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heritage1955
@heritage1955

Posts: 5
Joined: Apr 01, 2016

Treating osteoperosis

Posted by @heritage1955, Apr 1, 2016

Hi. I’m new to the site and am interested in treating osteoperosis. I’m 39 yo and recently had a bone density that showed I’m at -2.4. So, going through the intial “I can’t believe it” stuff. 🙂

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mohavegal
@mohavegal

Posts: 19
Joined: Mar 31, 2016
Posted by @mohavegal, Mar 31, 2016

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Liked by ggopher

Alyse Brunella
@alysebrunella

Posts: 262
Joined: Jun 09, 2015
Posted by @alysebrunella, Apr 1, 2016

Hi @mohavegal, and welcome to Connect. Managing osteoporosis can be challenging, especially if you’re experience significant pain while lying down. How have you currently been managing the pain?

I’m tagging @spiritbird2 and @irishk – both members posted this week about osteoporosis and managing pain, medications, etc.

Has your doctor suggested a specific medication for you?

mohavegal
@mohavegal

Posts: 19
Joined: Mar 31, 2016
Posted by @mohavegal, Apr 1, 2016

Currently I’m using standardized Curcumin. My doctor gave me prescription for meloxicam but it irritated my stomach. Have decided I just won’t use the chemical drugs. The fastest relief I’ve found is from a homeopathic cream. Traumeel and it comes from Germany.
I want to fix the problem not medicate it.

Sent from Mail for Windows 10.

mohavegal
@mohavegal

Posts: 19
Joined: Mar 31, 2016
Posted by @mohavegal, Apr 6, 2016

Yes, my doctor very strongly insisted I go on Prolia.Guess I’ll see what happens
mohavegal

blythe
@blythe

Posts: 5
Joined: May 24, 2016
Posted by @blythe, Jun 4, 2016

I am trying Atelvia delayed release tablets. Been on it for one year and have not had any bad side affects.
Waiting for results on new bone scan to see if numbers stayed the same or better. It is taken after breakfast
with 4and one half ounces cold water. Stay upright for 30 minutes. This is better than others that you take on an empty
stomach and then stay upright for 30 minutes. One of my Doctors has lowered my Calcium, said it might get too
much in my blood and that would be bad. Anyone please comment Thanks

Tmteach1230
@tmteach1230

Posts: 2
Joined: Jul 21, 2016
Posted by @tmteach1230, Jul 20, 2016

My dr wants me to try Prolia as well. Haven’t started yet because I had to get some dental first. Have you started it? My only concern is the necrosis of the jaw. Not sure what to do.

Caress
@caress

Posts: 42
Joined: Jul 20, 2016
Posted by @caress, Jul 21, 2016

I have not tried any of the bisphosphonates…too scary for me. At one time my endocronologist asked if
i needed dental work, that was a clue to me not to try these meds.

Caress
@caress

Posts: 42
Joined: Jul 20, 2016
Posted by @caress, Jul 21, 2016

My rheumatologist advised me to take Atelvia, but i’m so afraid to start. He mentioned to get calcium from
food rather than tablets. You mentioned you have not had any bad side effects, thats encouraging for me
to hear. I might have to go back and see him to get a script for Atelvia.

Posted by @predictable, Jul 21, 2016

Good decision, @caress. The FDA reports that Fosmax and other bisphosphonates don’t rebuild bone, but only prevent it from degrading. Another therapy is indicated, and a second opinion may be needed to find it.

Liked by gailb

Posted by @predictable, Jul 21, 2016

@caress and all, if you’re looking for a physician to treat osteoporosis — or give you a second opinion on your treatment plan — consider the recommendation of the National Institute of Arthritis and Musculoskeletal and Skin Diseases, a division of the National Institutes of Health. Their web page should be helpful in your search: http://www.niams.nih.gov/Health_Info/Bone/Osteoporosis/find_doctor.asp.

susandockter
@susandockter

Posts: 21
Joined: May 11, 2016
Posted by @susandockter, Jul 21, 2016

Has your Dr. Talked about a different class of drugs? If the normal ones bother a patient there are other kinds of drugs people can take, like Proleia. Don’t give up unless your Dr. Recommends you do. Your ability to walk is on the line.

susandockter
@susandockter

Posts: 21
Joined: May 11, 2016
Posted by @susandockter, Jul 21, 2016

I had my first Proleia shot in April and no side effects. My Dr. Said the side effects are rare. Having a problem with my jaw would be very difficult, but not being able to walk would be far worse.

Liked by pgsongbird, gailb

karaokelady
@karaokelady

Posts: 3
Joined: Aug 16, 2016
Posted by @karaokelady, Aug 16, 2016

I’m currently reading a book called Death By Calcium by Thomas E Levy, Md. It is making a whole lot of sense, if you are interested. I am following what was recommended. Hope this helps.

Caress
@caress

Posts: 42
Joined: Jul 20, 2016
Posted by @caress, Aug 16, 2016

Hi, I came upon a book called “SaveourBones” Program by Vivian Goldschmidt, and read how these bisphosphonate drugs are not safe, serious side effects from these drugs. I take Vit. D 200mg. plus I try to get my calcium from food, almond milk, yogurt, cheese, green leafy veggies I’m praying this will help me with this osteoporosis.

kayelle
@kayelle

Posts: 24
Joined: May 26, 2016
Posted by @kayelle, Aug 17, 2016

Great source of knowledge you mention and great exercies

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