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106 total results
Comments (100)
I had NO side effects and the needle is extremely small so it's more or less...
https://connect.mayoclinic.org/comment/90482/
was on Interferon for my systemic mastocytosis
Hello @jimmyb63, I'm new to this board and I'm highly interested in your story. How are...
https://connect.mayoclinic.org/comment/1029599/
endless blood tests, ...) they found out mastocytosis
I went to mayo but they didn’t care about helping me, they just insisted that I...
https://connect.mayoclinic.org/comment/241521/
But chapel hill dr diagnosed me with mastocytosis
No answers or suggestions yet. Your situation is similar but different. I've got low BP but...
https://connect.mayoclinic.org/comment/735684/
stretched to the max dealing with my mastocytosis
I understand what you are going through but if you are having a colonoscopy you should...
https://connect.mayoclinic.org/comment/217991/
and it turned out to be systemic mastocytosis
Welcome to this blog and besides the health issues you have I DO UNDERSTAND how frustrating...
https://connect.mayoclinic.org/comment/134307/
I have systemic mastocytosis.
I am currently on my 3rd year of Prolia. I have NO side effects. I ended...
https://connect.mayoclinic.org/comment/141557/
with the treatment as I have Systemic Mastocytosis
Yes, I definitely fit the systemic mastocytosis symptoms, and it’s been brought up before, but just...
https://connect.mayoclinic.org/comment/1197621/
Yes, I definitely fit the systemic mastocytosis ... The fact systemic mastocytosis has been
Thanks for sharing your story. I was diagnosed with Cutaneous Mastocytosis 5 years ago. I have...
https://connect.mayoclinic.org/comment/134384/
I was diagnosed with Cutaneous Mastocytosis
After 2 1/2 years I was finally diagnosed with systemic mastocytosis. I would like to know...
https://connect.mayoclinic.org/comment/1036435/
was finally diagnosed with systemic mastocytosis
Finding what helps people with mast cell disorders either with mastocytosis or mcas or the newly...
https://connect.mayoclinic.org/comment/134335/
with mast cell disorders either with mastocytosis ... And because, as One mastocytosis patient
I’m sorry to see no one has replied to you since 2017 (edit: after I posted...
https://connect.mayoclinic.org/comment/134323/
find several groups an one is the mastocytosis
@carsonamy07 - Sorry you're having so many problems. I find the Lab Tests Online website (it's...
https://connect.mayoclinic.org/comment/217023/
sweats also made me think of TB or mastocytosis
Hi No not yet Referred to endocrinology But not getting v far UK based I had...
https://connect.mayoclinic.org/comment/860512/
having that 21st May
I may have mastocytosis
Next time I stumble upon one of her newsletters I'll come back and give details. There...
https://connect.mayoclinic.org/comment/775119/
two ladies who are real experts on mastocytosis
I know knee replacement is in my future in a few years, but because of all...
https://connect.mayoclinic.org/comment/210354/
homework to study what is- typtase and mastocytosis
@jpearo you can ask an allergist to check your tryptase level, that would rule out mastocytosis.jpearo...
https://connect.mayoclinic.org/comment/134358/
tryptase level, that would rule out mastocytosis.jpearo ... tryptase level, that would rule out mastocytosis
Several thoughts (which I will preface with the statement that I am NOT a medical professional,...
https://connect.mayoclinic.org/comment/138550/
reading a lot of these posts was "Mastocytosis ... Mastocytosis is fairly well-known, so ... for a wealth of information on both mastocytosis
Hello @pamelars60 -- welcome to Connect. Thank you for posting and sharing here on Mayo Connect....
https://connect.mayoclinic.org/comment/96857/
have all talked about MCAs and/or mastocytosis
Not replying to anyone in particular but a huge "thank you!" to everyone! Due to the...
https://connect.mayoclinic.org/comment/739725/
Had well controlled mastocytosis. ... double jab, my strictly cutaneous mastocytosis
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