Is anyone on Repatha for cholesterol...

I have only been on Repatha for 14 weeks now but I immediately noticed from the day after the 1st injection a runny nose. I have to wipe my nose about 20+ times a day, higher than that the first couple days after the injection. I had a lipid panel done immediately after the 3rd injection, 6 weeks, and my LDL dropped from 122 to 31 so it does work. Coincidentally I think, I am on my 2nd occurrence of a bad cold called a rhinovirus (not a mistype, there really is such a diagnosis). I also have a rare blood cancer which causes my immune system to not function properly so that may be the reason for 2 severe colds in about 12 weeks
Hope this helps hope this helps

@ohallk
I am not sure of anything about this matter, but my feeling is that genetics might tell you whether trying diet changes would likely affect your lab numbers.

I have so many blood relatives who have had strokes and heart problems and I have read that my tribe is prone to problems with LDLs and the doctors say that my problem is familial and that diet will have little or no effect on numbers. So personally, I wouldn’t take the risk of having a stroke while trying diet in place of medication. I am not you, obviously, but this is how I think. Maybe diet would work for you. Who knows?

@tatiana987 your points are well made…in my case, if doc prescribes a statin, we need to find the one that is that right fit for me…And, have a healthy diet and some exercise as well.

@tatiana987 your points are well made…in my case, if doc prescribes a statin, we need to find the one that is that right fit for me…And, have a healthy diet and some exercise as well.

@nycmusic BTW I liked your comment about mistakes in music. I am of the opinion that mistakes can improve music, give the feeling of the moment, be happy accidents. My sister was a pianist and when she was a child, she could remember a lot of classic pieces pretty well and play them by ear quite well, but there were passages she could not remember, so she just winged it, made up the parts she could not recall. I think there was a fresh surprising quality to her mistake-filled Bach. I think Bach might have enjoyed her adjustmentts fitting for the time and place. All the kids liked her playing.

@tatiana987 yes, you make a good point—the wonderful role of creativity in music, and life ! ….i used to call some of mine ‘’apologatura’’—make the best of ‘those’ moments.

@nycmusic LOL I take that word « apologatura » to imply that creating something probably involves mistakes, even offenses by the very nature of the act of création. Is that right?

But a child doesn’t know she needs to apologize to Bach for playing his creations but « editing » them. She doesn’t know about copyright or authorship or lots of other serious, complex issues of creation of music. Sis used to cry if somebody started a melody on a note other than the one she knew about (the pain of perfect pitch). My neice used to fight back about where a melody had to start. There was the version she knew and she knew where it started on the scale. Other starts were simply wrong.

Kids’ memory for music is enjoyable, My son’s piano teacher used to dispair that he would never learn to read music because he remembered what he heard the teacher play. He would look at the page and pretend to read it, and he did pretty well, but there were those inevitable mistakes, lapses, inventions to cover memory lapses. Kind of fun for me. And whose version was more enjoyable really, the known one or the surprising, very contemporary version with mistakes?

@ohallk
I am not sure of anything about this matter, but my feeling is that genetics might tell you whether trying diet changes would likely affect your lab numbers.

I have so many blood relatives who have had strokes and heart problems and I have read that my tribe is prone to problems with LDLs and the doctors say that my problem is familial and that diet will have little or no effect on numbers. So personally, I wouldn’t take the risk of having a stroke while trying diet in place of medication. I am not you, obviously, but this is how I think. Maybe diet would work for you. Who knows?

@tominga I am experiencing the runny nose as you describe it and a cough on Leqvio, another med with same goal as Repatha. I wonder whether lower the cholesterol affects immunity.

If you don’t like rhinoviruses, maybe you should stop hanging out with rhinos. (Kidding, of course)