Grover's Disease: What works to help find relief?

I have had GD as per Biopsy, for approx 2.5 yrs, and now slowly diminishing to where I call "Stage 3", i.e. only severe itching when my Skin Temperature increases due to additional clothing in Winter, (not an unbearable issue in Brisbane, Qld. Aust.). Bed time is my nightmare as blankets and even cotton sheets will cause a flare-up. (Sends me ratty for about an hour or so). Humidity can range from 45 to 85 degrees during the day without any change to GD itch, and I have found that once my skin temp has reached a point of equilibrium after I get up in the morning, very little itching throughout the day. Thanks for small mercies. Wet or dry weather conditions don't seem to make any noticeable difference to my "itch cycle".

Correction to my previous post - Humidity range should read ''%".

I'm not sure about testing you have had, if you already mentioned it remind me. If steroids are making you itch it could be that you are allergic to a class of steroids. There are 5 classes and I am only allergic to one. That is the class that cortisone cream is in, plus many other common steroids. It gets even more complicated if allergic to the class I tested positive to, there can be a cross over to two other classes of steroids so those should be avoided. Yet that does leave me with two other safe for me classes of steroids.
I am wondering if your scalp issue escalated because of an allergy to a steroid? It is rare. Yet we are in this group because we are the exceptions. The 1%. Once again doctors let me down for years on this issue. I had burning on my female privates and the gynecologists' prescribed steroids. It burned badly immediately after application. I told them that and was told I couldn't get better if I didn't keep using it. I could tolerate at most for 30 minutes of misery. A month later got the 5 Day Extended Patch Test and one positive was to the steroid in cortisone. I called the nurse and told me there was no such thing and to keep using the cream. I sent the office my test results and so in the future they would not assume cortisone is always safe. Never heard back and never went back to this large, big city doctors group.
No more issue now because of diet changes. No more processed sugar to fuel my yeast colonies. We all have living yeast in our systems, but starving them from their sugar kills them.
Why are you afraid of a topical anti-biotic? I am allergic to sulfa oral antibiotics, but not aware of any topical anti-biotic issues. My only concern would be the media it is in as I am allergic to preservatives. Get all the active and inactive ingredients and study on the internet for allergic reactions.

Even with my GD remission I still only feel good in loose clothing. It might be the weight of the sheets and blankets trigger your itching going to bet, but our histamine levels are significantly higher in the evening for everyone. Google it. Also for me when I was symptomatic I was distracted with daily activities, but as soon as I lay down in my bed the itching skin was my full focus. I did use Flanax Liniment, a topical capsacian cream, it is hot chilies. It would burn going on and burn for a few minutes more. I used a long plastic cooking spoon to apply to middle of back. My pride kept me from asking my husband because my skin was so ugly all rashed up. Surprisingly the burn of the chilies felt better than the itch. The burn subsides and I could get about 30 minutes with enough itch reduction to fall asleep. Must wash hands after application so not to rub your eyes or they will burn.

Daily I eat a good whole milk pro-biotic plain unsweetened yogurt which has 6 live cultures. I like the Stoneyfield Organic which is sold at most Walmart's. Between my husband and myself I need to buy 3-4 32 oz containers a week. He uses for colitis, but I like keeping my good bacteria healthy in my gut. These cultures help keep the yeast in control and if you ever need oral anti-biotics which kill the bad and good bacteria you need this to rebuild your gut health. I don't believe topical anti-biotics effect your gut health.

I am not sure if allergic I was able to use it short term but after some time it made my scalp burn badly. Which is a side effect if used more than a few weeks.

Glad that people have started posting again. Just for the record, I have been struggling with something, diagnosed as GD after a biopsy, for a little more than a year. It started with itching in my ears and then spread to my back where it was pretty nasty. Presently the itching on my back is minor. The irritations have been localized on three areas of my torso and have remained there for a number of months. Some days the itching disappears, on others it comes back, but mostly on these three areas. Minor and controllable itching will come and go on other parts, mainly my back, of my torso. I control it with cilantro and Lysine as well as generic topicals. A friend of mine was diagnosed with GD and Lysine seems to keep it in remission. Nothing else. After following this site for about the last 10 months, I feel fortunate that my symptoms are much less serious than many others. My sincerest sympathy's to those who suffer more than myself. It appears that my itching is different than most, as it has localized and hasn't spread significantly. I was just interested in any feed back to see if any one else out there is familiar with what I am going through. Thanks.

I find if any topical irritates me it never gets better; the irritation gets worse. I'm not talking about stinging, like with Witch Hazel it will sting it applied to symptomatic skin, but it is not an allergic reaction it is just that the skin is compromised. Witch Hazel doesn't sting healthy skin. Many allergies take time to show up. So you could be allergic to this treatment. Read all ingredients. If not listed contact the manufacturer. You need to have both active and inactive ingredients to research. To test if this in an allergy try rubbing some inside your elbow for 2 weeks and see what happens.

Agree I will try that first

I quickly read your older posts, but most were about GD. I was looking to find what you use on your scalp and hair, I'm not sure what shampoo you are using or any other products you are using on your glorious long hair which you have in your photo. What did stand out to me about your older posts which I missed before was your mention that excessive Lysine can thin the hair. I do naturally shed in cycles and it does regrow but never like when I was younger. About 3 months ago I went from taking 1/2 dose daily of Lysine to a full does. It seems my shedding is more than usual right now. Strangely I always shed in the fall, it seems logical a mammal would shed in the spring. Perhaps I'm like a bird molting its summer plumage for its winter feathers. Also although some say Lysine helps, I only take it as an insurance policy as I have taken 1/2 dose daily for 5 years and it never made a bit of difference when I was symptomatic. Maybe a full dose is needed. Since I am asymptomatic presently with all forms of my eczemas I think I may give it up if it contributes to hair loss.