Help - I am burned out and dealing with someone who is stubborn

Posted by kartwk @kartwk, Oct 8, 2024

My husband has a history of COPD and asthma. He has used every inhaler that is available and same with the drugs, which is claims to have problems with all of them

For the last two months it has been awful. We seem to be at the ER and doctor every few days. Last time at doc was Friday. He was given an antibiotic. This morning, I ask him how his lungs are doing and he tells me fine. I figured this because for the last two months or so all he does is go around honking, deliberately, up stuff and looking at what color it is. Trust me, I have the kleenex all over that I keep picking up. He is OBSESSED with the color - is it green, is it gray, is it clear. This even though the doc on Friday told him that color doesn't matter.

Now he is back on the phone for another doc. apt. His lungs, which were fine just an hour ago are now "all clogged up" and he is honking (generally becauses he keeps trying to) and he feels awful.

I must say, this shocked me as he just told me he was getting better.

Anyway, I can not clean around the house and he is b*tching that because of the house his lungs are bad. BULL. I do not use any strong chemicals. I generally use vinegar and water to clean floors, I dust weekly. NOW, though even vinegar bothers his lungs, so he claims.

The final straw for me came this weekend after it had rained several days. He walked outside and, oh his lungs were bothered. Why you ask, Because of the smell the air gets after it rains! This is not about pollen, etc, but just the earthy smell that comes after a good rain. At this point I am having my doubts.

I cannot tell you how many differnt doctors we have been to. Two weeks ago he told me to be ready to take him to the hospital, that didn't happen. Now he is sitting there telling me he is gonna die!

I just don't know what to do.

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Profile picture for WhiteRoses @jacquelinec

Don't be sorry. I have one of those at home, too and it IS very frustrating.!

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Yes, it is so frustrating when he won't even try something that has been proven to help so many other people. What is so bad about a cup of ginger or peppermint tea with honey? It would help and he may even like it if he would just try it. I am at this minute making some homemade chicken noodle soup. I will see what he says about it when he trys it. Oh wll, if he would rather eat soup out of the can, that is on him. HOmemade is so much better for anyone. Good luck with yours.

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Profile picture for denise96 @denise96

Yes, it is hard being a caregiver. I feel useless when it seems as if nothing I do is helping him. I am hoping that he does not end up in the hospital. Today, he got down a little bit of chicken noodle soup and so far it is staying down. He needs to put on some weight and get some nutrition in him. Just responding to the post is helpful enough. I know we are all going through hard times as being caregivers and every once in awhile, we need to let it out. 🙂

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I totally agree!

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Profile picture for denise96 @denise96

Yes, it is so frustrating when he won't even try something that has been proven to help so many other people. What is so bad about a cup of ginger or peppermint tea with honey? It would help and he may even like it if he would just try it. I am at this minute making some homemade chicken noodle soup. I will see what he says about it when he trys it. Oh wll, if he would rather eat soup out of the can, that is on him. HOmemade is so much better for anyone. Good luck with yours.

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I'm sure your husband knows you are just trying to help and deep down he appreciates it. But I think it's hard for them to accept that things are going to be different and there will come a time when they cannot do for themselves and will have to depend on someone else. I do what I can for my husband but when he gets that way I just remind myself that this whole thing is hard for him too.

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Profile picture for denise96 @denise96

Any one on here who has to deal with a stubborn, hardheaded partner? My husband has late stage iv lung cancer and advanced COPD. He has had two chemoimmunotherapy treatments so far. His symptoms after wards have not been good. He vomits daily and can't eat anything without throwing up afterwards. He has been given compazine which did not seem to work for him. Now he has zprexa and zofran. Just got those ones yesterday. Hopefully he will start to feel better. But what makes me angry is that he won't try anything I suggest. Was going to make him peppermint tea with honey. He told me he does not like tea. There is boost in the frig which he won't drink. We have gingerale. He did try once, but threw up shortly after drinking it. I suggested crackers and he said he did not like crackers because they are dry. I said I can add oyster crackers to you soup. They will get soggy. He said NO. He never drinks water. Only coffee and milk. Bought him gatorade and he said I don't like it. He won't drink milkshakes. Did make him two weeks ago and he said he did not want to drink them anymore. I am at my wit's end. He weighs 92 pounds and is 5'10. It does not matter what I suggest, he doesn't like it or he makes some other excuse. I know that he is dehydrated but he won't even think about drinking water. We all do things that we don't like, but if it is going to help,, most of us will try it. Not him. And sorry to say, but I am TIRED of it. Last Sunday, I ordered ginger and peppermint tea from amazon. Guess I will be drinking it. Guess I will just have to watch him disintergrate into nothing but bones. Sorry for the rant.

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Caregiving a husband is hard. And yes this whole thing is hard on him too. My husband is a veteran and was exposed to agent orange in Vietnam. He
is suffering from it all now and I sympathize for him. But I get so tired of everything being about him. Everything we have to talk about, everything we do, everywhere we go. I'm not a wife, I'm a caregiver! It's hard to be a wife when you are in charge of doing everything by yourself. And I have so much equipment in my house it looks like a nursing home. He's up all night and wakes me up. And I put in 19 hour days mostly. I get grouchy and I'm tired. But I try to endure and be compassionate. I hear people asking him how he's doing but no one asks me the caregiver how I'm doing. Sometimes I want to scream, go nuts, hang myself (don't worry I won't). This is not how I feel all the time but I really wish we could have more joy in our life. I ask the Lord to help me through this phase of my life. I just hope it doesn't kill me. I know I need to take care of myself so that I can take care of him. Que sera sera, it is what it is and I can only take it one day at a time. 🙏Jesus!

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Profile picture for denise96 @denise96

Any one on here who has to deal with a stubborn, hardheaded partner? My husband has late stage iv lung cancer and advanced COPD. He has had two chemoimmunotherapy treatments so far. His symptoms after wards have not been good. He vomits daily and can't eat anything without throwing up afterwards. He has been given compazine which did not seem to work for him. Now he has zprexa and zofran. Just got those ones yesterday. Hopefully he will start to feel better. But what makes me angry is that he won't try anything I suggest. Was going to make him peppermint tea with honey. He told me he does not like tea. There is boost in the frig which he won't drink. We have gingerale. He did try once, but threw up shortly after drinking it. I suggested crackers and he said he did not like crackers because they are dry. I said I can add oyster crackers to you soup. They will get soggy. He said NO. He never drinks water. Only coffee and milk. Bought him gatorade and he said I don't like it. He won't drink milkshakes. Did make him two weeks ago and he said he did not want to drink them anymore. I am at my wit's end. He weighs 92 pounds and is 5'10. It does not matter what I suggest, he doesn't like it or he makes some other excuse. I know that he is dehydrated but he won't even think about drinking water. We all do things that we don't like, but if it is going to help,, most of us will try it. Not him. And sorry to say, but I am TIRED of it. Last Sunday, I ordered ginger and peppermint tea from amazon. Guess I will be drinking it. Guess I will just have to watch him disintergrate into nothing but bones. Sorry for the rant.

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It is reassuring to hear others feel the level of frustration that I do and that this is a normal feeling as a caregiver. My husband does not have cancer, but has a myriad of health issues (diabetes, heart condition, neuropathy, mild cognitive issues). He is battling depression, which is being treated by our primary physician, but he refuses to go to therapy. He is very rude at times and his level of frustration is hard to deal with at times. I try to remember that he has lost his driving privileges and no longer can perform some of the basic everyday tasks.

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Profile picture for denise96 @denise96

Any one on here who has to deal with a stubborn, hardheaded partner? My husband has late stage iv lung cancer and advanced COPD. He has had two chemoimmunotherapy treatments so far. His symptoms after wards have not been good. He vomits daily and can't eat anything without throwing up afterwards. He has been given compazine which did not seem to work for him. Now he has zprexa and zofran. Just got those ones yesterday. Hopefully he will start to feel better. But what makes me angry is that he won't try anything I suggest. Was going to make him peppermint tea with honey. He told me he does not like tea. There is boost in the frig which he won't drink. We have gingerale. He did try once, but threw up shortly after drinking it. I suggested crackers and he said he did not like crackers because they are dry. I said I can add oyster crackers to you soup. They will get soggy. He said NO. He never drinks water. Only coffee and milk. Bought him gatorade and he said I don't like it. He won't drink milkshakes. Did make him two weeks ago and he said he did not want to drink them anymore. I am at my wit's end. He weighs 92 pounds and is 5'10. It does not matter what I suggest, he doesn't like it or he makes some other excuse. I know that he is dehydrated but he won't even think about drinking water. We all do things that we don't like, but if it is going to help,, most of us will try it. Not him. And sorry to say, but I am TIRED of it. Last Sunday, I ordered ginger and peppermint tea from amazon. Guess I will be drinking it. Guess I will just have to watch him disintergrate into nothing but bones. Sorry for the rant.

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My husband has stage 4 colon spread to lungs. He had all the chemo and now on pills. Most times i can handle it but this morning i yelled at him because he was barking orders. It has been 2 years snd i’m exhausted. I feel so guilty for yelling.

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Profile picture for nrdl2879 @nrdl2879

My husband has stage 4 colon spread to lungs. He had all the chemo and now on pills. Most times i can handle it but this morning i yelled at him because he was barking orders. It has been 2 years snd i’m exhausted. I feel so guilty for yelling.

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I so understand how you feel. My husband has decided to stop his chemo treatments this morning. He has been suffering so much from the chemo symptoms that he just said I can't do this anymore. Of course, I support him in his decision. Maybe after the chemo finally leaves his body, he will have some quality of life back. I just don't know what to expect. I have not gone through this very long as it all started just last september. He is usually pretty good, but I hate to leave the house because he is always calling me for something. He is so weak that it is hard for him to just leave his recliner in the living room to walk to the kitchen or bathroom. Do you get time to yourself? I know that caregivers definitley need time to get away even if just for a few hours. But don't feel bad about yelling at him. He is not going though this alone. You are going through it with him. It is OK to yell now and then. We have to vent too, although we feel so guilty afterwards. But it is OK. Hang in there.

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Profile picture for bmrus @bmrus

It is reassuring to hear others feel the level of frustration that I do and that this is a normal feeling as a caregiver. My husband does not have cancer, but has a myriad of health issues (diabetes, heart condition, neuropathy, mild cognitive issues). He is battling depression, which is being treated by our primary physician, but he refuses to go to therapy. He is very rude at times and his level of frustration is hard to deal with at times. I try to remember that he has lost his driving privileges and no longer can perform some of the basic everyday tasks.

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Yes, it is very frustrating when we are doing our best for them, and they seem to not appreciate it by their actions. My husband is really not that demanding yet, but he is getting there. He is so weak anymore that he can't even get himself a cup of coffee. I don't mind, but I do mind when he won't try anything different that may help him. He keeps throwing up but bulks at trying ginger tea or peppermint tea. We have boost which he won't drink. I got him gatorade a month or so, and he said he did not like it. Now the visiting nurse came today and said his blood pressure is low. (I wasn't home when she came) I was on an errand for him. She told him that he needs to drink things like gatorade and now he wants some. Well i threw away the ones I had bought because I don't like it either and it was just taking up room in the frig. No matter what the health problems are for our husbands, it still means we have to take care of them. I am sorry to hear that he is rude. Being sick does not give the person the right to be rude to us as we are doing our best to make things easier for them. I know my husband is very frustrated and I imagine your husband is also. But knowing that, does not help us from becoming tired and frustrated at it all. We are only human. Your feelings are normal, so don't feel guilty. We all lose our patience but the does not mean we don't love that person anymore. Don't feel bad or guity, but it is good to vent. God bless you.

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Profile picture for denise96 @denise96

I so understand how you feel. My husband has decided to stop his chemo treatments this morning. He has been suffering so much from the chemo symptoms that he just said I can't do this anymore. Of course, I support him in his decision. Maybe after the chemo finally leaves his body, he will have some quality of life back. I just don't know what to expect. I have not gone through this very long as it all started just last september. He is usually pretty good, but I hate to leave the house because he is always calling me for something. He is so weak that it is hard for him to just leave his recliner in the living room to walk to the kitchen or bathroom. Do you get time to yourself? I know that caregivers definitley need time to get away even if just for a few hours. But don't feel bad about yelling at him. He is not going though this alone. You are going through it with him. It is OK to yell now and then. We have to vent too, although we feel so guilty afterwards. But it is OK. Hang in there.

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I do go to the grocery store and walk around. Otherwise just stay with him and help him get around the house

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Profile picture for quesera7 @quesera7

Caregiving a husband is hard. And yes this whole thing is hard on him too. My husband is a veteran and was exposed to agent orange in Vietnam. He
is suffering from it all now and I sympathize for him. But I get so tired of everything being about him. Everything we have to talk about, everything we do, everywhere we go. I'm not a wife, I'm a caregiver! It's hard to be a wife when you are in charge of doing everything by yourself. And I have so much equipment in my house it looks like a nursing home. He's up all night and wakes me up. And I put in 19 hour days mostly. I get grouchy and I'm tired. But I try to endure and be compassionate. I hear people asking him how he's doing but no one asks me the caregiver how I'm doing. Sometimes I want to scream, go nuts, hang myself (don't worry I won't). This is not how I feel all the time but I really wish we could have more joy in our life. I ask the Lord to help me through this phase of my life. I just hope it doesn't kill me. I know I need to take care of myself so that I can take care of him. Que sera sera, it is what it is and I can only take it one day at a time. 🙏Jesus!

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I am so sorry that you are having such a hard timem but I can understand what you are going through. Although my husband does not go anywhere I go, it is because he can't. But then again, he never did go anywhere with me. But if you want to scream, go into your bedroom and scream into your pillow. And if you do hang yourself, (I know you won't) just use a thin thread. Better yet, hang him. lol

Guess I have been fortunate in that many of my friends and family do ask how I am doing. But then again many of these people were caregivers themselves so they know the frustrations we go through. So, I know how you are feeling. I believe the situation here may get worse, as he decided he does not want to continue his chemo treatments. Of course, I supported him in his decision because he has just suffered so much from the side affects. But I don't know what to expect from here on in. Like you, I try to take it just one day at a time. And yes, help us Jesus. God bless you. I am going to attend an online zoom meeting for caregivers that I found on here. They have them every thursday. Just to see what goes on. But I did not sign up for tomorrow, I am waiting til the 16th. You may want to look into that.

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