I’m a 48yo male with Limb Girdle Muscular Dystrophy (LGMD), confined to an power wheelchair since 1998, my only physical abilities is twisting my wrists & neck. I have full complete feeling throughout body, I do NOT use any urination aid nor bowel movement aids. Now up until July 2014 I’ve been healthy, except being MD, I’ve never stayed a night at the hospital or even had a pressure sore. In 2014 I began eating many fresh vegetables & salads, eating healthy…I thought!
Well in I began having digestive issues (not always at the same time) like lower abdominal pain & random diarrhea, extreme sweats, & passing out. In September 2014 I awoke with 102 that quickly spiked to 104 temp, ended up in hospital for 5 days with sepsis (unknown origin) & mild diverticulitis pain, but no digestive issues, except those brought on by 5 IV antibiotics!
Then in November 2014 I ate a salad (w/ corn) minutes later ended up with abdominal pain, diarrhea, extreme sweats, & passing out. then to the hospital released to days later, diagnosis diverticulitis.
Then February & August 2015 a colonoscopy procedure was performed both revealed a 2mm benign polyps…Se below for most recent colonoscopy results.
Now 1 month ago, for no known reason BAM a flare up, hospital stay 3 days!
Two weeks ago another colonoscopy revealed 2 very small 2cm benign polyps.
May questions is this, most would say “have surgery, it’ll fix it”, but not so fast! Due to my LGMD it puts me at a higher risk of anesthesia issues & pneumonia issues, both could be seriously life threatening. I’ve been watching extremely careful what I eat, although the doctors are “6 of one 1” & a “1/2 dozen of the other”, it seems the medical industry is divided on the causes. I know that corn, grains, oats, etc effect me, plus I’m looking into natural probiotics through homemade kraut & turmeric golden paste. I had a stomach virus 4 days ago that wiped me out diarrhea & vomiting for two days, today’s my first day eating a soft grilled trout w mashed potatoes & soft carrots, but even before eating it I awoke with tenderness in the diverticulitis region, that increased throughout today, even though I’ve been on mostly liquids for 3 days.
Any advice? Anyone that’s facing or has faced both MD & diverticulitis?
by God’s grace,
Liked by Teresa, Volunteer Mentor