AL Amyloidosis: Where were you treated?
Hello. My dad was recently diagnosed with AL Amyloidosis. We live in northcentral WI and he is ready to take a step up in the level of specialty care. We are considering Mayo-Rochester and Barnes Jewish in St. Louis. Is there anyone out there who is currently, or has been treated by Mayo-Rochester for AL Amyloidosis and can tell me how they feel about the treatment? Also, a question my dad (and we) have is, he doesn't know where he will stay if he's doing outpatient treatment. What do people do? Staying at a hotel I'm sure gets expensive. Any advice would be much appreciated. Thank you. 💜