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666 total results
Comments (626)
Hello @chistiania, There are some discussions that you might find helpful learning more about the risks...
https://connect.mayoclinic.org/comment/774808/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments: https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Discussion: The Chat Room: A place to talk about this and that
Support Group: Just Want to Talk
Posted: Nov 18, 2022
I am now on sirolimus, generic for Rapamycin, which is used off-label for ME/CFS, but is...
https://connect.mayoclinic.org/comment/948274/
Rapamycin, which is used off-label for ME ... /CFS, but is actually a drug for anti-rejection ... Health Rising blog about a dr with ME ... /CFS who was sick with it for 10 years
Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
Support Group: Just Want to Talk
Posted: Oct 15, 2023
There are many ways to mitigate the suffering we are experiencing however, to my knowledge, there...
https://connect.mayoclinic.org/comment/183100/
your condition, knowledgable about ME ... /CFS? ... that not one of them was able to give me ... each of them what best worked for me ... /CFS.
Discussion: Post Interferon Syndrome
Support Group: Infectious Diseases
Posted: Feb 20, 2020
Dr. Paul Cheney and his partner first identified a cluster of very sick patients (who were...
https://connect.mayoclinic.org/comment/1296500/
sick patients (who were later labeled ME ... /CFS) in their Lake Tahoe practice in ... from all over the world including me
Discussion: How are the super long-haulers doing 3 to 4 years out?
Support Group: Post-COVID Recovery & COVID-19
Posted: May 4 12:39pm
@jubilee That’s great to hear you’re doing better! Neuroplasticity is important in every disorder/disease. It gave...
https://connect.mayoclinic.org/comment/248336/
It gave me hope I could improve, but ... unfortunately for me until they find ... I wish there were in person ME/CFS groups
Discussion: Functional Neurological Disorder (FND)
Support Group: Brain & Nervous System
Posted: Feb 26, 2019
This is so interesting. The med that really helps me is a 200 mg. tablet of...
https://connect.mayoclinic.org/comment/1373403/
The med that really helps me is a 200 ... nothing and low dose aspirin makes me ... But, I had ME/CFS for many years before
Discussion: Finally... Some answers
Support Group: Post-COVID Recovery & COVID-19
Posted: Aug 18 10:41am
@erickthompson I think my burning sensation comes from "focusing" / trying to understand what I read...
https://connect.mayoclinic.org/comment/1456311/
New paper: The top treatments for ME ... /CFS and Long-COVID https://youtu.be ... Patient-reported treatment outcomes in ME ... /CFS and long COVID https://pubmed.ncbi.nlm.nih.gov
Discussion: Migraines and tingling in the body
Support Group: Headache & Migraine
Posted: 1 day ago
@amber3212 I will attach a link for great articles on new research on CFS. There is...
https://connect.mayoclinic.org/comment/238507/
great articles on new research on CFS ... new-harvard-chronic-fatigue-syndrome-me-cfs-research-center-fulfills-crucial-need
Discussion: Chronic Fatigue Syndrome and Temporary Paralysis?
Support Group: Just Want to Talk
Posted: Jan 4, 2019
Hi. Yes you can take the two together. My Stanford LC/ME/CFS clinic started me on LDN...
https://connect.mayoclinic.org/comment/1244823/
My Stanford LC/ME/CFS clinic started ... me on LDN and after a number of months ... They then started me on Abilify - again ... very low does (0.1mg/day) and had me
Discussion: What helps longhaulers dealing with Chronic Fatigue?
Support Group: Post-COVID Recovery & COVID-19
Posted: Feb 24 5:02pm
Hello @jacii, welcome to Mayo Clinic Connect. I noticed you also created another new discussion in...
https://connect.mayoclinic.org/comment/239836/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments — https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Discussion: Difficult case, several diagnosis, no solution yet
Support Group: Autoimmune Diseases
Posted: Mar 9, 2019