Help - I am burned out and dealing with someone who is stubborn
My husband has a history of COPD and asthma. He has used every inhaler that is available and same with the drugs, which is claims to have problems with all of them
For the last two months it has been awful. We seem to be at the ER and doctor every few days. Last time at doc was Friday. He was given an antibiotic. This morning, I ask him how his lungs are doing and he tells me fine. I figured this because for the last two months or so all he does is go around honking, deliberately, up stuff and looking at what color it is. Trust me, I have the kleenex all over that I keep picking up. He is OBSESSED with the color - is it green, is it gray, is it clear. This even though the doc on Friday told him that color doesn't matter.
Now he is back on the phone for another doc. apt. His lungs, which were fine just an hour ago are now "all clogged up" and he is honking (generally becauses he keeps trying to) and he feels awful.
I must say, this shocked me as he just told me he was getting better.
Anyway, I can not clean around the house and he is b*tching that because of the house his lungs are bad. BULL. I do not use any strong chemicals. I generally use vinegar and water to clean floors, I dust weekly. NOW, though even vinegar bothers his lungs, so he claims.
The final straw for me came this weekend after it had rained several days. He walked outside and, oh his lungs were bothered. Why you ask, Because of the smell the air gets after it rains! This is not about pollen, etc, but just the earthy smell that comes after a good rain. At this point I am having my doubts.
I cannot tell you how many differnt doctors we have been to. Two weeks ago he told me to be ready to take him to the hospital, that didn't happen. Now he is sitting there telling me he is gonna die!
I just don't know what to do.
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You are so right. I know that he loves me and appreciates the help I give him. He has decided today to stop chemo treatment. All he has done after every treatment is throw up every day for the 3 weeks in between. Hopefully, that will get better as the chemo leaves his body. He got weighed on Jan.2 and he only weighed 94 pounds. I know he has lost more weight because he can't keep anything down. But he does not vomit up the food, it seems to be just phelgm. He is on 2 different kinds of nausea pills but they don't seem to help. This has and will be one heck of a hard road.
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2 ReactionsGood. At least you get out and about every so often. But, like you, I feel like I should be here. I even quit my part time job so I can be here if he needs me. And in his weakend condition, he is needing me more and more.
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2 ReactionsMy husbands chemo started in august 2022. The chemo pills(lonsurf) are stopping the small tumors from growing but one large tumor keeps growing. He needs a biopsy to see if it is a different cancer. Take care of yourself It can be a Long ride
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2 ReactionsThanks. Yes, I believe we are in for a long ride. Who knows what the outcome might be? God knows for sure. But before the chemo treatments started, the doc said that with treatment he may have 2 years. Without, he might be looking at 6 months. I know that they aren't God and can't really know but they do know based on other factor etc,. So I will pray that I an prepared for whatever happens.
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2 Reactions@denise96 and the group -- Just wanted to chime in and say "stubborn" patients come in both genders... got one over here.
It's a MAJOR challenge to get her to increase fluids... partake in physical exercise... do recommended brain "exercises," or follow through on other medical suggestions (related to diet, lifestyle, etc).
FRUSTRATING.
/LarryG
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5 ReactionsI hear you. I really hear you. It is so hard and frustrating when they don't seem to want to help themselves. Of course, I might be the same if I was in that position. It is hard to say. I would hope not, but when your life takes a turn like that, maybe you just figure it is not worth it.
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2 ReactionsI am my brothers caretaker. dealing with an angry & depressed brother who is about to have BMT. He cusses a lot, blames everyone from government to family for life issues. He complained a lot before he got sick and now 10 times worse.
My heart goes out to anyone who is in similar circumstances. Hugs❤️
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4 ReactionsWhat does bmt mean? It must be very frustrating for you to deal with this. today, I am beginning to feel like a servant. all i heard was "get me this, get me that. dont forget an ice cube in my milk. the soup is not warm enough there is too much broth." and on and on. well tomorrow I am going shopping with my mom and I can't wait. I asked him if he would be OK and he said yes. I did msg my son and asked him to check in on him either in person or by phone. In the 27 years since my husband moved from pittsburgh to where I live, he has not made any friends. He is not a social person and never tried to be a friend to anyone. NOw when he could use someone to sit with him for awhile, there is no one he can call. Sad but true. Hang in there. Have you tried duck tape? lol
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2 ReactionsHi @jsea and welcome to Connect. I’m so sorry you’re feeling the brunt of your brother’s anger and depression with his cancer journey.
You mention that he is scheduled to have a bone marrow transplant. We have a growing number of members, along with myself who have had bone marrow transplants (SCT or BMT). One of the many special things about Connect is the ability to talk with members who have first hand experience with many illness, cancers, surgeries, and treatments such a as a bone marrow transplant. It can be so helpful and comforting to speak with someone who has walked the walk.
What can I help you or your brother with as he prepares for his transplant? I can provide you with links for information for Caregivers and patients.
What type of cancer does he have which is requires the transplant?
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3 ReactionsHaha! like your duck tape idea..just kidding. BMT is bone marrow transplant .
He has a 50/50 chance of surviving it & up to a year to feeling back to a “normal “ life. Sometimes it helps to change the subject if he starts talking critically of others, etc. or sometimes I just have to leave the room. Btw how was your shopping trip w your mom?