Undiagnosed chronic fatigue in teen

Posted by abrown2 @abrown2, Jul 8, 2021

I am new to this forum and reaching out for my 16 year old son. He has had a lifetime of GI issues that nobody could figure out and now going on two years of chronic fatigue and brain fog. He has been tested for loads of things, but it always comes up in the normal range. Yes, POTS has been mentioned, but no official diagnoses. he has been tested for Lyme's and celiac several times. No pain is involved as some others have shared, but a constant feeling of utter exhaustion. This normally active kid is sidelined by feeling so crummy everyday. Any help would be appreciated.

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Hi @abrown2, I hope that you saw the post that @johnbishop wrote to you in another discussion here: https://connect.mayoclinic.org/comment/611717/

You might find this article useful
Chronic Fatigue Syndrome (for Teens) – Nemours KidsHealth: https://kidshealth.org/en/teens/cfs.html

I know that you and your son have seen many doctors for everything and then some. Has this included a large teaching medical center where the doctors of different specialties worked together?


I hope by now your son might have been successfully diagnosed. If not, I wonder if he has had a blood test to determine his vitamin D levels and to test for Thallasemia Trait?


she has not ben tested for Thallasemia


Ugg I'm so sorry to hear that. It's painful to watch your kid be so uncomfortable and miss out. My daughter 11 , has a chronic fatigue diagnosis. She just started an anti depressant because it was really getting her emotionally. She's tiny and has little appetite and can rarely do things with her friends. She's in bed sick a lot with exhaustion. She usually is stuck in bed for 3 days after too much activity. It's so hard. Support is needed and thanks for sharing your story

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