How to comment, reply, react, bookmark, and more
There are many ways to interact with other members on Mayo Clinic Connect. You can comment, reply, react, bookmark, and more.
Comments, Replies and Reactions
Click the blue button to add a Comment to any discussion.
Reply to a comment within the discussion. This will send an email to the member to let them know you've replied specifically to their comment.
If a post has several replies, click the reply counter (2 replies) to see the reply thread.
Click the Like, Helpful, Hugs to tell the member you like their post, found it helpful or want to send them support. Click the reactions counter (12 reactions) to see who else reacted to the post.
Click the ellipsis (⋯) in the bottom right of a post to see Actions.
- Actions for a discussion include:
- Get the URL for the discussion
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- Actions for a comment or reply include:
- Get the URL for the post
For 30 minutes after posting, you will also see the action Edit this Comment.
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- Replies and @mentions: How do I know who is replying to whom?
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Interested in more newsfeed posts like this? Go to the About Connect: Who, What & Why blog.
@colleenyoung Where can I find emojis please.
If you are on a computer or laptop, you can right click on your mouse. At the top of the options that appear, you'll see the Emoji option.
My previous post was directed toward what has been your experience with Forteo, but because I brought up a concern of refrigeration most responses came back explaining Tymlos as an alternative option. Thank you, but Forteo was the recommendation for me and I am interested in feedback regarding that medication. Good and bad . Changes made in BMD. Side effects. And if you were on it years ago if any medical issues have come up way after the fact related to taking Forteo.
Anyone dealing w autoimmune disease PERM ? Progressive encyphelomyetis w rigidity monoclonous ? My husband retired from FDNY was there on 9/11 .making sure we are doing everything possible as far as treatments .he is on alot of pills on top of receiving ivig every 3 weeks and rituxamab every 6 months .feel helpless knowing he feels like crap everyday
Hi @ellenanne33. I see you’re trying to connect with other members who have PERM. While I didn’t find the exact diagnosis, PERM is a subtype of Stiff-person syndrome. We do have a number of members who have been having conversations regarding their conditions.
@sheeva888, @bsnodgrass, @mdllama and other members have conversations in this link: When you click on this link you’ll see the discussion was started back in 2011. Underneath the opening paragraph, you’ll see a box that says Oldest to Newest. Click on that and you’ll be able to reverse the order to see the most current replies.
There’s not a great deal of information on PERM. It has to be incredibly frustrating and disappointing. I’m so sorry your husband is having to face these health problems. So many of our brave firefighters and other heroes who rushed to help the victims in the 9/11 tragedy are dealing with health issues possibly stemming from all the pollutants they were exposed to during that time.
Try the link I gave you for the Stiff person syndrome. Members there may have some valuable insights for you.
Thats why im trying to figure out if that was the cause .he 1st came down w/ encyphalitis / encephalopathy ans eemed to be getting better and 9 months later declined ..he was heathy working out everyday so i cant see how this isnt something tp do w/ it .God knows what they were breathing in that day and months to follow but the city/ government dont want to hear it or even do a study on him or see all his med records / results
How do I search for group with same type of cancer?
Hi @joyismystrength, Welcome to Mayo Connect!
Finding members with your type of cancer is fairly easy.
There are a couple of ways.
At the top of the Connect page you’ll see a long box that says, “search”. You can put the name of your cancer in there and enter. That should bring up several discussions.
Or, under the search bar, there is a menu which says:
Home. Support groups, Blogs & podcasts, Events…
Click on Support groups! That will take you to a list of all the groups in Connect.
You’ll see Cancers, Breast Cancer, Endometrial Cancer, etc… click on any that are appropriate and it will take you right to the discussions in that group.
Which type of cancer are you experiencing?
Hi and thank you for the reply. It is actually my husband who has been diagnosed with Epithelioid Fibrosarcoma stage 4. He starts chemo soon. I don't know much about cancer so I'm looking for help with what to expect and helpful tips. Thanks!
Thank you for the info…Do you have this same autoimmune disease PERM ???