Prednisone good and bad

Posted by marilyncarkner @marilyncarkner, Tue, Sep 24 5:46am

I have PMR..having been diagnosed Jan 2019 .It was severe at the outset with stiffness but not pain but prednisone helped me so much
Everyone talks about it being so nasty but I am not so sure ..with monthly blood work to check blood sugar and regular blood pressure checks and taking ACTONEL to protect the bones I always feel it has done so much good . I also keep an eye on my weight so feel it is more of a miracle drug with side effects like all drugs but they are all controllable.So many other drugs out there are a definition of nasty

Hi @marilyncarkner, I have had two occurrences of PMR both treated with an initial starting dosage of 20 mg prednisone. Both times I was able to successfully taper off – took 3 years the first time and 1-1/2 years the second time. The only bad side effect I had was weight gain the first time so I was able to control it the second time around which was six years after the first occurrence because I knew what to expect.

I agree with you that it is the miracle drug for polymyalgia rheumatica for most of us. Eating healthy and controlling weight is also beneficial for all of us dealing with PMR. I still struggle with both but at 76 I'm still a piece of work in progress ☺ I've always felt that the goal to get off of the drug as soon as possible is the best outcome for us but we really are all different in how PMR affects us and sometimes it's just not possible to get off as soon as we would like. I did find an interesting article on the subject of prednisone – good or bad.

American Council of Science and Health – Prednisone: Satan's Little Helper
https://www.acsh.org/news/2016/12/12/prednisone-satans-little-helper-10561

What dosage did your rheumatologist start you off at? Are you still on prednisone?

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@marilyncarkner I have had prednisone only once in my life. In July 2013, I suffered my first gout attack. In order to get the pain and swelling under control, I was given a bolus of prednisone, but I don't recall the strength. It was to save me. I didn't want to take it, because of the potential side effect of medically induced diabetes, which I am prone to based on family history. I haven't taken it since. Wishing you success on your course of medication.
Ginger

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@johnbishop

Hi @marilyncarkner, I have had two occurrences of PMR both treated with an initial starting dosage of 20 mg prednisone. Both times I was able to successfully taper off – took 3 years the first time and 1-1/2 years the second time. The only bad side effect I had was weight gain the first time so I was able to control it the second time around which was six years after the first occurrence because I knew what to expect.

I agree with you that it is the miracle drug for polymyalgia rheumatica for most of us. Eating healthy and controlling weight is also beneficial for all of us dealing with PMR. I still struggle with both but at 76 I'm still a piece of work in progress ☺ I've always felt that the goal to get off of the drug as soon as possible is the best outcome for us but we really are all different in how PMR affects us and sometimes it's just not possible to get off as soon as we would like. I did find an interesting article on the subject of prednisone – good or bad.

American Council of Science and Health – Prednisone: Satan's Little Helper
https://www.acsh.org/news/2016/12/12/prednisone-satans-little-helper-10561

What dosage did your rheumatologist start you off at? Are you still on prednisone?

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Good article. I also love prednisone, but over a few years I put on weight even when eating very little, I developed type 2 diabetes and osteopenia. A serious side effect is infection.
I eventually took immunosuppressive medication – also very scary- which cleared up the autoimmune illness. Then I lost 45 lbs and diabetes appears to be gone.

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@marilyncarkner I’ve been on prednisone for about 18 months. My worst side effect is osteoporosis—not good. Had to give up bike riding! I also take Fosamx to help my bones. I started at 60mgs of prednisone and now I’m tapering to 10 mg. Hope it works! Becky

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