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pattymac
@pattymac

Posts: 78
Joined: Oct 13, 2011

Lung nodules & scared!

Posted by @pattymac, Sun, Mar 19 11:02am

March 1, 2017 at 7:44 pm
I had a Ct in December 2016,showed 3 nodules 6mm,5mm&4mm in right upper lobe! Last week I had a Ct bc of a different issue and ER Dr told me I had 1 nodule in my right upper lobe that was 8mm and subpleural and a tiny subleural nodule in my left lower lone and small scattered lymph nodes throughout the paratracheal region? What does this mean?Pulmononlogist called finally after a few weeks and finally radiology compared both Cts and was told I need Pet Scan which is next Tuesday. I feel frozen and numb! He said it was triangular in shape and something about right hiler? Gosh I can’t even think. Advice please

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Linda, Volunteer Mentor
@llwortman

Posts: 166
Joined: Sep 02, 2016
Posted by @llwortman, Sun, Mar 19 11:45am

@pattymac
I am a nine year lung cancer survivor who was shockingly diagnosed with a 3cm tumor and rushed into life saving surgery.
I was SCARD whenlater I was told I had a 7cm nodule in my remaining right side lung. It was watched by my thorasic surgeon
for about 5 years and if passed through…which as I understand nodules MAY do.
Please, consider seeking a second opinion and make an appointment with a wise pulmonologist. Going to a larger clinic like Mayo
is the best idea, where last year I thought I heard they treated over 8,000 cases of lung cancer alone. Knowing you have that expert
eye will ease your fears.
I’m so happy you are on CONNECT! Let’s stay connected. I will gladly follow you.
Hugs,
Linda


pattymac
@pattymac

Posts: 78
Joined: Oct 13, 2011
Posted by @pattymac, Sun, Mar 19 3:06pm

I don’t think my insurance will pay for out of state and I wish I could go to mayo. I worked and raised four great kids, sadly divorced but went back to college and graduate in May then on to another school to a graduate program hopefully. So stress of this is bad. Thank you

Posted by @kanaazpereira, Sun, Mar 19 11:51am

Hello @pattymac,

I can only imagine how worried you must feel, but we’re so glad that you’ve returned to Connect.

Paratracheal lymph nodes are groups of lymph nodes that run along the sides of the trachea (windpipe) in the neck.
Here is some information about lung nodules; according to this article by Mayo Clinic “most lung nodules are noncancerous (benign).” Read more here:

http://mayocl.in/2hf0oJm

I’d like to introduce you to mentor, @katemn, and @bruce668, @tdrell, @philomena, @justjanet, @heathert, @DiannaTV, @ginak, @ryman, @1959, @kwilbur, @janovr, @dianeray, @barbjh, @marshaanddan, and I’m sure they will join in to share their insights.

You may also wish to view this discussion on Connect: Lung nodules discovered on X-ray, http://mayocl.in/2n46XTq

@pattymac, what symptoms led to having a CT scan done? Did your doctor explain whether the paratracheal lymph nodes were enlarged or swollen?


pattymac
@pattymac

Posts: 78
Joined: Oct 13, 2011
Posted by @pattymac, Sun, Mar 19 3:13pm

The Ct in December was a trip to ER thinking I had another PE and I didn’t which was good. Then the 2nd Ct was a trip to urgent care which was bc I thought my blood pressure was very low and of course I was out of town so I had to go to an urgent care which turned into being sent to the ER next door which led to blood work. That showed my D-dimer was high( I told ER doc it’s always false/positive), but he wouldn’t release me without a Ct to check and I was afraid if I left that my insurance wouldn’t cover AMA so 6 hours later the Dr told me I had a nodule which I knew but thought I had more than what he told me.With all the past CTs I’ve had due to PEs a couple times, I was told I had 1 nodule that was calcified and had never changed? I’m so confused! Also this Pulmonologist here in Indiana told me that there was ground glass? I have the December radiology report but don’t understand what it means


Kay Strand
@kaystrand

Posts: 109
Joined: Jul 28, 2016
Posted by @kaystrand, Sun, Mar 19 12:15pm

Pattymac
My Ct scan was a mess Dec 2015! Nodules, a cavity that was 6 cm, lots of ground glass and other stuff. It LOOKED like infection so I just had to wait…..6 months later after it got slightly worse, they gave me a bronchoscopy and biopsy and discovered it was MAC. I was so nervous too, and had a very rough 6 months filled w sleepless nights and feeling very scared. Was still nervous after diagnosis but it was better.

Now I’m 8 months into MAC drugs and I’m feeling much better emotionally, although I still am a worrier. I think this website helps. When our health is uncertain it’s scary. Try to do some things to relax. For me, that was keeping busy and balancing that with deep breathing and trying to get some exercise even though you don’t always feel like it.
Please do make an appointment with a good pulmonary doctor. It sounds a lot like mine did and that’s scary, but also they told me it looked “infectious”- there are antibiotics for infections and things they can do for you after you know what’s going on. Stay with the Forum and know most of us here have felt numb and scared too….you’ll be ok!!

Kay S


pattymac
@pattymac

Posts: 78
Joined: Oct 13, 2011
Posted by @pattymac, Sun, Mar 19 3:17pm

Thank you and I can’t even get homework done bc I’m just a mess!What is MAC?


Linda, Volunteer Mentor
@llwortman

Posts: 166
Joined: Sep 02, 2016
Posted by @llwortman, Sun, Mar 19 4:41pm

Hi Kay: So glad you are on Connect! I completely agree with your words of wisdom.
I live by my paced breathing. This breathing practice has empowered my mind and
spirit and helped heal my body. I tell those crazy nodules to “be gone” and I also tell
my mind and body to “Stay Cancer Free” all while I’m in my deepest based breathing
frame of mind. I think “Blow lung disease away”…it’s bee 9 years and 2 months. But,
whose counting? Ha
You deserve a big cyber hug
Linda


Katherine, Volunteer Mentor
@katemn

Posts: 1500
Joined: Nov 21, 2011
Posted by @katemn, Sun, Mar 19 5:06pm

@pattymac, what is your first name .. Patty? Makes it so much more personal. I really know zero about “told me I had 1 nodule in my right upper lobe that was 8mm and subpleural and a tiny subleural nodule in my left lower lone and small scattered lymph nodes throughout the paratracheal region? ” .. so I will not even begin to try to help you in that area .. but I do have MAC .. and I BEG of you NOT to “put the cart before the horse”!! You ALREADY have WAY enough on your plate to deal with before you even THINK about if you MIGHT have MAC .. Leprosy .. Prostate Cancer (I know .. you are female!) .. but THAT is my point! You do NOT need to worry about ANYTHING that is NOT on your plate RIGHT now! You have plenty to deal with at this very moment.

I SHARE @kaystrand, Kay’s advice to find a GOOD pulmonologist in your are soon! In life you will find NO one will care about your body as much as YOU do .. YOU must take care of your body .. so IT can take care of YOU for the rest of your lifetime! Just as you took such good care of your children .. NOW take GOOD care of yourself!

How do you do find a GOOD Pulmonologist? FIRST gather together ALL your medical records so NONE have to be duplicated .. CT scans .. doctor notes etc: From my File Cabinet here is how I would do it .. how some of this helps you .. sending you a big hug in this tough time! Katherine

DOCTOR-FINDING GOOD PULMONOLOGIST
If was sitting in your shoes here is what I would do.
1. Google: PULMONOLOGISTS in your area
2. Google each doctor .. see where they went to school .. my opinion .. the better school they went to .. the smarter they probably are
3. look for doctors photos (can be years old) that appear young enough to have newer knowledge but old enough to have good experience
4. when you find that doctor.. GET an appointment .. THAT one will know how to treat you!


Kay Strand
@kaystrand

Posts: 109
Joined: Jul 28, 2016
Posted by @kaystrand, Sun, Mar 19 5:13pm

Mycobacterium Avium Complex. Infection 


rayhastings
@rayhastings

Posts: 29
Joined: Feb 27, 2017
Posted by @rayhastings, Sun, Mar 19 7:30pm

One additional thing i would suggest. contact your health insurance, most have nurses that are trained in helping people with issues it will save you money if you go to an in network provider that accepts your insurance. they can help yu find someone in your area and assist with setting up appointments and stuff like that. As others have suggested, you are your best helper. Good luck to you


pattymac
@pattymac

Posts: 78
Joined: Oct 13, 2011
Posted by @pattymac, Sun, Mar 19 8:18pm

What is ground glass and I read everything 10 times a day but it wouldn’t let me post a few times already? I kept getting error occurred?


Kay Strand
@kaystrand

Posts: 109
Joined: Jul 28, 2016
Posted by @kaystrand, Sun, Mar 19 8:31pm

Ground glass is a abnormal finding on a Ct scan. I was just saying Ct scans show all kinds of crazy stuff, mine did and I’mOk. Finding a good pulmonary doc is key. It’s so hard to go thru the worry but you do get through it!!Kay


rayhastings
@rayhastings

Posts: 29
Joined: Feb 27, 2017
Posted by @rayhastings, Sun, Mar 19 8:42pm

what city and state do you live? maybe someone is close and can help you find a local Doc


pattymac
@pattymac

Posts: 78
Joined: Oct 13, 2011
Posted by @pattymac, Sun, Mar 19 8:53pm

Michigan city Indiana


Katherine, Volunteer Mentor
@katemn

Posts: 1500
Joined: Nov 21, 2011
Posted by @katemn, Sun, Mar 19 9:10pm

@rayhastings, Ray, sorry to disagree .. but I’m a great believer in doing our own “due diligence” in checking our a doctor’s bios and credentials .. just because one person “likes” a doctor .. frankly that doesn’t do it in my book. I’ve just had to do this too many times with my husband’s medical issues and seen the variations in doctors .. just my opinion. To each their own. Katherine

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