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414 total results

Comments (370)

My original biopsy was 2017 They said it was not consistent with sarcoidosis. I am now...

https://connect.mayoclinic.org/comment/321404/

They said it was not consistent with sarcoidosis

Discussion: Tested negative for MAC

Support Group: MAC & Bronchiectasis

Posted: Sep 10, 2020

This sounds so familiar. I was finally referred to a pulmonologist and given prednisone, a nasal...

https://connect.mayoclinic.org/comment/746198/

I was diagnosed with sarcoidosis with

Discussion: Chronic Cough: what might be the cause?

Support Group: Ear, Nose & Throat (ENT)

Posted: Sep 6, 2022

@windwalker The dermatologist biopsied a spot on my elbow yesterday. It will be a couple of...

https://connect.mayoclinic.org/comment/261922/

were granuloma annulare, or maybe sarcoidosis

Discussion: Negative sputum results without treatment

Support Group: MAC & Bronchiectasis

Posted: May 14, 2019

Hi @bboxer, I'd like to introduce you to several members who are discussing sarcoidosis (pulmonary and...

https://connect.mayoclinic.org/comment/130784/

several members who are discussing sarcoidosis ... read their discussions here: - Sarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Dec 26, 2016

Hi @kindltmdar1 Thank you for sharing your journey and I am sorry you are feeling such...

https://connect.mayoclinic.org/comment/130854/

I have had sarcoidosis since the birth ... What meds are you on for the sarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Jan 8, 2019

I have an xray every time I'm at Mayo or even at my PCP or pulmonologist...

https://connect.mayoclinic.org/comment/273004/

at my PCP or pulmonologist (I had sarcoidosis

Discussion: Airport X-ray results

Support Group: Transplants

Posted: Aug 20, 2019

My name Is Jody vicaro I recently was told by my doctor I have sarcoidosis of...

https://connect.mayoclinic.org/comment/130811/

recently was told by my doctor I have sarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Jul 23, 2017

I have been diagnosed with sarcoidosis, but I have been having stomach issues for a few...

https://connect.mayoclinic.org/comment/1041342/

I have been diagnosed with sarcoidosis ... and I am 62 (older than the usual sarcoidosis

Discussion: Breathing problem: Silent Reflux a hidden epidemic

Support Group: Lung Health

Posted: Mar 27 8:28pm

Hi @shani, I’d like to add my welcome. You may also be interested in these related...

https://connect.mayoclinic.org/comment/680885/

recently-diagnosed-with-multiple-sclerosis/ - Sarcoidosis ... /connect.mayoclinic.org/discussion/sarcoidosis-treatment

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Feb 14, 2022

Hi @yturner, I moved this discussion to the Lung Health group as I think you will...

https://connect.mayoclinic.org/comment/77330/

frequency of headaches/migraines in sarcoidosis ... fatigue is a common manifestation of sarcoidosis

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: May 2, 2018

I just spent the last two months at Mayo Jacksonville. I have had pulmonary Sarcoidosis for...

https://connect.mayoclinic.org/comment/714489/

I have had pulmonary Sarcoidosis for ... also have Cardio Sarcoid and Stomach Sarcoidosis

Discussion: Sarcoidosis Treatment: Tips for an effective path to better health

Support Group: Autoimmune Diseases

Posted: Jun 5, 2022

@macjane, Hi. My cousin has sarcoidosis. She has it in her lymph glands, lungs and stomach....

https://connect.mayoclinic.org/comment/187704/

My cousin has sarcoidosis.

Discussion: Long-term Antibiotics for Bronchiectasis & MAC

Support Group: MAC & Bronchiectasis

Posted: Mar 2, 2018

My husband is being treated this week end in a hospital setting. Mostly steroids, we knew...

https://connect.mayoclinic.org/comment/75463/

Mostly steroids, we knew he had sarcoidosis

Discussion: Anyone been treated for Neurosarcoidosis? What treatments work?

Posted: Nov 6, 2016

For 25 years, my Inferior Vena Cava and Superior Vena Cava have been sealed off due...

https://connect.mayoclinic.org/comment/1139643/

have been sealed off due to cardiac sarcoidosis ... I have also enrolled in the Mayo Sarcoidosis

Discussion: Anyone Experiencing Rhythm Issues Due to Cardiac Sarcoidosis ?

Support Group: Heart Rhythm Conditions

Posted: Sep 10 7:23pm

Hi Jodi Yes you can , we had our Nero doctor write the letter.and then my...

https://connect.mayoclinic.org/comment/130817/

He has sarcoidosis and nerosarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Jul 24, 2017

Hi! I notice several symptoms that are similar to the neurosarcoidosis that I now live with....

https://connect.mayoclinic.org/comment/289527/

Sarcoidosis is like other autoimmune ... rheumatologist, or any specialist in sarcoidosis

Discussion: Weak, Sick, & Scared

Support Group: Autoimmune Diseases

Posted: Jan 24, 2020

Hi @tine, welcome to Connect. What great news that tests show that the sarcoidosis is in...

https://connect.mayoclinic.org/comment/130829/

great news that tests show that the sarcoidosis ... There's no cure for sarcoidosis, but ... www.mayoclinic.org/diseases-conditions/sarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Sep 19, 2017

Having Mac and Sarcoidosis there is still some confusion about which is causing some of my...

https://connect.mayoclinic.org/comment/77299/

Having Mac and Sarcoidosis there is

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Nov 8, 2016

I have another important question about Pulmonary Sarcoidosis and whether there is any connection between it...

https://connect.mayoclinic.org/comment/801660/

important question about Pulmonary Sarcoidosis