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699 total results
Comments (657)
My new neurologist just prescribed Gabapentin but I refused to take it. I’ve been on Low...
https://connect.mayoclinic.org/comment/1348112/
LDN has worked well for me with all ... I also have severe ME/CFS and fibromyalgia ... Gabapention would be a disaster for me ... It took me 2 years to wean off Xanax
Discussion: Gabapentin - being linked to increased risk of dementia
Support Group: Neuropathy
Posted: Jul 14, 2025
Yes. I have these. As far as I can tell these are caused my microclots that...
https://connect.mayoclinic.org/comment/794744/
Long-COVID parallels and seems identical to ME ... /CFS. ... Teitelbaum had recovered around 3,000 ME ... and get folks out of Long-COVID and ME ... /CFS.
Discussion: Long haul Covid tremors and muscle spasms
Support Group: Post-COVID Recovery & COVID-19
Posted: Jan 10, 2023
Hello after an illness (upper respiratory) I developed an autoimmune disease for which I am seronegative....
https://connect.mayoclinic.org/comment/727801/
Mayo was a very important visit for me ... finally found out what was wrong with me ... ME/CFS, sleep apnea, autoimmune diseases
Discussion: Difficult case, several diagnosis, no solution yet
Support Group: Autoimmune Diseases
Posted: Jul 17, 2022
@lauracbaker Your suggestion is not offensive at all! I am a person diagnosed with me/cfs, fibromyalgia,...
https://connect.mayoclinic.org/comment/1433768/
I am a person diagnosed with me/cfs, ... There are MANY reasons for me to increase ... trigger a flare up that will land me
Discussion: What is the first line of defense when gastroparesis gets worse?
Support Group: Digestive Health
Posted: Nov 8, 2025
Gosh, I sure hope you do. Good to hear that other symptomes hve gone. There is...
https://connect.mayoclinic.org/comment/801450/
been used in many diseases, including ME ... /CFS155, and has also shown promise ... shown to reduce autoantibodies in ME ... /CFS161. ... /CFS literature -Prófa A small
Discussion: How long have you had post-covid?
Support Group: Post-COVID Recovery & COVID-19
Posted: Jan 25, 2023
@ arcuri24 I have been on low dose naltrexone (3mg) for 10 years. It does wonders...
https://connect.mayoclinic.org/comment/1361630/
pain but the pain associated with ME ... /CFS and fibromyalgia. ... have any pain, but that the LDN keeps me
Discussion: Has anyone found a treatment that helps with peripheral neuropathy?
Support Group: Neuropathy
Posted: Aug 1, 2025
ME and CFS are considered by some scientists to be autoimmune conditions triggered by a viral...
https://connect.mayoclinic.org/comment/706598/
ME and CFS are considered by some scientists ... Autoimmune wellness Stories of Recovery ME ... CFS (or spell out those conditions.
Discussion: Have Had Mono-Like/CFS Symptoms for 15 Months: Need Help
Support Group: Infectious Diseases
Posted: May 9, 2022
Hello @chistiania, There are some discussions that you might find helpful learning more about the risks...
https://connect.mayoclinic.org/comment/774808/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments: https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Discussion: The Chat Room: A place to talk about this and that
Support Group: Just Want to Talk
Posted: Nov 18, 2022
I am now on sirolimus, generic for Rapamycin, which is used off-label for ME/CFS, but is...
https://connect.mayoclinic.org/comment/948274/
Rapamycin, which is used off-label for ME ... /CFS, but is actually a drug for anti-rejection ... Health Rising blog about a dr with ME ... /CFS who was sick with it for 10 years
Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
Support Group: Just Want to Talk
Posted: Oct 15, 2023
There are many ways to mitigate the suffering we are experiencing however, to my knowledge, there...
https://connect.mayoclinic.org/comment/183100/
your condition, knowledgable about ME ... /CFS? ... that not one of them was able to give me ... each of them what best worked for me ... /CFS.
Discussion: Post Interferon Syndrome
Support Group: Infectious Diseases
Posted: Feb 20, 2020
All that you say is true and I've experienced it all over the years. I am...
https://connect.mayoclinic.org/comment/1398813/
patient who they'd diagnosed with ME ... /CFS (Myalgic Encephalomyilits/Chronic ... It frustrated me to hear that, thinking ... why didn't you say something to me ... My issue had also been called ME/CFS
Discussion: Keytruda & Fatigue: What helps decrease fatigue?
Support Group: Lung Cancer
Posted: Sep 22, 2025