.

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Profile picture for kmm29 @kmm29

@wmcool
I too take Magnesium at night because of sleep issues in place of melatonin. But I was taking it for almost a year before my OLP made it's debut just about a yr ago.
I am a fan of essential oils, Love them in the diffuser and use Frankincense quite a bit for my shoulder/neck area.
I just found one that is recommended through Dr Jockery, a natural medicine guru that addressed OLP , He recommended from Vibrant Blue Oils, (they have a section on Immunity) the Parasympathetic, and I found the Thymus support that I'll try, to support the T- Cell along with a sleep aid oil. I will back away from the Magnesium for now just in case it's not helping.

I am curious what oils you used as a mouth rinse?

I have found that Cleure toothpaste with coconut oil is the least troublesome of the many many I have tried. I did just buy a sample pack of Fygg but haven't' started on them.
A couple weeks ago I came down with Covid and suddenly I have mouth sores I had avoided since before the holidays. A little research of Covid showed (OLP), a chronic inflammatory condition, due to immune system reactions to the SARS-CoV-2 spike protein and high psychological stress can cause a flare up of OLP. I didn't' see that coming but will be cognizant of these types of things in the future. I am still learning and always searching!

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@kmm29 hi u saying covid vaccine can flare this. ? shit i was supposed to get one in april now im scared to dont want this shit in my mouth. its one thing after another. i dont know what flared mine. could be evenity for a year i took it done now; could be the first month zepbound. hope not lost 7 lbs. need lose 50 for my spinal fusion not to have too much weight on it. could be had sore dry lips was biting the skin. stupid of me.

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Profile picture for suecutuli @suecutuli

This may be a duplicate.
I got this on amazon for $60 ish.

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@suecutuli hi has this helped for your oral lichen planus ? i just read u should get an fda approved device especially for OLP its a guard fits in your mouth to get close enough to your gums cheeks and tongue to work right one was guaranteed to work in 3 three weeks. ?

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Profile picture for hem1959 @hem1959

@suecutuli Thanks, it looks HUGE. How do you use it in your mouth?

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@hem1959 u need the small specially made devices for your mouth to work . fda aporoved class 2 medical device search for.online.

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I have suffered with OLP for 25 years. Never had it been as bad as this flare which is now in the 6 month. Usually had a few patches on my cheeks. Not bad at all. Now it covers my entire mouth, tongue, and is attacking my gums so severely that I can barely gently brush my teeth without a mouthful of blood. I’ve tried everything there is with exception of immunosuppressant drugs other than prednisone. I cannot take hydrochlor or methotrexate due to multi organ histoplasmosis. The best remedy that provides a little relief is coconut oil. Swish about 20 minutes and spit it out!! Short term but it calms my gums around my teeth. I don’t have implants but like I said, this is the first time in 25 years it has attacked around my teeth.
Good luck to you!

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Profile picture for help4lichen @help4lichen

I was diagnosed with OLP in 1999, with flare-ups every few years. But for the last three years, it has been worse. It started after my doctor put me on Carvedilol 6.25mg x2 a day (Beta blocker). After taking Carvedilol for 5-6 months, the flare-ups started again. Beta blockers can cause flare-ups. Finally, my Cardiologist reduced the dosage to 3.125mg. The flare-ups are not as severe.
The dental specialist recommended Clobetasol Propionate Gel, 0.05% with Lidocaine. It helps sometimes. However, I find that Turmeric mixed with coconut oil helps the most. It soothes the erosion and pain; it helps a lot, but not 100%. Warm water and salt also help. Any suggestions, please let me know.
B.

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@help4lichen, can you share your coconut-turmeric recipe? I would be interested in trying that.
Thanks in advance!

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Profile picture for findtheanswersdn @findtheanswersdn

@kmm29 hi u saying covid vaccine can flare this. ? shit i was supposed to get one in april now im scared to dont want this shit in my mouth. its one thing after another. i dont know what flared mine. could be evenity for a year i took it done now; could be the first month zepbound. hope not lost 7 lbs. need lose 50 for my spinal fusion not to have too much weight on it. could be had sore dry lips was biting the skin. stupid of me.

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@findtheanswersdn NO the vaccine was not my issue. It's having Covid. About 5 days in I started getting sore gums and bleeding again... then I got 2 sores on the gumline. Out of curiosity I started researching if there was a connection.
To be specific, I read: The virus protein can act as a trigger causing the 'cytokine storm' (an intense overreaction of the immune system that releases high levels of inflammatory proteins) and immune dysregulation where activated CD8 + T cells (both Covid and OLP involve hyperactive CD8 + T Cells) may target basal keratinocytes in the mouth leading to OLP. Essentially triggering new symptoms... just when things were going okay.
Honestly though, I have not gotten a covid shot in several years as I am otherwise heathy with no larger issues.
I've had OLP about a year now. Hope that helps

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Profile picture for gypsyblue @gypsyblue

I have suffered with OLP for 25 years. Never had it been as bad as this flare which is now in the 6 month. Usually had a few patches on my cheeks. Not bad at all. Now it covers my entire mouth, tongue, and is attacking my gums so severely that I can barely gently brush my teeth without a mouthful of blood. I’ve tried everything there is with exception of immunosuppressant drugs other than prednisone. I cannot take hydrochlor or methotrexate due to multi organ histoplasmosis. The best remedy that provides a little relief is coconut oil. Swish about 20 minutes and spit it out!! Short term but it calms my gums around my teeth. I don’t have implants but like I said, this is the first time in 25 years it has attacked around my teeth.
Good luck to you!

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@gypsyblue I sorry to hear that your having such a flare up. I have heard that coconut oil is helpful.
Are you using coconut oil toothpaste too. I've used Cleure for some time now with the best results. But I understand there are coconut toothpaste too.
Something must have started this flareup for you... maybe try only eating a few things that you know are okay for you... stay with that for a few days.
I wish you the best!

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Interesting that you have flair ups around your implants. I don’t have dental implants but I have numerous caps on my molars. I have redness and irritation around the base of all the caps along with the lacy rash that accompanies the lichen planus in my mouth. I’ve always said to my dentist that I believe it an allergic reaction to metal. I believe it even more now.

My regimen includes an ultra soft toothbrush head on my electric toothbrush that looks like a marshmallow. It’s given me some peace and quite a bit of relief from the pain of brushing. I floss or use my waterpick on a gentle setting the rinse with a gentle mouthwash called ClōSYS. While watching TV I’ll use red light therapy. It looks like a bite block and delivers the red light therapy in you mouth for around 20. This all seems to work well but periodically I still have breakthroughs. Suddenly I’ll feel like my gums have turned to fine sandpaper. But it’s nothing as severe as the initial presentation. I

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