@writer418
Many years ago a Dr. shared: "We humans are like snowflakes, no 2 are alike." How True ... a medication that works for 1 patient could be a big Problem to another!
@tatiana987 from my experience and research, unless your diet is dreadful (unlikely if you are here), then diet can lower cholesterol about 10%. I've tried multiple diets and currently on a plant-based one, but nothing changes more than my genes have given me.
As noted here, please be careful and balance the risk of meds, lifestyle, and your family history before you make major changes
Good to know of somebody else trying same new drug I am trying. I have only had the first shot and will take second at the end of March. Repatha was not good for me. We shall see how this one goes. My blood numbers look good so far. My primary care doctor suggested I might have pneumonia based on the crackling in my lungs. Odd. Drug side effect? I do sneeze a lot as if I were allergic to something. Time will tell what causes what.
@swilkins1974 I apologize for the delay getting back; I remembered someone asked me to report back.
I had to cancel my January appointment to Mayo's Statin Intolerance Clinic because I felt so bad; I knew I couldn't navigate the airport (it's a hike to Rochester from where I am, a long day of travel), handle my luggage etc.
I rescheduled for Feb. 16, which at that point I was a week past the three-month half-life. I still felt terrible, but was able to make it. I had an ECG, labs, and a treadmill stress test in the morning, then I met with cardiologist Dr. Stephen Kopecky.
He recommended Leqvio (Inclisiran). I had my first appointment with my new cardiologist in the town where I live on Monday this week. She agreed and didn't pooh-pooh my side effects. During the Mayo labs, they also did a lipo (a) test, which I had never had done before, and it came back very elevated; the normal number is 75, and mine was 150. It's genetic and not affected by lifestyle (diet or exercise) and there are currently no treatments; Dr. Kopeky and my new cardiologist both said there are some new drugs on the verge of being approved by the FDA to lower it, maybe even as early as May. It is a type of cholesterol that's a marker for heart attacks and strokes. So, yay, now I have that too. 😵💫
I bring that up because my new doc says the people with elevated lipo (a) tend to be intolerant of statins (which I can't take) or PCSK9 inhibitors like Repatha.
I asked her about side effects of Leqvio; she said she has 20 patients on it and knock wood (her phrase), no one has had side effects; there was one patient who it didn't help.
For me, I have to go to an infusion center for the shot. Once approved by insurance and scheduled, I'll have the first injection, followed by another 30 days later, then every six months.
There is another poster here (who, forgive me, I can't remember the name) who says she went on Inclisiran after being intolerant of statins and Repatha, and that she did not have any side effects.
So, I am hopeful, because I've been on five cholesterol-lowering meds that either I couldn't tolerate or didn't work (Nexletol). She says for some people, there LDL number goes to 5. Which would be a miracle for me. I haven't been on any cholesterol med since Nov. 11, my last Repatha injection. My untreated LDL tends to be around 130, and that's with clean eating and exercise. Because I have CAD and I also had open-heart surgery in 2022 to repair an aortic aneurysm, they want my LDL to be 50.
Besides feeling terrible while I was there, Mayo was a very positive experience. They make it very easy for you, and everyone I encountered was friendly, kind, professional. Dr. Kopecky spent a lot of time with me.
I apologize for the length of this. Man, Repatha really did a number on me. I think I'm still feeling the effects, although all the docs say it would be cleared out of my system by now.
Last, I hope I have not conveyed any wrong information, but it's possible I may have inadvertently. I'm sure you're regretting asking me to report back, but if I can answer any questions, please let me know.
@swilkins1974 I apologize for the delay getting back; I remembered someone asked me to report back.
I had to cancel my January appointment to Mayo's Statin Intolerance Clinic because I felt so bad; I knew I couldn't navigate the airport (it's a hike to Rochester from where I am, a long day of travel), handle my luggage etc.
I rescheduled for Feb. 16, which at that point I was a week past the three-month half-life. I still felt terrible, but was able to make it. I had an ECG, labs, and a treadmill stress test in the morning, then I met with cardiologist Dr. Stephen Kopecky.
He recommended Leqvio (Inclisiran). I had my first appointment with my new cardiologist in the town where I live on Monday this week. She agreed and didn't pooh-pooh my side effects. During the Mayo labs, they also did a lipo (a) test, which I had never had done before, and it came back very elevated; the normal number is 75, and mine was 150. It's genetic and not affected by lifestyle (diet or exercise) and there are currently no treatments; Dr. Kopeky and my new cardiologist both said there are some new drugs on the verge of being approved by the FDA to lower it, maybe even as early as May. It is a type of cholesterol that's a marker for heart attacks and strokes. So, yay, now I have that too. 😵💫
I bring that up because my new doc says the people with elevated lipo (a) tend to be intolerant of statins (which I can't take) or PCSK9 inhibitors like Repatha.
I asked her about side effects of Leqvio; she said she has 20 patients on it and knock wood (her phrase), no one has had side effects; there was one patient who it didn't help.
For me, I have to go to an infusion center for the shot. Once approved by insurance and scheduled, I'll have the first injection, followed by another 30 days later, then every six months.
There is another poster here (who, forgive me, I can't remember the name) who says she went on Inclisiran after being intolerant of statins and Repatha, and that she did not have any side effects.
So, I am hopeful, because I've been on five cholesterol-lowering meds that either I couldn't tolerate or didn't work (Nexletol). She says for some people, there LDL number goes to 5. Which would be a miracle for me. I haven't been on any cholesterol med since Nov. 11, my last Repatha injection. My untreated LDL tends to be around 130, and that's with clean eating and exercise. Because I have CAD and I also had open-heart surgery in 2022 to repair an aortic aneurysm, they want my LDL to be 50.
Besides feeling terrible while I was there, Mayo was a very positive experience. They make it very easy for you, and everyone I encountered was friendly, kind, professional. Dr. Kopecky spent a lot of time with me.
I apologize for the length of this. Man, Repatha really did a number on me. I think I'm still feeling the effects, although all the docs say it would be cleared out of my system by now.
Last, I hope I have not conveyed any wrong information, but it's possible I may have inadvertently. I'm sure you're regretting asking me to report back, but if I can answer any questions, please let me know.
@wgr123 I am so glad to read what you have been up to. You are making great progress on your road to protecting your heart. It sounds like making a trip to Mayo Clinic’s Statin Intolerance Clinic took considerable effort for you, and was extremely valuable.
I love finding things in common with people! Dr Kopecky helped me get my genetic cholesterol under control for the first time in my life, and after my experience taking Repatha. I get Inclisiran injections plus he helped to get me on a couple additional cholesterol drugs that previously caused problems.
Finding out about your elevated LP(a) is good information to know. The bloodwork I had done included some I had never heard of and is what helped them personalize my treatment. I am hopeful you are on a good path towards living your best life!
I have so many questions….What did you learn from the cardio testing you had done? Did either or your cardiologists give you an idea of what to expect recovering from taking Repatha? Will you see Dr. Kopecky again? Did you leave with lifestyle recommendations?
@wgr123 I am so glad to read what you have been up to. You are making great progress on your road to protecting your heart. It sounds like making a trip to Mayo Clinic’s Statin Intolerance Clinic took considerable effort for you, and was extremely valuable.
I love finding things in common with people! Dr Kopecky helped me get my genetic cholesterol under control for the first time in my life, and after my experience taking Repatha. I get Inclisiran injections plus he helped to get me on a couple additional cholesterol drugs that previously caused problems.
Finding out about your elevated LP(a) is good information to know. The bloodwork I had done included some I had never heard of and is what helped them personalize my treatment. I am hopeful you are on a good path towards living your best life!
I have so many questions….What did you learn from the cardio testing you had done? Did either or your cardiologists give you an idea of what to expect recovering from taking Repatha? Will you see Dr. Kopecky again? Did you leave with lifestyle recommendations?
My trip to Mayo's Statin Intolerance Clinic was one time only (at least for now). Yes, it was a hike; have to fly through O'Hare, change planes; six/seven hour of travel time). I found about it here on this site; without going back through the posts, it may have been yours. I am pretty sure I recall you mentioning Dr. Kopecky; it's been a rough patch for me, with so much going on, that my memory is shot!
I wanted to go because my cardiologist said my musculoskeletal problems couldn't be caused by Repatha; he also told me something wrong about the half-life, all that info on Repatha's website, incidentally, and it's in their commercials that it may cause back pain. And there's that NIH clinical study published a couple years ago, the one done at Wilkes-Barre Veterans Center, testing adverse effects on people taking PCSK9 inhibitors (that I also found out about on this site).
The open-heart surgery to repair the aortic aneurysm was the worst thing I've ever been through; I said to the surgeon's nurse practitioner while I was in recovery that I didn't know it was possible to feel so bad.
So of course I want my LDL to be at 50 too (the doctor's goal, which it was at for a while when I was on 80mg of Atorvastatin, because I don't ever want to go through another cardiac event. And I had been on five medications that either I couldn't tolerate or were ineffective.
It looked like I was running out of options, so after finding out about Mayo's Statin Intolerance Clinic here, I talked to my primary care doc about it and he did a referral.
What did I learn? The lipo(a) info was new to me. I felt so bad, I didn't know if I would be able to do the treadmill exercise test, but they said I did a good test. The ECG was fine. I can't really say that, beyond the lipo(a) info, that I gleaned any new info from the testing.
He said that I shouldn't take Repatha anymore; there are people (obviously) who can't tolerate it. For me, I felt like I injected poison into my body. I had been off it, I think 97 days when I was at Mayo; he said it would be cleared from my system.
My primary care doc has said for a while that he suspects I have fibromyalgia. Dr. Kopecky and I talked about it. He thought that diagnosis seemed apt and that I should pursue it. I am seeing a physiatrist / physical medicine & rehab doctor at end of this month.
I am not crazy about that diagnosis, tbh. My primary care doc has explained that there's no testing to confirm it; it's a diagnosis when all other testing has been negative (as mine have been). Other than pain and stiffness, which is MUCH worse when I am on statins or Repatha, I don't have any of the other side effects: no sleep problems, e.g.
I have some longstanding myofascial restrictions caused by years of sitting at a desk at my jobs and bad repetitive movement patterns. I think the cholesterol-lowering meds just amplified, or hammered, those place. But I have to see what the PM&R doc says. The treatment is pain management drugs (yay, more drugs) and lifestyle stuff that I already do.
Re: the latter. Dr. Kopecky, you probably know, authored a book on aging, and he is a cancer survivor. He said to me, about movement, "I say to people, if this is all you can do, do this," and he held up his index finger, moving it at the joints like the red rum kid in The Shining.
After our talk, he had an exercise physiologist come in and talk to me about exercise, and he gave me a couple of booklets. I've always gone to the gym, and I have had a lot of PT. I WANT to stay active. He didn't really tell me anything I didn't already know (I don't mean to sound like a know-it-all; he, like everyone I met with at Mayo, was pleasant, etc.). Basically, he was like, make sure you push yourself. I've been having myofascial release therapy for a while, and Dr. Kopecky said to keep that up.
No other info on what to expect re: recovering from Repatha. I guess I "fired" my old cardiologist. When I asked to see a cardiologist who's in the same practice and who was recommended to me, the office said they would have to do a transfer of care.
The new cardiologist told me her husband couldn't take statins; how she said he felt was how I felt. And as I already said, she acknowledged that some people can't take PCSK9 inhibitors, either, and for them Inclisiran works.
I'm hopeful, of course, that Leqvio works. I am still feeling my restrictions, but better each day, I think, and no longer like I can barely walk. I believe my "old" places were just made much worse by the Repatha.
*Talked about diet, too, with Dr. K. When I stopped Repatha in November and wasn't on any cholesterol-lowering meds, I doubled down on clean eating. I don't eat red meat, fast food or processed food or fried food, for the most part. I should have been more attentive about my diet before anyway; I wasn't eating Big Arches every day or anything like that, but I could have been more conscientious.
Last ("mercifully!" you're thinking): Both Dr. K and my new cardiologist said if Leqvio didn't lower my LDL enough, Ezetimibe (Zetia) might be added.
Thank you again for the info you've provided and your concern.
My trip to Mayo's Statin Intolerance Clinic was one time only (at least for now). Yes, it was a hike; have to fly through O'Hare, change planes; six/seven hour of travel time). I found about it here on this site; without going back through the posts, it may have been yours. I am pretty sure I recall you mentioning Dr. Kopecky; it's been a rough patch for me, with so much going on, that my memory is shot!
I wanted to go because my cardiologist said my musculoskeletal problems couldn't be caused by Repatha; he also told me something wrong about the half-life, all that info on Repatha's website, incidentally, and it's in their commercials that it may cause back pain. And there's that NIH clinical study published a couple years ago, the one done at Wilkes-Barre Veterans Center, testing adverse effects on people taking PCSK9 inhibitors (that I also found out about on this site).
The open-heart surgery to repair the aortic aneurysm was the worst thing I've ever been through; I said to the surgeon's nurse practitioner while I was in recovery that I didn't know it was possible to feel so bad.
So of course I want my LDL to be at 50 too (the doctor's goal, which it was at for a while when I was on 80mg of Atorvastatin, because I don't ever want to go through another cardiac event. And I had been on five medications that either I couldn't tolerate or were ineffective.
It looked like I was running out of options, so after finding out about Mayo's Statin Intolerance Clinic here, I talked to my primary care doc about it and he did a referral.
What did I learn? The lipo(a) info was new to me. I felt so bad, I didn't know if I would be able to do the treadmill exercise test, but they said I did a good test. The ECG was fine. I can't really say that, beyond the lipo(a) info, that I gleaned any new info from the testing.
He said that I shouldn't take Repatha anymore; there are people (obviously) who can't tolerate it. For me, I felt like I injected poison into my body. I had been off it, I think 97 days when I was at Mayo; he said it would be cleared from my system.
My primary care doc has said for a while that he suspects I have fibromyalgia. Dr. Kopecky and I talked about it. He thought that diagnosis seemed apt and that I should pursue it. I am seeing a physiatrist / physical medicine & rehab doctor at end of this month.
I am not crazy about that diagnosis, tbh. My primary care doc has explained that there's no testing to confirm it; it's a diagnosis when all other testing has been negative (as mine have been). Other than pain and stiffness, which is MUCH worse when I am on statins or Repatha, I don't have any of the other side effects: no sleep problems, e.g.
I have some longstanding myofascial restrictions caused by years of sitting at a desk at my jobs and bad repetitive movement patterns. I think the cholesterol-lowering meds just amplified, or hammered, those place. But I have to see what the PM&R doc says. The treatment is pain management drugs (yay, more drugs) and lifestyle stuff that I already do.
Re: the latter. Dr. Kopecky, you probably know, authored a book on aging, and he is a cancer survivor. He said to me, about movement, "I say to people, if this is all you can do, do this," and he held up his index finger, moving it at the joints like the red rum kid in The Shining.
After our talk, he had an exercise physiologist come in and talk to me about exercise, and he gave me a couple of booklets. I've always gone to the gym, and I have had a lot of PT. I WANT to stay active. He didn't really tell me anything I didn't already know (I don't mean to sound like a know-it-all; he, like everyone I met with at Mayo, was pleasant, etc.). Basically, he was like, make sure you push yourself. I've been having myofascial release therapy for a while, and Dr. Kopecky said to keep that up.
No other info on what to expect re: recovering from Repatha. I guess I "fired" my old cardiologist. When I asked to see a cardiologist who's in the same practice and who was recommended to me, the office said they would have to do a transfer of care.
The new cardiologist told me her husband couldn't take statins; how she said he felt was how I felt. And as I already said, she acknowledged that some people can't take PCSK9 inhibitors, either, and for them Inclisiran works.
I'm hopeful, of course, that Leqvio works. I am still feeling my restrictions, but better each day, I think, and no longer like I can barely walk. I believe my "old" places were just made much worse by the Repatha.
*Talked about diet, too, with Dr. K. When I stopped Repatha in November and wasn't on any cholesterol-lowering meds, I doubled down on clean eating. I don't eat red meat, fast food or processed food or fried food, for the most part. I should have been more attentive about my diet before anyway; I wasn't eating Big Arches every day or anything like that, but I could have been more conscientious.
Last ("mercifully!" you're thinking): Both Dr. K and my new cardiologist said if Leqvio didn't lower my LDL enough, Ezetimibe (Zetia) might be added.
Thank you again for the info you've provided and your concern.
Well, @wgr123 Thank you for taking the time to provide so much detail. I know you aren’t getting an answer with a fix or even easy options dealing with life after trying Repatha, and you also feel like you have the tools you need to move forward. The reason I am confident I know this, I could have written a significant amount of your comment myself.
Congratulations on putting more of your unique puzzle together! My next steps are pursuing a fibromyalgia consult, Inclisiran (Leqvio) injection and updated bloodwork. I look forward to hearing how your next step(s) go. I would like to stay in touch with you.
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@writer418
Many years ago a Dr. shared: "We humans are like snowflakes, no 2 are alike." How True ... a medication that works for 1 patient could be a big Problem to another!
@agb
So True, So True! As a Dr. once said to me (Many Years Ago) "My Patients are like Snowflakes, No 2 are alike".
Good to know of somebody else trying same new drug I am trying. I have only had the first shot and will take second at the end of March. Repatha was not good for me. We shall see how this one goes. My blood numbers look good so far. My primary care doctor suggested I might have pneumonia based on the crackling in my lungs. Odd. Drug side effect? I do sneeze a lot as if I were allergic to something. Time will tell what causes what.
@swilkins1974 I apologize for the delay getting back; I remembered someone asked me to report back.
I had to cancel my January appointment to Mayo's Statin Intolerance Clinic because I felt so bad; I knew I couldn't navigate the airport (it's a hike to Rochester from where I am, a long day of travel), handle my luggage etc.
I rescheduled for Feb. 16, which at that point I was a week past the three-month half-life. I still felt terrible, but was able to make it. I had an ECG, labs, and a treadmill stress test in the morning, then I met with cardiologist Dr. Stephen Kopecky.
He recommended Leqvio (Inclisiran). I had my first appointment with my new cardiologist in the town where I live on Monday this week. She agreed and didn't pooh-pooh my side effects. During the Mayo labs, they also did a lipo (a) test, which I had never had done before, and it came back very elevated; the normal number is 75, and mine was 150. It's genetic and not affected by lifestyle (diet or exercise) and there are currently no treatments; Dr. Kopeky and my new cardiologist both said there are some new drugs on the verge of being approved by the FDA to lower it, maybe even as early as May. It is a type of cholesterol that's a marker for heart attacks and strokes. So, yay, now I have that too. 😵💫
I bring that up because my new doc says the people with elevated lipo (a) tend to be intolerant of statins (which I can't take) or PCSK9 inhibitors like Repatha.
I asked her about side effects of Leqvio; she said she has 20 patients on it and knock wood (her phrase), no one has had side effects; there was one patient who it didn't help.
For me, I have to go to an infusion center for the shot. Once approved by insurance and scheduled, I'll have the first injection, followed by another 30 days later, then every six months.
There is another poster here (who, forgive me, I can't remember the name) who says she went on Inclisiran after being intolerant of statins and Repatha, and that she did not have any side effects.
So, I am hopeful, because I've been on five cholesterol-lowering meds that either I couldn't tolerate or didn't work (Nexletol). She says for some people, there LDL number goes to 5. Which would be a miracle for me. I haven't been on any cholesterol med since Nov. 11, my last Repatha injection. My untreated LDL tends to be around 130, and that's with clean eating and exercise. Because I have CAD and I also had open-heart surgery in 2022 to repair an aortic aneurysm, they want my LDL to be 50.
Besides feeling terrible while I was there, Mayo was a very positive experience. They make it very easy for you, and everyone I encountered was friendly, kind, professional. Dr. Kopecky spent a lot of time with me.
I apologize for the length of this. Man, Repatha really did a number on me. I think I'm still feeling the effects, although all the docs say it would be cleared out of my system by now.
Last, I hope I have not conveyed any wrong information, but it's possible I may have inadvertently. I'm sure you're regretting asking me to report back, but if I can answer any questions, please let me know.
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2 Reactions@wgr123 I am so glad to read what you have been up to. You are making great progress on your road to protecting your heart. It sounds like making a trip to Mayo Clinic’s Statin Intolerance Clinic took considerable effort for you, and was extremely valuable.
I love finding things in common with people! Dr Kopecky helped me get my genetic cholesterol under control for the first time in my life, and after my experience taking Repatha. I get Inclisiran injections plus he helped to get me on a couple additional cholesterol drugs that previously caused problems.
Finding out about your elevated LP(a) is good information to know. The bloodwork I had done included some I had never heard of and is what helped them personalize my treatment. I am hopeful you are on a good path towards living your best life!
I have so many questions….What did you learn from the cardio testing you had done? Did either or your cardiologists give you an idea of what to expect recovering from taking Repatha? Will you see Dr. Kopecky again? Did you leave with lifestyle recommendations?
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1 Reaction@jlharsh Thank you for the kind response.
My trip to Mayo's Statin Intolerance Clinic was one time only (at least for now). Yes, it was a hike; have to fly through O'Hare, change planes; six/seven hour of travel time). I found about it here on this site; without going back through the posts, it may have been yours. I am pretty sure I recall you mentioning Dr. Kopecky; it's been a rough patch for me, with so much going on, that my memory is shot!
I wanted to go because my cardiologist said my musculoskeletal problems couldn't be caused by Repatha; he also told me something wrong about the half-life, all that info on Repatha's website, incidentally, and it's in their commercials that it may cause back pain. And there's that NIH clinical study published a couple years ago, the one done at Wilkes-Barre Veterans Center, testing adverse effects on people taking PCSK9 inhibitors (that I also found out about on this site).
The open-heart surgery to repair the aortic aneurysm was the worst thing I've ever been through; I said to the surgeon's nurse practitioner while I was in recovery that I didn't know it was possible to feel so bad.
So of course I want my LDL to be at 50 too (the doctor's goal, which it was at for a while when I was on 80mg of Atorvastatin, because I don't ever want to go through another cardiac event. And I had been on five medications that either I couldn't tolerate or were ineffective.
It looked like I was running out of options, so after finding out about Mayo's Statin Intolerance Clinic here, I talked to my primary care doc about it and he did a referral.
What did I learn? The lipo(a) info was new to me. I felt so bad, I didn't know if I would be able to do the treadmill exercise test, but they said I did a good test. The ECG was fine. I can't really say that, beyond the lipo(a) info, that I gleaned any new info from the testing.
He said that I shouldn't take Repatha anymore; there are people (obviously) who can't tolerate it. For me, I felt like I injected poison into my body. I had been off it, I think 97 days when I was at Mayo; he said it would be cleared from my system.
My primary care doc has said for a while that he suspects I have fibromyalgia. Dr. Kopecky and I talked about it. He thought that diagnosis seemed apt and that I should pursue it. I am seeing a physiatrist / physical medicine & rehab doctor at end of this month.
I am not crazy about that diagnosis, tbh. My primary care doc has explained that there's no testing to confirm it; it's a diagnosis when all other testing has been negative (as mine have been). Other than pain and stiffness, which is MUCH worse when I am on statins or Repatha, I don't have any of the other side effects: no sleep problems, e.g.
I have some longstanding myofascial restrictions caused by years of sitting at a desk at my jobs and bad repetitive movement patterns. I think the cholesterol-lowering meds just amplified, or hammered, those place. But I have to see what the PM&R doc says. The treatment is pain management drugs (yay, more drugs) and lifestyle stuff that I already do.
Re: the latter. Dr. Kopecky, you probably know, authored a book on aging, and he is a cancer survivor. He said to me, about movement, "I say to people, if this is all you can do, do this," and he held up his index finger, moving it at the joints like the red rum kid in The Shining.
After our talk, he had an exercise physiologist come in and talk to me about exercise, and he gave me a couple of booklets. I've always gone to the gym, and I have had a lot of PT. I WANT to stay active. He didn't really tell me anything I didn't already know (I don't mean to sound like a know-it-all; he, like everyone I met with at Mayo, was pleasant, etc.). Basically, he was like, make sure you push yourself. I've been having myofascial release therapy for a while, and Dr. Kopecky said to keep that up.
No other info on what to expect re: recovering from Repatha. I guess I "fired" my old cardiologist. When I asked to see a cardiologist who's in the same practice and who was recommended to me, the office said they would have to do a transfer of care.
The new cardiologist told me her husband couldn't take statins; how she said he felt was how I felt. And as I already said, she acknowledged that some people can't take PCSK9 inhibitors, either, and for them Inclisiran works.
I'm hopeful, of course, that Leqvio works. I am still feeling my restrictions, but better each day, I think, and no longer like I can barely walk. I believe my "old" places were just made much worse by the Repatha.
*Talked about diet, too, with Dr. K. When I stopped Repatha in November and wasn't on any cholesterol-lowering meds, I doubled down on clean eating. I don't eat red meat, fast food or processed food or fried food, for the most part. I should have been more attentive about my diet before anyway; I wasn't eating Big Arches every day or anything like that, but I could have been more conscientious.
Last ("mercifully!" you're thinking): Both Dr. K and my new cardiologist said if Leqvio didn't lower my LDL enough, Ezetimibe (Zetia) might be added.
Thank you again for the info you've provided and your concern.
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Helpful -
Hug
2 ReactionsWell, @wgr123 Thank you for taking the time to provide so much detail. I know you aren’t getting an answer with a fix or even easy options dealing with life after trying Repatha, and you also feel like you have the tools you need to move forward. The reason I am confident I know this, I could have written a significant amount of your comment myself.
Congratulations on putting more of your unique puzzle together! My next steps are pursuing a fibromyalgia consult, Inclisiran (Leqvio) injection and updated bloodwork. I look forward to hearing how your next step(s) go. I would like to stay in touch with you.
Life is an adventure!