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112 total results
Comments (106)
Hi there. I have several , ( dare I say, weird ? ) diagnosis. I have...
https://connect.mayoclinic.org/comment/96856/
have had patients with the MCAS, just mastocytosis
Thank you for asking! No his pain is still the same. It’s been so heartbreaking because...
https://connect.mayoclinic.org/comment/1070975/
Eosinophilic disease & systemic Mastocytosis
Have them check your tryptase levels and do biopsy of your skin where rash is the...
https://connect.mayoclinic.org/comment/210352/
is high and had biopsy and I have Mastocytosis
I had similar symptoms for years and it was missed because they didn’t order mast cell...
https://connect.mayoclinic.org/comment/70296/
I have a diagnosis of mastocytosis,
Hi Kurt, and welcome. I moved your post to this existing discussion about mast cell activation...
https://connect.mayoclinic.org/comment/742110/
the relationship between MCAS and mastocytosis
I had NO side effects and the needle is extremely small so it's more or less...
https://connect.mayoclinic.org/comment/90482/
was on Interferon for my systemic mastocytosis
Hello @jimmyb63, I'm new to this board and I'm highly interested in your story. How are...
https://connect.mayoclinic.org/comment/1029599/
endless blood tests, ...) they found out mastocytosis
I went to mayo but they didn’t care about helping me, they just insisted that I...
https://connect.mayoclinic.org/comment/241521/
But chapel hill dr diagnosed me with mastocytosis
No answers or suggestions yet. Your situation is similar but different. I've got low BP but...
https://connect.mayoclinic.org/comment/735684/
stretched to the max dealing with my mastocytosis
I understand what you are going through but if you are having a colonoscopy you should...
https://connect.mayoclinic.org/comment/217991/
and it turned out to be systemic mastocytosis
Welcome to this blog and besides the health issues you have I DO UNDERSTAND how frustrating...
https://connect.mayoclinic.org/comment/134307/
I have systemic mastocytosis.
I am currently on my 3rd year of Prolia. I have NO side effects. I ended...
https://connect.mayoclinic.org/comment/141557/
with the treatment as I have Systemic Mastocytosis
Thanks for sharing your story. I was diagnosed with Cutaneous Mastocytosis 5 years ago. I have...
https://connect.mayoclinic.org/comment/134384/
I was diagnosed with Cutaneous Mastocytosis
After 2 1/2 years I was finally diagnosed with systemic mastocytosis. I would like to know...
https://connect.mayoclinic.org/comment/1036435/
was finally diagnosed with systemic mastocytosis
Finding what helps people with mast cell disorders either with mastocytosis or mcas or the newly...
https://connect.mayoclinic.org/comment/134335/
with mast cell disorders either with mastocytosis ... And because, as One mastocytosis patient
I’m sorry to see no one has replied to you since 2017 (edit: after I posted...
https://connect.mayoclinic.org/comment/134323/
find several groups an one is the mastocytosis
@carsonamy07 - Sorry you're having so many problems. I find the Lab Tests Online website (it's...
https://connect.mayoclinic.org/comment/217023/
sweats also made me think of TB or mastocytosis
Hi No not yet Referred to endocrinology But not getting v far UK based I had...
https://connect.mayoclinic.org/comment/860512/
having that 21st May
I may have mastocytosis
There is a lot of misinformation about MCAS online. Id avoid most of the online support...
https://connect.mayoclinic.org/comment/1336749/
specifically and seems to focus on Mastocytosis
Next time I stumble upon one of her newsletters I'll come back and give details. There...
https://connect.mayoclinic.org/comment/775119/
two ladies who are real experts on mastocytosis
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