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Comments (10,000+)

I’m leaving this group because I am the person who did not respond to 65 mg...

https://connect.mayoclinic.org/comment/728665/

I’m leaving this group because I am ... experience with a medical interest group

Discussion: The good and bad of Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19, 2022

Information about neurological reactions to the Covid vaccines may be found at the Neuro V Long-Haulers...

https://connect.mayoclinic.org/comment/728130/

the Neuro V Long-Haulers Facebook group

Discussion: Constant excruciating leg cramps

Support Group: Chronic Pain

Posted: Jul 18, 2022

Hi @lilymol I’m glad you got some answers about what was going on with you. You...

https://connect.mayoclinic.org/comment/727816/

Do you attend a ME/CFS clinic or group

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Jul 17, 2022

Welcome to Mayo Connect. Every day I learn of a new disorder here - I have...

https://connect.mayoclinic.org/comment/727757/

You may be able to find a support group

Discussion: Myotonia Congenita

Support Group: Neuropathy

Posted: Jul 17, 2022

Hello, I just joined this group. I am interested in the various ways of treating Osteoporosis...

https://connect.mayoclinic.org/comment/726845/

Hello, I just joined this group.

Discussion: Treating Osteoporosis: What works for you?

Support Group: Osteoporosis & Bone Health

Posted: Jul 14, 2022

You can check further with Epilepsy Foundation of Az. https://www.google.com/search?q=epilepsy+support+group+in+Phoenix&ie=UTF-8&oe=UTF-8&hl=en-us&client=safari#trex=m_t:lcl_akp,rc_f:nav,rc_ludocids:1658332575372961225,rc_q:Epilepsy%2520Foundation%2520of%2520Arizona,ru_q:Epilepsy%2520Foundation%2520of%2520Arizona,trex_id:mDkb0e&lpg=cid:CgIgAQ%3D%3D 1 NE Valley Epilepsy Empowerment Group...

https://connect.mayoclinic.org/comment/726807/

q=epilepsy+support+group+in+Phoenix& ... 1 NE Valley Epilepsy Empowerment Group ... ---------------- 2 Tucson Support Group

Discussion: Living with epilepsy - Introduce yourself & meet others

Support Group: Epilepsy & Seizures

Posted: Jul 14, 2022

@lindasmith1222, @lizzy102, @johnbishop, and all....Thanks, Linda, for your message. I love you're using a weighted blanket....

https://connect.mayoclinic.org/comment/726743/

wonderful thing last year through a group ... I'm joining a group of women who

Discussion: PTSD and Nightmares

Support Group: Depression & Anxiety

Posted: Jul 14, 2022

Mmas, Thank you for your insight on this surgery type and personal success . Currently we...

https://connect.mayoclinic.org/comment/726598/

originally started with MN Epilepsy Group ... this is easy, but picking the right group

Discussion: Had this? Cortical Dysplasia Resection Surgery for Focal Seizures

Support Group: Epilepsy & Seizures

Posted: Jul 13, 2022

Hello @amerloc11, Welcome to Connect. I'm sorry to hear about the neuropathy pain brought on by...

https://connect.mayoclinic.org/comment/726315/

Post-COVID Recovery & COVID-19 group ... discussions - https://connect.mayoclinic.org/group

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 13, 2022

Thank you for sharing. I am young & had a bad car accident damaging my cervical...

https://connect.mayoclinic.org/comment/726308/

this could have went to the spine group

Discussion: Diagnosed with moderate/severe poly neuropathy: sensory motor

Support Group: Neuropathy

Posted: Jul 13, 2022

Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...

https://connect.mayoclinic.org/comment/726192/

discussion takes you to the blood cancer group

Discussion: Husband diagnosed with smothering myeloma and AI amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2022

I am not too familiar with 23 & Me, but when you look down through your...

https://connect.mayoclinic.org/comment/726161/

in OMIM.org, It should give you a group

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Jul 12, 2022

I know this is a response to a post from last year, but I am new...

https://connect.mayoclinic.org/comment/725960/

from last year, but I am new to this group

Discussion: Idiopathic Small Fiber Neuropathy Research

Support Group: Neuropathy

Posted: Jul 11, 2022

I’m Diane and was diagnosed in 2008 with RA. Of course my symptoms started way before...

https://connect.mayoclinic.org/comment/725677/

Thank you for starting this group I ... have wanted to be in a group of fellow

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jul 11, 2022

@nhlbob Well, on behalf of Mayo-Rochester let me welcome you to the Clinic. I spent 4...

https://connect.mayoclinic.org/comment/725485/

the link to the Visiting Mayo Clinic group ... : https://connect.mayoclinic.org/group

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2022

Hello @blbird33, I believe you are Barbara, is that correct? My experience at Mayo (Rochester) after...

https://connect.mayoclinic.org/comment/725473/

I think I saw you post on a PKD group

Discussion: Current wait times for a cadaveric kidney transplant

Support Group: Transplants

Posted: Jul 10, 2022

@cancerchick1 Welcome to Mayo Clinic Connect. How devastating for you, mentally, emotionally and physically. Are you...

https://connect.mayoclinic.org/comment/725257/

able to align yourself with a support group

Discussion: My oncologist has wanted to start a personal Relationship

Support Group: Cancer

Posted: Jul 9, 2022

I'm new to this group. I was diagnosed in Jan 2022. I was a Gleason 8...

https://connect.mayoclinic.org/comment/725221/

I'm new to this group.

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Jul 9, 2022

There is evidence for trigeminal neuralgia associated with both Covid-19 and the Covid vaccines. https://doi.org/10.1177%2F11795735221102747 One...

https://connect.mayoclinic.org/comment/725167/

the Neuro V Long-Haulers Facebook group

Discussion: Trigeminal Neuralgia & Covid-19 shots

Support Group: Brain & Nervous System

Posted: Jul 9, 2022

I have recently finished chemotherapy and Dr has recommended Avastin as a maintenance treatment. I am...