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Comments (2,394)

Thank you so very much. I had blood tests yesterday and have biopsy soon and a...

https://connect.mayoclinic.org/comment/930396/

I have Sjogrens and Scleroderma and

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Sep 15, 2023

Hello @lolaepp, sorry to hear that your mother is dealing with so many difficult diagnoses at...

https://connect.mayoclinic.org/comment/929374/

an existing discussion titled: - Sjögren ... /connect.mayoclinic.org/discussion/sjorgens-syndrome ... meet the other members talking about Sjögren

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Sep 13, 2023

To Betty81pain: How awful for you! I can't imagine what that was like. I will give...

https://connect.mayoclinic.org/comment/928469/

pain is my PMR kicking up, not the Sjogren

Discussion: Questions on IVIg treatment for what I have: Axonal sensory-motor

Support Group: Neuropathy

Posted: Sep 11, 2023

Just found out that I am going this monday for my first round of 5 also....

https://connect.mayoclinic.org/comment/925802/

Mine is SFN due to Sjogren's with

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Sep 7, 2023

I’m glad you mentioned the cool-mist vaporizer! One of my issues is excess head and chest...

https://connect.mayoclinic.org/comment/925498/

because he’d never had a patient with Sjogren

Discussion: Plaquenil eye problems

Support Group: Autoimmune Diseases

Posted: Sep 6, 2023

It may be worth referral to Rheumatology to test for Sjogren's Disease, formerly Sjogren's "Syndrome," if...

https://connect.mayoclinic.org/comment/924043/

referral to Rheumatology to test for Sjogren ... 's Disease, formerly Sjogren&#39 ... autoimmune disorders often co-occur with Sjogren ... Sjogren's mimics many things, especially ... Sjogren's patients struggle with

Discussion: Anyone else have a crazy list of symptoms and no diagnosis?

Support Group: Autoimmune Diseases

Posted: Sep 4, 2023

Hi I am still searching for a diagnosis. I have dry eyes and often thirsty but...

https://connect.mayoclinic.org/comment/923446/

thirsty but blood work negative for sjogrens ... please tell me which city has the sjogrens

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Sep 3, 2023

Precious Kate, I just wanted to let you know unless there have been a lot of...

https://connect.mayoclinic.org/comment/922145/

autoimmune diseases such lupus, RA, Sjogrens

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Aug 31, 2023

I am hopeful there will be something on Central Nervous Sjogrens. Information on line is little...

https://connect.mayoclinic.org/comment/922076/

will be something on Central Nervous Sjogrens

Discussion: Learn more about Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Aug 31, 2023

I already had the sjogrens along with the ra factor, plus r.a.. I also have leukocytoclastic...

https://connect.mayoclinic.org/comment/912570/

I already had the sjogrens along with

Discussion: Research for rare autoimmune diseases

Support Group: Autoimmune Diseases

Posted: Aug 13, 2023

I have Sjogrens and I can hardly open my mouth in the morning due to dryness....

https://connect.mayoclinic.org/comment/912304/

I have Sjogrens and I can hardly open

Discussion: Does Mayo Hospital Phoenix Offer IvIg Infusions?

Support Group: Autoimmune Diseases

Posted: Aug 13, 2023

I haven't seen the Biotene spray....I'm going to look for that. I can't take pills either....

https://connect.mayoclinic.org/comment/907661/

I wish I'd joined the Sjogren&#39

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 4, 2023

Hi Cindylb, I have had Sjogrens since I was a teenager and now I am 79....

https://connect.mayoclinic.org/comment/906812/

Hi Cindylb, I have had Sjogrens since ... Since I have the Sjogren's dry cough

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 3, 2023

Thank you for your post. Much to think about here. We're on our own a bit...

https://connect.mayoclinic.org/comment/906675/

answers and effective treatments for Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 2, 2023

Thank you! Although, what you detail is what I've read so far and it sounds...well...horrible. Do...

https://connect.mayoclinic.org/comment/906091/

My AIED is due to the autoimmune Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 1, 2023

Oh wait, I have more........sadly........in addition to all the above. I have vaginal dryness and I'm...

https://connect.mayoclinic.org/comment/905816/

a certain post menopausal age get Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 1, 2023

Why don’t doctors try nutritional “intervention” first? And finding out if there is an underlying condition,...

https://connect.mayoclinic.org/comment/904963/

I’m only 68 and have Sjogerns.

Discussion: What kind of plans are possible if you are looking ahead for many year

Support Group: Osteoporosis & Bone Health

Posted: Jul 31, 2023

My wife has autoimmune disease (Sjogrens, Hashimotos and Lupus). Her PCP saw symptoms like dry eyes,...

https://connect.mayoclinic.org/comment/897221/

My wife has autoimmune disease (Sjogrens

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Jul 17, 2023

Hello @jpuitti, Welcome to Connect. I'm sorry to hear your mother is struggling with speaking. I'm...

https://connect.mayoclinic.org/comment/896116/

@bomo mentioned have Sjogren's along ... While we wait for other members with Sjogren ... haven't already seen it. --- Sjogren ... 's Foundation - Living with Sjogren ... 's: https://sjogrens.org/living-with-sjogrens

Discussion: Voice projection problems with Sjogren’s

Support Group: Autoimmune Diseases

Posted: Jul 15, 2023

Have you ever had tests to look for antibodies? I ask because you mentioned that much...

https://connect.mayoclinic.org/comment/894574/

syndrome (clotting disorder), as well as Sjogren ... of your symptoms sound similar to Sjogren

Discussion: Cortisol deficiency, but with weight gain

Support Group: Autoimmune Diseases

Posted: Jul 12, 2023