Help - I am burned out and dealing with someone who is stubborn
My husband has a history of COPD and asthma. He has used every inhaler that is available and same with the drugs, which is claims to have problems with all of them
For the last two months it has been awful. We seem to be at the ER and doctor every few days. Last time at doc was Friday. He was given an antibiotic. This morning, I ask him how his lungs are doing and he tells me fine. I figured this because for the last two months or so all he does is go around honking, deliberately, up stuff and looking at what color it is. Trust me, I have the kleenex all over that I keep picking up. He is OBSESSED with the color - is it green, is it gray, is it clear. This even though the doc on Friday told him that color doesn't matter.
Now he is back on the phone for another doc. apt. His lungs, which were fine just an hour ago are now "all clogged up" and he is honking (generally becauses he keeps trying to) and he feels awful.
I must say, this shocked me as he just told me he was getting better.
Anyway, I can not clean around the house and he is b*tching that because of the house his lungs are bad. BULL. I do not use any strong chemicals. I generally use vinegar and water to clean floors, I dust weekly. NOW, though even vinegar bothers his lungs, so he claims.
The final straw for me came this weekend after it had rained several days. He walked outside and, oh his lungs were bothered. Why you ask, Because of the smell the air gets after it rains! This is not about pollen, etc, but just the earthy smell that comes after a good rain. At this point I am having my doubts.
I cannot tell you how many differnt doctors we have been to. Two weeks ago he told me to be ready to take him to the hospital, that didn't happen. Now he is sitting there telling me he is gonna die!
I just don't know what to do.
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Yes, it is so frustrating when he won't even try something that has been proven to help so many other people. What is so bad about a cup of ginger or peppermint tea with honey? It would help and he may even like it if he would just try it. I am at this minute making some homemade chicken noodle soup. I will see what he says about it when he trys it. Oh wll, if he would rather eat soup out of the can, that is on him. HOmemade is so much better for anyone. Good luck with yours.
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1 ReactionI totally agree!
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2 ReactionsI'm sure your husband knows you are just trying to help and deep down he appreciates it. But I think it's hard for them to accept that things are going to be different and there will come a time when they cannot do for themselves and will have to depend on someone else. I do what I can for my husband but when he gets that way I just remind myself that this whole thing is hard for him too.
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7 ReactionsCaregiving a husband is hard. And yes this whole thing is hard on him too. My husband is a veteran and was exposed to agent orange in Vietnam. He
is suffering from it all now and I sympathize for him. But I get so tired of everything being about him. Everything we have to talk about, everything we do, everywhere we go. I'm not a wife, I'm a caregiver! It's hard to be a wife when you are in charge of doing everything by yourself. And I have so much equipment in my house it looks like a nursing home. He's up all night and wakes me up. And I put in 19 hour days mostly. I get grouchy and I'm tired. But I try to endure and be compassionate. I hear people asking him how he's doing but no one asks me the caregiver how I'm doing. Sometimes I want to scream, go nuts, hang myself (don't worry I won't). This is not how I feel all the time but I really wish we could have more joy in our life. I ask the Lord to help me through this phase of my life. I just hope it doesn't kill me. I know I need to take care of myself so that I can take care of him. Que sera sera, it is what it is and I can only take it one day at a time. 🙏Jesus!
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9 ReactionsIt is reassuring to hear others feel the level of frustration that I do and that this is a normal feeling as a caregiver. My husband does not have cancer, but has a myriad of health issues (diabetes, heart condition, neuropathy, mild cognitive issues). He is battling depression, which is being treated by our primary physician, but he refuses to go to therapy. He is very rude at times and his level of frustration is hard to deal with at times. I try to remember that he has lost his driving privileges and no longer can perform some of the basic everyday tasks.
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5 ReactionsMy husband has stage 4 colon spread to lungs. He had all the chemo and now on pills. Most times i can handle it but this morning i yelled at him because he was barking orders. It has been 2 years snd i’m exhausted. I feel so guilty for yelling.
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5 ReactionsI so understand how you feel. My husband has decided to stop his chemo treatments this morning. He has been suffering so much from the chemo symptoms that he just said I can't do this anymore. Of course, I support him in his decision. Maybe after the chemo finally leaves his body, he will have some quality of life back. I just don't know what to expect. I have not gone through this very long as it all started just last september. He is usually pretty good, but I hate to leave the house because he is always calling me for something. He is so weak that it is hard for him to just leave his recliner in the living room to walk to the kitchen or bathroom. Do you get time to yourself? I know that caregivers definitley need time to get away even if just for a few hours. But don't feel bad about yelling at him. He is not going though this alone. You are going through it with him. It is OK to yell now and then. We have to vent too, although we feel so guilty afterwards. But it is OK. Hang in there.
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4 ReactionsYes, it is very frustrating when we are doing our best for them, and they seem to not appreciate it by their actions. My husband is really not that demanding yet, but he is getting there. He is so weak anymore that he can't even get himself a cup of coffee. I don't mind, but I do mind when he won't try anything different that may help him. He keeps throwing up but bulks at trying ginger tea or peppermint tea. We have boost which he won't drink. I got him gatorade a month or so, and he said he did not like it. Now the visiting nurse came today and said his blood pressure is low. (I wasn't home when she came) I was on an errand for him. She told him that he needs to drink things like gatorade and now he wants some. Well i threw away the ones I had bought because I don't like it either and it was just taking up room in the frig. No matter what the health problems are for our husbands, it still means we have to take care of them. I am sorry to hear that he is rude. Being sick does not give the person the right to be rude to us as we are doing our best to make things easier for them. I know my husband is very frustrated and I imagine your husband is also. But knowing that, does not help us from becoming tired and frustrated at it all. We are only human. Your feelings are normal, so don't feel guilty. We all lose our patience but the does not mean we don't love that person anymore. Don't feel bad or guity, but it is good to vent. God bless you.
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4 ReactionsI do go to the grocery store and walk around. Otherwise just stay with him and help him get around the house
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3 ReactionsI am so sorry that you are having such a hard timem but I can understand what you are going through. Although my husband does not go anywhere I go, it is because he can't. But then again, he never did go anywhere with me. But if you want to scream, go into your bedroom and scream into your pillow. And if you do hang yourself, (I know you won't) just use a thin thread. Better yet, hang him. lol
Guess I have been fortunate in that many of my friends and family do ask how I am doing. But then again many of these people were caregivers themselves so they know the frustrations we go through. So, I know how you are feeling. I believe the situation here may get worse, as he decided he does not want to continue his chemo treatments. Of course, I supported him in his decision because he has just suffered so much from the side affects. But I don't know what to expect from here on in. Like you, I try to take it just one day at a time. And yes, help us Jesus. God bless you. I am going to attend an online zoom meeting for caregivers that I found on here. They have them every thursday. Just to see what goes on. But I did not sign up for tomorrow, I am waiting til the 16th. You may want to look into that.
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3 Reactions