Help - I am burned out and dealing with someone who is stubborn

Posted by kartwk @kartwk, Oct 8, 2024

My husband has a history of COPD and asthma. He has used every inhaler that is available and same with the drugs, which is claims to have problems with all of them

For the last two months it has been awful. We seem to be at the ER and doctor every few days. Last time at doc was Friday. He was given an antibiotic. This morning, I ask him how his lungs are doing and he tells me fine. I figured this because for the last two months or so all he does is go around honking, deliberately, up stuff and looking at what color it is. Trust me, I have the kleenex all over that I keep picking up. He is OBSESSED with the color - is it green, is it gray, is it clear. This even though the doc on Friday told him that color doesn't matter.

Now he is back on the phone for another doc. apt. His lungs, which were fine just an hour ago are now "all clogged up" and he is honking (generally becauses he keeps trying to) and he feels awful.

I must say, this shocked me as he just told me he was getting better.

Anyway, I can not clean around the house and he is b*tching that because of the house his lungs are bad. BULL. I do not use any strong chemicals. I generally use vinegar and water to clean floors, I dust weekly. NOW, though even vinegar bothers his lungs, so he claims.

The final straw for me came this weekend after it had rained several days. He walked outside and, oh his lungs were bothered. Why you ask, Because of the smell the air gets after it rains! This is not about pollen, etc, but just the earthy smell that comes after a good rain. At this point I am having my doubts.

I cannot tell you how many differnt doctors we have been to. Two weeks ago he told me to be ready to take him to the hospital, that didn't happen. Now he is sitting there telling me he is gonna die!

I just don't know what to do.

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Profile picture for keepmoving2 @keepmoving2

@kartwk I like your spunk! I have read back over your posts about different topics over the last few years & certainly you have had a lot to deal with. But you just seem to “put your big girl panties on” as they say. You keep moving forward.
Straight talk - your journey will not get easier. Especially physically. So let’s work smarter. Just reaching out to this blog site for help & venting is a huge step. 1st - have a discussion with your husband about your wills, both of your health situations, and what you both want. And remind him you love him. Pick a good time. Do not be discouraged if he can’t or won’t talk about any or all. This will give you an idea of his cognitive situation as often illnesses and lower oxygen and age can affect some. Then you need to make notes about your thoughts. From this combined “wants/needs” - you have a plan. Then you take the baby steps to implement it. For example - make your wills known to family members to get them off your backs. Too many people are not upfront & it makes it difficult for loved ones. If you and/or your husband value your physical independence, then get some help. Hire a kid or better yet a handyman or a service to help with yard work, cleaning the house or even shaking rugs. These little help tools make it easier for you both to stay healthy and prevent injuries - which reduce independence. Lastly - there is joy, bright moments, little things that can yield a smile that need to be found or made. Old friends, church members, Seniors Helping Seniors, local agencies, book clubs, a weekly center, volunteer, animal shelter, library, knitting, baking - the world is full of so much. There are 3 of you in this relationship that need to be taken care of - you, your husband and you as a couple. Make a list of the baby steps to be taken - not the giant leaps - and start crossing them off. Some will not be easy. A person once likened it to running a marathon - just do each mile and they will add up. I have done several - both literally & figuratively - never easy nor pretty. But here I am! Good luck & keep moving.

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Thanks so much for the support and advice. This board is fantastic as just coming here and venting for a moment helps my state of mind.

Seems every day has a new challenge. Today he wants to start from scratch. Redo tests, chest x-rays (just had one in mid-Aug.) etc. He's off and running and still the same. I told him, when we last talked about this matter, that they may not be able to do much more for him and he needs to have them figure out how to just best go forward as things are. That WE are both getting old and that neither one of us wants to hear or face it, that is just how life goes.

One thing we are fortunate in is that we have a wonderful Christian neighbor who does a lot for us without even asking. This morning, he was out checking our gutters and blew off the deck! He refuses money but I give him a check made out to his Church as I told him he was the Lord's blessing.

Far different from the step-daughter that will only do things if there is something in it for her. Interesting that we haven't seen hide nor hair of her since June and she only lives 8 miles away.

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Profile picture for billiekip @billiekip

Your words" sometimes as a caretaker we don't get enough praise" hit a note with me this morning. I have a friend on the opposite coast who is caring for his wife with ALZ , so we are sharing our journey with our spouses. He sent me this email:
"Thank you. I bet you haven't heard that for a while."
Just a few words of encouragement sent out or received can change the trajectory of the day. I call my emails to friends in difficult situations my "atta boy/girl" notes.

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You are so right. It is tough to see your loved one suffering etc. Sometimes, when H really starts honking and checking his mucus (which is pretty much ALL the tie, grr), I just get up and go in the other room and cry.

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Profile picture for celia16 @celia16

I’d be concerned with him using equipment like that. Is it a riding mower? Difficult behavior, poor judgment, obsessions, etc. can be indicative of cognitive problems. Have you talked to your doctor about how you are doing? Take care of yourself. If it’s cognitive decline, it usually gets worse, not better. Seroquel helps my dad a little.

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As I said in an earlier post, I have a great neighbor. Earlier he was out cleaning our gutters. Now he is cutting the grass. Thank God!! That will keep H. from going out. H was going to go out and do that today, now he doesn't have to.

Our neighbor won't take money, so what I do is periodically give him a substantial check made out to his church. He is okay with that and that shows he does what he does for the right reason.

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Profile picture for kartwk @kartwk

FWIW, about 6 months ago we were in the doc for the same stuff. His lungs. He asked the doc for another inhaler. Doc told him he had them all and there were no new ones, and that he claimed to have problems with and from all of them. He was upset and disappointed.

Yes, he has COPD and lung problems but I believe he is just always looking for something to be wrong with his lungs. He is always force upchucking something out of his lungs into kleenex so he can "evaluate" it. Almost constantly!

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Find him a hobby, cards, puzzles something to get him off his lung problems. My wife and I play aceie/ducie may not be spelled right. We play everyday one or more games. She loves to beat and it takes her alittle out of her bitching mood some. I said some..... My wife wants me there by her side most of the time so I fill our together time for with games or puzzles to try to change her attitude if it's bad. If she is doing good it just keeps her looking to foward to playing more games. My wife suffers from the result of a bullet to her brain. Left her left side paralyzed and in a wheelchair. Her mind is 98% there and stubborn too. Always has a problem but refuse to see a doctor. She just wants to complaints me.... Push my buttons, right. Try not to let them see they got you. I just tell her I'll be back when she settles down. Good Luck, I been a caregiver since December 25, 2018

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Any one on here who has to deal with a stubborn, hardheaded partner? My husband has late stage iv lung cancer and advanced COPD. He has had two chemoimmunotherapy treatments so far. His symptoms after wards have not been good. He vomits daily and can't eat anything without throwing up afterwards. He has been given compazine which did not seem to work for him. Now he has zprexa and zofran. Just got those ones yesterday. Hopefully he will start to feel better. But what makes me angry is that he won't try anything I suggest. Was going to make him peppermint tea with honey. He told me he does not like tea. There is boost in the frig which he won't drink. We have gingerale. He did try once, but threw up shortly after drinking it. I suggested crackers and he said he did not like crackers because they are dry. I said I can add oyster crackers to you soup. They will get soggy. He said NO. He never drinks water. Only coffee and milk. Bought him gatorade and he said I don't like it. He won't drink milkshakes. Did make him two weeks ago and he said he did not want to drink them anymore. I am at my wit's end. He weighs 92 pounds and is 5'10. It does not matter what I suggest, he doesn't like it or he makes some other excuse. I know that he is dehydrated but he won't even think about drinking water. We all do things that we don't like, but if it is going to help,, most of us will try it. Not him. And sorry to say, but I am TIRED of it. Last Sunday, I ordered ginger and peppermint tea from amazon. Guess I will be drinking it. Guess I will just have to watch him disintergrate into nothing but bones. Sorry for the rant.

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Profile picture for denise96 @denise96

Any one on here who has to deal with a stubborn, hardheaded partner? My husband has late stage iv lung cancer and advanced COPD. He has had two chemoimmunotherapy treatments so far. His symptoms after wards have not been good. He vomits daily and can't eat anything without throwing up afterwards. He has been given compazine which did not seem to work for him. Now he has zprexa and zofran. Just got those ones yesterday. Hopefully he will start to feel better. But what makes me angry is that he won't try anything I suggest. Was going to make him peppermint tea with honey. He told me he does not like tea. There is boost in the frig which he won't drink. We have gingerale. He did try once, but threw up shortly after drinking it. I suggested crackers and he said he did not like crackers because they are dry. I said I can add oyster crackers to you soup. They will get soggy. He said NO. He never drinks water. Only coffee and milk. Bought him gatorade and he said I don't like it. He won't drink milkshakes. Did make him two weeks ago and he said he did not want to drink them anymore. I am at my wit's end. He weighs 92 pounds and is 5'10. It does not matter what I suggest, he doesn't like it or he makes some other excuse. I know that he is dehydrated but he won't even think about drinking water. We all do things that we don't like, but if it is going to help,, most of us will try it. Not him. And sorry to say, but I am TIRED of it. Last Sunday, I ordered ginger and peppermint tea from amazon. Guess I will be drinking it. Guess I will just have to watch him disintergrate into nothing but bones. Sorry for the rant.

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Don't be sorry. I have one of those at home, too and it IS very frustrating.!

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Profile picture for denise96 @denise96

Any one on here who has to deal with a stubborn, hardheaded partner? My husband has late stage iv lung cancer and advanced COPD. He has had two chemoimmunotherapy treatments so far. His symptoms after wards have not been good. He vomits daily and can't eat anything without throwing up afterwards. He has been given compazine which did not seem to work for him. Now he has zprexa and zofran. Just got those ones yesterday. Hopefully he will start to feel better. But what makes me angry is that he won't try anything I suggest. Was going to make him peppermint tea with honey. He told me he does not like tea. There is boost in the frig which he won't drink. We have gingerale. He did try once, but threw up shortly after drinking it. I suggested crackers and he said he did not like crackers because they are dry. I said I can add oyster crackers to you soup. They will get soggy. He said NO. He never drinks water. Only coffee and milk. Bought him gatorade and he said I don't like it. He won't drink milkshakes. Did make him two weeks ago and he said he did not want to drink them anymore. I am at my wit's end. He weighs 92 pounds and is 5'10. It does not matter what I suggest, he doesn't like it or he makes some other excuse. I know that he is dehydrated but he won't even think about drinking water. We all do things that we don't like, but if it is going to help,, most of us will try it. Not him. And sorry to say, but I am TIRED of it. Last Sunday, I ordered ginger and peppermint tea from amazon. Guess I will be drinking it. Guess I will just have to watch him disintergrate into nothing but bones. Sorry for the rant.

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Please don't be sorry! It is the hardest job you ever will have as a caregiver!! Have they thought about a gastric tube for his feedings. He definitely sounds dehydrated. I wish that I could say something to make you feel better. Hugs!

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Profile picture for WhiteRoses @jacquelinec

Don't be sorry. I have one of those at home, too and it IS very frustrating.!

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I do too!Finds fault with everything that you do! Actually a few minutes ago he came in the bedroom and said he "loved me". Believe when I say , he only says this maybe once or twice a month. But I know he does. But sometimes the behaviors say the opposite!

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Profile picture for sillyblone @sillyblone

I do too!Finds fault with everything that you do! Actually a few minutes ago he came in the bedroom and said he "loved me". Believe when I say , he only says this maybe once or twice a month. But I know he does. But sometimes the behaviors say the opposite!

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I understand. One minute my husband is telling me how much he appreciates me, then the next minute he is barking at me about something. I try not to take offense as I know it is the cancer etc that is at fault for the different moods. I would probably be worse then him if I was the one sick. It is just him not trying to try new foods or tea that has been know to help with nausea.

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Profile picture for sillyblone @sillyblone

Please don't be sorry! It is the hardest job you ever will have as a caregiver!! Have they thought about a gastric tube for his feedings. He definitely sounds dehydrated. I wish that I could say something to make you feel better. Hugs!

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Yes, it is hard being a caregiver. I feel useless when it seems as if nothing I do is helping him. I am hoping that he does not end up in the hospital. Today, he got down a little bit of chicken noodle soup and so far it is staying down. He needs to put on some weight and get some nutrition in him. Just responding to the post is helpful enough. I know we are all going through hard times as being caregivers and every once in awhile, we need to let it out. 🙂

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