Sarcoidosis and neuropathy

Posted by mznecie @mznecie, Jun 17, 2021

Does anyone here have sarcoidosis and neuropathl
y my neuropathy pain is lunbearable it's almost to the point where I'm ready to cut off my feet

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Hello @mznecie, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Sorry to hear you have not been able to find any relief from your pain. @briansr @chesneydell1965 @lillian32 and @cb2287 have discussed sarcoidosis and neuropathy in other discussions and may be able to share their experiences with you. Here is some information I found that discusses small fiber neuropathy and sarcoidosis.

"Apr 12, 2016 — Small fiber neuropathy (SFN) occurs in roughly 40% of patients with sarcoidosis. Affected patients present with painful neuropathic symptoms and …" — Small fiber neuropathy common, vexing in sarcoidosis: https://www.mdedge.com/rheumatology/article/108001/lupus-connective-tissue-diseases/small-fiber-neuropathy-common-vexing

Are you able to share any treatments that you have tried or that were suggested by your doctor to help with the pain?

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I suggest that you take a look in the peptide ARA-290.

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I was just diagnosed with Sarcoidosis and Emphysema… but it's been affecting my feet Terribly bad.. hard to walk sometimes. My first appt at mayo is May 3

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@lauraharris111

I was just diagnosed with Sarcoidosis and Emphysema… but it's been affecting my feet Terribly bad.. hard to walk sometimes. My first appt at mayo is May 3

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Welcome @lauraharris111, I'm glad to hear you have an upcoming appointment setup at Mayo Clinic. I know it's always helpful for me to write down questions when seeing a doctor for a new diagnosis. Do you have a list of questions to ask at your upcoming appointment?

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