Help - I am burned out and dealing with someone who is stubborn

Posted by kartwk @kartwk, Oct 8, 2024

My husband has a history of COPD and asthma. He has used every inhaler that is available and same with the drugs, which is claims to have problems with all of them

For the last two months it has been awful. We seem to be at the ER and doctor every few days. Last time at doc was Friday. He was given an antibiotic. This morning, I ask him how his lungs are doing and he tells me fine. I figured this because for the last two months or so all he does is go around honking, deliberately, up stuff and looking at what color it is. Trust me, I have the kleenex all over that I keep picking up. He is OBSESSED with the color - is it green, is it gray, is it clear. This even though the doc on Friday told him that color doesn't matter.

Now he is back on the phone for another doc. apt. His lungs, which were fine just an hour ago are now "all clogged up" and he is honking (generally becauses he keeps trying to) and he feels awful.

I must say, this shocked me as he just told me he was getting better.

Anyway, I can not clean around the house and he is b*tching that because of the house his lungs are bad. BULL. I do not use any strong chemicals. I generally use vinegar and water to clean floors, I dust weekly. NOW, though even vinegar bothers his lungs, so he claims.

The final straw for me came this weekend after it had rained several days. He walked outside and, oh his lungs were bothered. Why you ask, Because of the smell the air gets after it rains! This is not about pollen, etc, but just the earthy smell that comes after a good rain. At this point I am having my doubts.

I cannot tell you how many differnt doctors we have been to. Two weeks ago he told me to be ready to take him to the hospital, that didn't happen. Now he is sitting there telling me he is gonna die!

I just don't know what to do.

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Profile picture for WhiteRoses @jacquelinec

I'm sure your husband knows you are just trying to help and deep down he appreciates it. But I think it's hard for them to accept that things are going to be different and there will come a time when they cannot do for themselves and will have to depend on someone else. I do what I can for my husband but when he gets that way I just remind myself that this whole thing is hard for him too.

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You are so right. I know that he loves me and appreciates the help I give him. He has decided today to stop chemo treatment. All he has done after every treatment is throw up every day for the 3 weeks in between. Hopefully, that will get better as the chemo leaves his body. He got weighed on Jan.2 and he only weighed 94 pounds. I know he has lost more weight because he can't keep anything down. But he does not vomit up the food, it seems to be just phelgm. He is on 2 different kinds of nausea pills but they don't seem to help. This has and will be one heck of a hard road.

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Profile picture for nrdl2879 @nrdl2879

I do go to the grocery store and walk around. Otherwise just stay with him and help him get around the house

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Good. At least you get out and about every so often. But, like you, I feel like I should be here. I even quit my part time job so I can be here if he needs me. And in his weakend condition, he is needing me more and more.

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Profile picture for denise96 @denise96

Any one on here who has to deal with a stubborn, hardheaded partner? My husband has late stage iv lung cancer and advanced COPD. He has had two chemoimmunotherapy treatments so far. His symptoms after wards have not been good. He vomits daily and can't eat anything without throwing up afterwards. He has been given compazine which did not seem to work for him. Now he has zprexa and zofran. Just got those ones yesterday. Hopefully he will start to feel better. But what makes me angry is that he won't try anything I suggest. Was going to make him peppermint tea with honey. He told me he does not like tea. There is boost in the frig which he won't drink. We have gingerale. He did try once, but threw up shortly after drinking it. I suggested crackers and he said he did not like crackers because they are dry. I said I can add oyster crackers to you soup. They will get soggy. He said NO. He never drinks water. Only coffee and milk. Bought him gatorade and he said I don't like it. He won't drink milkshakes. Did make him two weeks ago and he said he did not want to drink them anymore. I am at my wit's end. He weighs 92 pounds and is 5'10. It does not matter what I suggest, he doesn't like it or he makes some other excuse. I know that he is dehydrated but he won't even think about drinking water. We all do things that we don't like, but if it is going to help,, most of us will try it. Not him. And sorry to say, but I am TIRED of it. Last Sunday, I ordered ginger and peppermint tea from amazon. Guess I will be drinking it. Guess I will just have to watch him disintergrate into nothing but bones. Sorry for the rant.

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My husbands chemo started in august 2022. The chemo pills(lonsurf) are stopping the small tumors from growing but one large tumor keeps growing. He needs a biopsy to see if it is a different cancer. Take care of yourself It can be a Long ride

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Profile picture for nrdl2879 @nrdl2879

My husbands chemo started in august 2022. The chemo pills(lonsurf) are stopping the small tumors from growing but one large tumor keeps growing. He needs a biopsy to see if it is a different cancer. Take care of yourself It can be a Long ride

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Thanks. Yes, I believe we are in for a long ride. Who knows what the outcome might be? God knows for sure. But before the chemo treatments started, the doc said that with treatment he may have 2 years. Without, he might be looking at 6 months. I know that they aren't God and can't really know but they do know based on other factor etc,. So I will pray that I an prepared for whatever happens.

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Profile picture for denise96 @denise96

Any one on here who has to deal with a stubborn, hardheaded partner? My husband has late stage iv lung cancer and advanced COPD. He has had two chemoimmunotherapy treatments so far. His symptoms after wards have not been good. He vomits daily and can't eat anything without throwing up afterwards. He has been given compazine which did not seem to work for him. Now he has zprexa and zofran. Just got those ones yesterday. Hopefully he will start to feel better. But what makes me angry is that he won't try anything I suggest. Was going to make him peppermint tea with honey. He told me he does not like tea. There is boost in the frig which he won't drink. We have gingerale. He did try once, but threw up shortly after drinking it. I suggested crackers and he said he did not like crackers because they are dry. I said I can add oyster crackers to you soup. They will get soggy. He said NO. He never drinks water. Only coffee and milk. Bought him gatorade and he said I don't like it. He won't drink milkshakes. Did make him two weeks ago and he said he did not want to drink them anymore. I am at my wit's end. He weighs 92 pounds and is 5'10. It does not matter what I suggest, he doesn't like it or he makes some other excuse. I know that he is dehydrated but he won't even think about drinking water. We all do things that we don't like, but if it is going to help,, most of us will try it. Not him. And sorry to say, but I am TIRED of it. Last Sunday, I ordered ginger and peppermint tea from amazon. Guess I will be drinking it. Guess I will just have to watch him disintergrate into nothing but bones. Sorry for the rant.

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@denise96 and the group -- Just wanted to chime in and say "stubborn" patients come in both genders... got one over here.

It's a MAJOR challenge to get her to increase fluids... partake in physical exercise... do recommended brain "exercises," or follow through on other medical suggestions (related to diet, lifestyle, etc).

FRUSTRATING.

/LarryG

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Profile picture for larryg333 @larryg333

@denise96 and the group -- Just wanted to chime in and say "stubborn" patients come in both genders... got one over here.

It's a MAJOR challenge to get her to increase fluids... partake in physical exercise... do recommended brain "exercises," or follow through on other medical suggestions (related to diet, lifestyle, etc).

FRUSTRATING.

/LarryG

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I hear you. I really hear you. It is so hard and frustrating when they don't seem to want to help themselves. Of course, I might be the same if I was in that position. It is hard to say. I would hope not, but when your life takes a turn like that, maybe you just figure it is not worth it.

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Profile picture for bmrus @bmrus

It is reassuring to hear others feel the level of frustration that I do and that this is a normal feeling as a caregiver. My husband does not have cancer, but has a myriad of health issues (diabetes, heart condition, neuropathy, mild cognitive issues). He is battling depression, which is being treated by our primary physician, but he refuses to go to therapy. He is very rude at times and his level of frustration is hard to deal with at times. I try to remember that he has lost his driving privileges and no longer can perform some of the basic everyday tasks.

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I am my brothers caretaker. dealing with an angry & depressed brother who is about to have BMT. He cusses a lot, blames everyone from government to family for life issues. He complained a lot before he got sick and now 10 times worse.
My heart goes out to anyone who is in similar circumstances. Hugs❤️

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Profile picture for jsea @jsea

I am my brothers caretaker. dealing with an angry & depressed brother who is about to have BMT. He cusses a lot, blames everyone from government to family for life issues. He complained a lot before he got sick and now 10 times worse.
My heart goes out to anyone who is in similar circumstances. Hugs❤️

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What does bmt mean? It must be very frustrating for you to deal with this. today, I am beginning to feel like a servant. all i heard was "get me this, get me that. dont forget an ice cube in my milk. the soup is not warm enough there is too much broth." and on and on. well tomorrow I am going shopping with my mom and I can't wait. I asked him if he would be OK and he said yes. I did msg my son and asked him to check in on him either in person or by phone. In the 27 years since my husband moved from pittsburgh to where I live, he has not made any friends. He is not a social person and never tried to be a friend to anyone. NOw when he could use someone to sit with him for awhile, there is no one he can call. Sad but true. Hang in there. Have you tried duck tape? lol

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Profile picture for jsea @jsea

I am my brothers caretaker. dealing with an angry & depressed brother who is about to have BMT. He cusses a lot, blames everyone from government to family for life issues. He complained a lot before he got sick and now 10 times worse.
My heart goes out to anyone who is in similar circumstances. Hugs❤️

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Hi @jsea and welcome to Connect. I’m so sorry you’re feeling the brunt of your brother’s anger and depression with his cancer journey.
You mention that he is scheduled to have a bone marrow transplant. We have a growing number of members, along with myself who have had bone marrow transplants (SCT or BMT). One of the many special things about Connect is the ability to talk with members who have first hand experience with many illness, cancers, surgeries, and treatments such a as a bone marrow transplant. It can be so helpful and comforting to speak with someone who has walked the walk.

What can I help you or your brother with as he prepares for his transplant? I can provide you with links for information for Caregivers and patients.
What type of cancer does he have which is requires the transplant?

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Profile picture for denise96 @denise96

What does bmt mean? It must be very frustrating for you to deal with this. today, I am beginning to feel like a servant. all i heard was "get me this, get me that. dont forget an ice cube in my milk. the soup is not warm enough there is too much broth." and on and on. well tomorrow I am going shopping with my mom and I can't wait. I asked him if he would be OK and he said yes. I did msg my son and asked him to check in on him either in person or by phone. In the 27 years since my husband moved from pittsburgh to where I live, he has not made any friends. He is not a social person and never tried to be a friend to anyone. NOw when he could use someone to sit with him for awhile, there is no one he can call. Sad but true. Hang in there. Have you tried duck tape? lol

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Haha! like your duck tape idea..just kidding. BMT is bone marrow transplant .
He has a 50/50 chance of surviving it & up to a year to feeling back to a “normal “ life. Sometimes it helps to change the subject if he starts talking critically of others, etc. or sometimes I just have to leave the room. Btw how was your shopping trip w your mom?

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