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Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Posted by @kanaazpereira, Mar 30, 2017

Let’s talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let’s chat. Why not start by introducing yourself?

REPLY

Hello @kozlo52 @blindeyepug @barneythe2nd @nanke99 @vickiekay @tbeckys @iman_im @lisa_sj99 @1825 @callyrae @jewel8888 @boomerexpert,

I’d like to invite you to this new discussion about rheumatoid arthritis, where it will be easier for you to meet other Connect members living with, and talking about RA. Pull up a chair and tell us a bit about yourself.

Sure…how to join?

@boomerexpert

Sure…how to join?

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I would love to be part of the group!

This is so great! Thank you so much for responding.

The process is the same when following, joining and posting in any discussion thread; it’s just that formerly, the RA discussions were mixed in with Chronic Pain, Bones, Joints & Muscles, Autoimmune Diseases, and conversations were getting scattered throughout the community.
This discussion or section of the community is dedicated to topics specifically related to rheumatoid arthritis.

Here’s a quick refresher about posting your messages and joining in the discussion:

Click “DISCUSS” in the top navigation bar. Then select “Groups” from the drop-down menu.
Click a group that interests you, like Autoimmune Diseases.
Scroll to review a list of the most recent discussions.
Click the title of an interesting discussion, in this example, “Rheumatoid Arthritis (RA) – Introduce yourself and meet others.”
This will take you to the discussion thread where you can read all of the comments.
To add your own comment, scroll to the bottom of the page and type your comment into the “Write your reply here…” box.
Once you have written your comment, click “POST REPLY.”
You can also reply directly to another member’s comment by clicking “REPLY” below their comment.

Please let me know if you have any other questions.
I look forward to connecting you with others, sharing insights, experiences, and suggestions about living with rheumatoid arthritis.

Hi I was diagnosed in 2015 recently I have been having monthly flair ups I was put on methotrexate but just stopped it as I can’t stand the side effects. I am going to the Mayo Clinic in may

I appreciate being added, thank you. Hi im Julie, ive had a lot of health concerns this past year. RA is very painful at times. Methotrexate really helps with my joints and fatigue. I do not have rheumatoid factor and also have psoriatic arthritis and lupus. i like the good days and enjoy walks on the beach with my hubby and dog Roxi. Looking forward to discussions with you all.
Julie

@guzmanbarb

Hi I was diagnosed in 2015 recently I have been having monthly flair ups I was put on methotrexate but just stopped it as I can’t stand the side effects. I am going to the Mayo Clinic in may

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Im so happy to hear youll be going to Mayo in May. I understand having to stop medications, sometimes the side effects are too much. I had tried otezla for my skin last year , it made all my tendons hurt. The methotrexate ive been on for 17 yrs, for me its the sweating, yuck. Hoping youll find what works soon. Julie

Hello @gizmanbarb,

Welcome to Connect; thank you so much for introducing yourself and joining the group.

Although for different conditions, we have quite a few members who have used methotrexate; @jerseygirl926, @crhp194, @lisa_sj99, @lorrainechavez, @debcha, @sherw, @emmur16, @sallyann, @luladavis, @rosestea, @julied838, @mswanda, @djfd @amkaloha @taterjoy @lisabeans @zenk @jewel8888 @smgarner1 would you share your experience with this drug?

You may also wish to view these discussions, and tag members there for more insight:
I’m looking for information on Methotrexate for Autoimmune Diseases: http://mayocl.in/2h2kHZY
Is it possible to go off RA drugs by following a plant based diet: http://mayocl.in/2oJgPDN
Side affects from Anastrozole and MCTD leaves my body achey: http://mayocl.in/2p6loo8

@guzmanbarb, what side effects are you experiencing? Has your physician offered other medications to relieve the pain?

Side effects are headaches and being so tired I can’t function I stopped taking it

I gave not been diagnosed yet. I too had to stop methotrexate. I got sick from it. I am now taking arava. It is helps a bit but I still have painful days and am exhausted.

@kanaazpereira

Hello @gizmanbarb,

Welcome to Connect; thank you so much for introducing yourself and joining the group.

Although for different conditions, we have quite a few members who have used methotrexate; @jerseygirl926, @crhp194, @lisa_sj99, @lorrainechavez, @debcha, @sherw, @emmur16, @sallyann, @luladavis, @rosestea, @julied838, @mswanda, @djfd @amkaloha @taterjoy @lisabeans @zenk @jewel8888 @smgarner1 would you share your experience with this drug?

You may also wish to view these discussions, and tag members there for more insight:
I’m looking for information on Methotrexate for Autoimmune Diseases: http://mayocl.in/2h2kHZY
Is it possible to go off RA drugs by following a plant based diet: http://mayocl.in/2oJgPDN
Side affects from Anastrozole and MCTD leaves my body achey: http://mayocl.in/2p6loo8

@guzmanbarb, what side effects are you experiencing? Has your physician offered other medications to relieve the pain?

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So sorry you are having so much trouble with methroxate. I have been taking it for about 7 months. Side effects for me just ladtbon the day I take it. Mayo has me take 6 pills once a week. On the day I take it, I am very tired and somewhat nauseated. Usually, I take it easy that day and by the next day, I am fine. Perhaps you need a dosage adjustment or some other adjustment. I am no doctor and because I take the drug for a non-painful condition the only way I know it helps is from PET scans and/or CT scans. Good luck to you. Have a conversation with your doctor about your difficulties.

I was on methotrexate many years ago (28) and my liver enzymes went off scale. This is an old chemotherapy drug from the 1940’s so make sure you all gt bloodwork on your liver enzymes. i was taken off it very quickly…kozlo52

Liked by jewel8888

@lisabeans

I gave not been diagnosed yet. I too had to stop methotrexate. I got sick from it. I am now taking arava. It is helps a bit but I still have painful days and am exhausted.

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be very careful with arava. i was on this one and had been losing skin from the genitalia and penis so bad that i went to a special dermatologist who told me to get off it immediately or i would have lost my scrotum, as it happened with someone else. I also was very itchy with this from the very start. Check your skin carefully especially in the private area. These RA drugs can be quite dangerous….kozlo52

Liked by jewel8888

I have been diagnosed with RA in the last fortnight after thinking I had PMR over the last 16 months. Couldn’t get the prednisolone meds down below 7.5 mg and wasn’t holding the pain. Then 8 weeks ago after my index finger was swollen, suddenly had extreme pain in both hands and wrists. Couldn’t drive, which is rather essential where I live. Now being weaned of Prednisolone and taking 10 mg once a week of methotrexate with a folic acid tablet each day after the Methotrexate for 2 days to counter any side effects. So far so good.
Have read a paper that says there is evidence RA is ” likely caused by Proteus asymptomatic urinary tract infections”. ( 2011 Rashid and Ebringer Autoimmunity in Rheumatic Diseases is induced by Microbial Infections via Crossreactivity or Molecular Mimicry) . Does anyone know more about this and if any treatments have been tried for this Microbe? I will bring this up with my rheumatologist at my next visit in June. Also can RA go into remission or is there always pain somewhere? Thanks for this Forum! Got a lot of learning about RA to do.

@dinym

I have been diagnosed with RA in the last fortnight after thinking I had PMR over the last 16 months. Couldn’t get the prednisolone meds down below 7.5 mg and wasn’t holding the pain. Then 8 weeks ago after my index finger was swollen, suddenly had extreme pain in both hands and wrists. Couldn’t drive, which is rather essential where I live. Now being weaned of Prednisolone and taking 10 mg once a week of methotrexate with a folic acid tablet each day after the Methotrexate for 2 days to counter any side effects. So far so good.
Have read a paper that says there is evidence RA is ” likely caused by Proteus asymptomatic urinary tract infections”. ( 2011 Rashid and Ebringer Autoimmunity in Rheumatic Diseases is induced by Microbial Infections via Crossreactivity or Molecular Mimicry) . Does anyone know more about this and if any treatments have been tried for this Microbe? I will bring this up with my rheumatologist at my next visit in June. Also can RA go into remission or is there always pain somewhere? Thanks for this Forum! Got a lot of learning about RA to do.

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So glad you’re not having side effects I was on methotrexate for a month along with rayon and I was so tired I couldn’t function I took myself off of everything except plaquenil 1time a day and besides the morning headache thank god I feel better than I have in weeks

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