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Veruska
@veriska

Posts: 6
Joined: Jul 07, 2016

Prolia treatment for osteoporosis

Posted by @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

REPLY

I, too, was concerned about the many side effects. I have been on Prolia for 2 years (ie. 4 injections) and have had no side effects. My latest bone density test showed an increase in density, which is the best part!

I was on Bonviva for 2 years and it didn’t work. I started Prolia in January. So far the only side effects I notice are the same I had with Bonviva… stiffness in my hips and knees when I sit for a long time or first thing in the morning. I am 53 and have just started testing to see if they can discover a cause for my Osteoporosis.

I have been taking Prolia for two years, and i have not had anh side effects. Much better than the IV Reclast that i was taking before.

Liked by amber67

Hello @veriska, @crenhov, @ritafarmer, and @cairnmama, welcome to Connect and thank you for posts about Prolia for osteoporosis. Thank you for jumping in and addressing @veriska‘s concerns about the side effects of Prolia.

I would like to also invite @kayelle, @tessie, @dolan, @janicec8957, @donna13, and @jaleen, to share their experiences with taking Prolia for osteoporosis in this discussion as well.

Liked by amber67

I am currently on my 3rd year of Prolia. I have NO side effects. I ended up switching doctors after approximately 15 years because of insurance problems/non reimbursements. I was ‘freaked’ out of my comfort zone and in the middle of treatment. I saw a new endocrinologist who agreed with the treatment as I have Systemic Mastocytosis and have had multiple fractures as well. I will continue on Prolia this year (June/May injections). See the endocrinologist and have my 1st DEXA scan after the start of Prolia. We may return to the 2 year Forteo as I had incredible results from that several years ago. I would highly recommend Prolia if needed.

Liked by amber67

I want to thank everyone for your reply. It helps with my decision. I am at -2.9. Has anyone started Prolia at or above that degree?

Liked by sparkles4ever

Thank you so very much for the Prolia information. My doctor told me yesterday that he wanted to start me on this. Several years ago I took the Fotteo for two years, but since my bones are still so thin, he wants to try me on Prolia. Thank you to everyone who has information on this drug, it will definitely make all of our decision so much easier.

Liked by dolan

I was about 35 yrs old and premenopausal with my T9 vertebrae fracture. Had extreme numbers -2.4 hip, -3.5 spine. Started on Fosamax daily…was okay….but numbers started to decline again, 2 years of Forteo with extremely good results but only able to be on for 2 years, back to Fosamax weekly to maintain the bone Forteo built. Since I had been so young starting treatment, the doc game me a drug holiday of approx 3 years with 5 fractures in my pelvis in a fall. That started the Prolia. Have had clavicle fracture (answering the phone), rib fracture (sneezing), T9 vertebrae (lifting arms over head), pelvis (fall). Not hereditary in my family…

@dolan

I am currently on my 3rd year of Prolia. I have NO side effects. I ended up switching doctors after approximately 15 years because of insurance problems/non reimbursements. I was ‘freaked’ out of my comfort zone and in the middle of treatment. I saw a new endocrinologist who agreed with the treatment as I have Systemic Mastocytosis and have had multiple fractures as well. I will continue on Prolia this year (June/May injections). See the endocrinologist and have my 1st DEXA scan after the start of Prolia. We may return to the 2 year Forteo as I had incredible results from that several years ago. I would highly recommend Prolia if needed.

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I also had incredible results with two years of Forteo, but i was told that two years was all that i could have–that i couldn’t t go back and use it again later.

Liked by amber67

@dolan

I am currently on my 3rd year of Prolia. I have NO side effects. I ended up switching doctors after approximately 15 years because of insurance problems/non reimbursements. I was ‘freaked’ out of my comfort zone and in the middle of treatment. I saw a new endocrinologist who agreed with the treatment as I have Systemic Mastocytosis and have had multiple fractures as well. I will continue on Prolia this year (June/May injections). See the endocrinologist and have my 1st DEXA scan after the start of Prolia. We may return to the 2 year Forteo as I had incredible results from that several years ago. I would highly recommend Prolia if needed.

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Yes, that is what I was told also. I have been off several years so therefore the dr. said I could now do Prolia, but not Forteo again.

That is what I had understood as well, but the new endocrinologist said yes, you can go back on after a break and repeat another 2 years. I think that it’s not so much a danger as they have no testing whether longer than two years works.

Liked by danomano

@dolan

That is what I had understood as well, but the new endocrinologist said yes, you can go back on after a break and repeat another 2 years. I think that it’s not so much a danger as they have no testing whether longer than two years works.

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Are you going to do Forteo again or try Prolia ?

If you are askibg this of me, i am on Prolia. I will have a DEXA in anout 9 months to assess my progress after about 2-1/2 years on Prolia. The next time that i see my rheumatologist, i will ask again anout Prolia.

Just a note about Prolia vs Forteo–Prolia myst be given as an injection in the doctor’s office, so it is covered as part of the doctor by insurance. Since Forteo is self-administered, it is covered by the drug plan part of insurance. Mine was always covered, but i gave always wondered if Medicare drug plans would cover Forteo.

Liked by amber67

I am going to do the 4th year of Prolia thru Dec of 2017 and then a DEXA scan to see where we are….decide from there but it was discussed to go to Forteo. We’ll see. I had no issues with insurance.

Liked by amber67

@dolan

I am currently on my 3rd year of Prolia. I have NO side effects. I ended up switching doctors after approximately 15 years because of insurance problems/non reimbursements. I was ‘freaked’ out of my comfort zone and in the middle of treatment. I saw a new endocrinologist who agreed with the treatment as I have Systemic Mastocytosis and have had multiple fractures as well. I will continue on Prolia this year (June/May injections). See the endocrinologist and have my 1st DEXA scan after the start of Prolia. We may return to the 2 year Forteo as I had incredible results from that several years ago. I would highly recommend Prolia if needed.

Jump to this post

I appreciate your response and that of others in the group about the efficacy of Forteo and Prolia, but I am disappointed that no one mention how much improvement (% according to a dexa-scan) they have made. I have 3 friends who had the 2-year treatment with Forteo. Results were 0%, 2% and 5% improvement. I don't happen to think that small amount of improvement is worth the risks involved with Forteo and the user reviews I've read are not at all reassuring as some reported horrendous pain and disability after starting the treatment. About Prolia, same thing – small improvement (2 %) that hardly compensates for the risks involved. A doctor in Canada even told a traveling companion of mine  - "Don't you DARE go on Prolia – it's very hard on the system."

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