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165 total results

Comments (142)

Hello! I am afraid I am still in pretty bad shape. I think I might have...

https://connect.mayoclinic.org/comment/1163068/

Testing that showed a few types of Muscular ... dystrophy including Limb Girdle Muscular ... Dystrophy, but the Specialists don&

Discussion: Problems walking after covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 26, 2024

I have been SOB most of my life, and I am 80 now. Honestly, I have...

https://connect.mayoclinic.org/comment/203036/

RyR2 (Cardiac Wall Dystrophy), FKTN ... (Fukuyama limb girdle muscular dystrophy

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jun 11, 2020

Judging from the groaning and complaining coming from my monitor when I opened this page a...

https://connect.mayoclinic.org/comment/721438/

Gelsolin (Amyloidosis) and Limb Girdle Muscular ... Dystrophy (LGMDr23).

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jun 27, 2022

Haha! After I sent it I realized it could read that way! Lol. My battles with...

https://connect.mayoclinic.org/comment/1228924/

atrophy in limbs ( possible adult onset muscular ... dystrophy, ) iGg IV theropy for low

Discussion: Moving to a retirement home?

Support Group: Aging Well

Posted: Feb 3 8:08pm

HI! I had to comment as I am 78 but very same symptoms. . I have...

https://connect.mayoclinic.org/comment/1380677/

hemotologist suggested having a neuro muscular ... it turned out I have ADULT ONSET MUSCULAR ... DYSTROPHY!!!

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Aug 27 3:38pm

Here is a little info about a nerve conduction study. Ive had them - not very...

https://connect.mayoclinic.org/comment/614206/

They confirmed a diagnosis of Muscular ... Dystrophy 2 in my case - so they are

Discussion: Neuromuscular Testing and Waiting for ALS confirmation

Support Group: Brain & Nervous System

Posted: Jul 5, 2021

I'd like to add my welcome, @dbwhitted, and thank you for sharing some of the issues...

https://connect.mayoclinic.org/comment/126998/

we don't have anyone who has both Muscular ... Dystrophy and Diverticulitis, I will

Discussion: Diverticulitis and Muscular Dystrophy

Support Group: Digestive Health

Posted: Nov 4, 2016

@techi Hi, Lisa. That sort of treatment really takes the hope out of our medical systems,...

https://connect.mayoclinic.org/comment/218686/

One result of these is muscular dystrophy

Discussion: Doctors mistake watch out.

Support Group: Autoimmune Diseases

Posted: Oct 4, 2018

I wasn't as lucky as theo316. I am one of those who had TLIF L2-L5 for...

https://connect.mayoclinic.org/comment/1090017/

the peroneal nerve and consequently muscular ... dystrophy of the same (right leg).

Discussion: What are people's experiences with spinal fusion surgery?

Support Group: Spine Health

Posted: Jun 19, 2024

Hi @leannz, I am 81 and also not giving in easily to age or illness. I...

https://connect.mayoclinic.org/comment/90454/

am in weekly PT for a rare form of Muscular ... Dystrophy for 3.5+ years.

Discussion: Treating Osteoporosis: What works for you?

Support Group: Osteoporosis & Bone Health

Posted: Jul 4, 2017

@pec2884 I am working in some inherited diseases which are making a mess of my life....

https://connect.mayoclinic.org/comment/104513/

have learned that I have both Fukutin Muscular ... Dystrophy (FKTN; OMIM:606596) and Gelsolin

Discussion: Cerebellum Atrophy

Support Group: Stroke & Cerebrovascular Diseases

Posted: Mar 2, 2021

You are right to worry about Dercum's, etc. and how to be certain you are getting...

https://connect.mayoclinic.org/comment/720831/

nice for him to cure my Limb Girdle Muscular ... Dystrophy r23, although it is listed

Discussion: Struggling with anxiety while undergoing diagnostic testing

Support Group: Autoimmune Diseases

Posted: Jun 25, 2022

Yes! I posted this, but still have not been able to try Mestinon. I do think...

https://connect.mayoclinic.org/comment/1247963/

tested for MS, Myasthenia Gravis, Muscular ... Dystrophy, all Autoimmune Diseases,

Discussion: Mestinon for Long Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 1 10:18am

@tayleebuzz As Lori said, this can be very confusing. I live in rural Oregon, and the...

https://connect.mayoclinic.org/comment/594415/

Multiple Myeloma, my Fukatin Limb Girdle Muscular ... Dystrophy, and about 55 markers for

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2021

My Myasthenia Gravis (MG) was diagnosed with a blood test, ordered by surgeon after he shortened...

https://connect.mayoclinic.org/comment/1105335/

something called OPMD (ocular pharyngeal muscular ... dystrophy) and it sounded a lot like

Discussion: Anyone been treated at Mayo Clinic for Ocular Myasthenia Gravis?

Support Group: Autoimmune Diseases

Posted: Jul 14, 2024

Hi ryman.......Every time I tell someone about using prunes for osteoporosis, I get a shy smile...

https://connect.mayoclinic.org/comment/138395/

helps osteoporosis as I have a form of muscular ... dystrophy.

Discussion: Aredia for bones

Support Group: Bones, Joints & Muscles

Posted: Feb 16, 2017

Interesting note you give us. Almost everything you mention, except the specific diagnoses, I can relate...

https://connect.mayoclinic.org/comment/595137/

Gelsolin, but also Fukatin Limb Girdle Muscular ... Dystrophy , and a bunch of other stuff ... each other under Fukatin Limb Girdle Muscular ... Dystrophy.

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Apr 17, 2021

Yes, follow the money! In Wall Street News. Insmed is hoping to be what Dupixent is...

https://connect.mayoclinic.org/comment/1230197/

gene therapy INS1201 for Duchenne muscular ... dystrophy is expected to begin in the

Discussion: Is there any successful story?

Support Group: MAC & Bronchiectasis

Posted: Feb 5 3:17pm

Dear Fibro community, I am new to being unwell. I didn't know where to start, and...

https://connect.mayoclinic.org/comment/705099/

stopped sweating appropriately, then the muscular ... concerned for worse things (like ALS, Muscular ... Dystrophy), but would be infinitely

Discussion: Want to talk to others with fibromyalgia: What symptoms do you have?

Support Group: Fibromyalgia

Posted: May 3, 2022

I had surgery for spinal stenosis 3 years ago. The pain down my left leg was...

https://connect.mayoclinic.org/comment/314044/

when she was 6 for her scoliosis from Muscular ... Dystrophy.

Discussion: Severe Stenosis - Doc advises surgery

Support Group: Spine Health

Posted: Jun 21, 2020