Epstein Barr Nuclear AG AB IGG result of over 600

Posted by lsh @lsh, May 3, 2020

Hello, I am searching for information and also input because of my hideously high lab results for EBNA Nuclear AB IGG. My result was given as over 600. The range is less than 18 is negative. Over 22 is positive. To restate, my lab result is over 600.

I am 52. I did have mono at age 11. For at least four years I have complained on numerous times to my PCP of fatigue. We suspected thyroid but that has been treated and I still have suffered from bouts of fatigue, feeling like I was coming down with a bug, dizziness, etc for 3 or 4 days out of just about every month for the last eighteen months. I finally saw a naturopath who tested me for EBV.

I love my Naturopath, but I am wondering if I should be seeing a specialist because of this high lab result.
I am on a treatment plan of antiviral supplements, and immune supporting vitamins and supplements which she said will probably need to be taken for at least three months.

Has anyone else had numbers this high? I am having trouble finding much information on reactivated EBV.

Thank you!
Lisa

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Lisa,
Sorry to hear you also are afflicted with this virus. My AB IGG numbers have gone up in the 700s and now in the 500s. I don’t feel much better in the lower numbers. I was first tested three years ago. I don’t go by my numbers. Some days I have energy then others and some days I just want to stay in bed. With the Covid-19 virus around, I don’t dare go out where others are. Not sure I could recover from another virus.

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Thank you for taking the time to respond. May I ask what your doctors have told you about numbers this high? Does this mean it's chronic?

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My doctors didn’t explain why the numbers were so high. My other tests were all negative so I’m not even sure myself what that tells me. My doctors aren’t that knowledgeable I learned more from reading about EBV on my own and belonging to a EBV Facebook group. I find this very informative.

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Hello, I just found this post and am having similar issues. Also the same age as original poster. I am seeking advice, because I was in grad school 8 years ago when the school mandated a MMR booster and I got sick about 6 weeks later with a mono-like reaction which unfortunately has never gone away. I have been to PCP, rheum, and latest endocrinology. Get monitored every 3 months. So my latest results have the exact same EB >600; as an aside prior to the MMR my rubeola abs were over 300 which was also the ceiling for the test, normal value was 30 or under. Told me to just get it anyway.

Additionally, I have positive ANA, 'weak positive' sjogrens/lupus/RA antibodies and some fairly significant nucleolar patterns, plus the >300 measles and >600 EB. My main issues are joint pain, fatigue and muscle weakness. I need to sleep over 12 hours per day and can barely hold down a part time job which feels like a full time job. At first I was hoping I'd get better but after 8 years of basically feeling extremely tired I'm very discouraged. I hope the lisa who posted in 2020 and all the respondents are doing well. best wishes to all.

Lisa

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@lisa191

Hello, I just found this post and am having similar issues. Also the same age as original poster. I am seeking advice, because I was in grad school 8 years ago when the school mandated a MMR booster and I got sick about 6 weeks later with a mono-like reaction which unfortunately has never gone away. I have been to PCP, rheum, and latest endocrinology. Get monitored every 3 months. So my latest results have the exact same EB >600; as an aside prior to the MMR my rubeola abs were over 300 which was also the ceiling for the test, normal value was 30 or under. Told me to just get it anyway.

Additionally, I have positive ANA, 'weak positive' sjogrens/lupus/RA antibodies and some fairly significant nucleolar patterns, plus the >300 measles and >600 EB. My main issues are joint pain, fatigue and muscle weakness. I need to sleep over 12 hours per day and can barely hold down a part time job which feels like a full time job. At first I was hoping I'd get better but after 8 years of basically feeling extremely tired I'm very discouraged. I hope the lisa who posted in 2020 and all the respondents are doing well. best wishes to all.

Lisa

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hello lisa,
your test results and symptoms reflect what my wife and i have suffered from for many years. American medicine has ignored it, and the only country paying any attention is the united kingdom. go to a British medical site and put in your search, ME/CFS. hopefully, you do not have it .God bless
patrick & elizabeth

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@pflmckenna

hello lisa,
your test results and symptoms reflect what my wife and i have suffered from for many years. American medicine has ignored it, and the only country paying any attention is the united kingdom. go to a British medical site and put in your search, ME/CFS. hopefully, you do not have it .God bless
patrick & elizabeth

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Thank you for your reply! I'm due to visit Rheum next week and will try to research beforehand. I'm very sorry you and your wife have been ill with this condition for so long. I wonder if it is possible for a US citizen to participate in medical research abroad because I'm really very frustrated with my lack of results and that this has dragged on for so long already. It seems as though the majority of doctors I have spoken to act as though this has been happening to me all along and there has been no change of quality of life etc, and it makes me feel basically crazy. So I thank you again for validating my concerns.

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@pflmckenna

hello lisa,
your test results and symptoms reflect what my wife and i have suffered from for many years. American medicine has ignored it, and the only country paying any attention is the united kingdom. go to a British medical site and put in your search, ME/CFS. hopefully, you do not have it .God bless
patrick & elizabeth

Jump to this post

You may have just helped out more than you know, been struggling with these symptoms far too long, no one could explain what's going on. My IgG was also over 600 but according to the doctors there were "several possible causes" and no one will address them. This sure sheds light on it, thank you!

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Hi Lisa,
I know this is an old post. I struggle with swollen glands every few months and fatigue. My result came back the same as yours- higher than 600. Did you ever get more understanding or find help?

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I am doing online research and just found these posts as well! I also have > 600 ebv IgG and don’t have a clue as to why. I never had mono! But I am always tired and get sore throats and cold sores every time I get sick. Trying to build my immune system don’t know what else to do n

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The Medical Medium book is interesting and he talks about mono & ebv…he's not a doctor though.

His book is spiritual but really interesting…even if you don't believe.

I have that 600 number too for the EBV Ab VCA, IgG and his thoughts have helped me.

I'm struggling with the after affects of rocky mountain spotted fever though & trying to find answers myself.

I'm no longer on lyrica for a bad case of fibromyalgia. I believe it's very rare to beat it…but I did…but it's back now because of rocky mountain in my opinion.

He mentions many times that he's not a Dr. though and says to consult a physician when changing your diet or adding a vitamin.

I'm just trying help…I don't want to get sued…make your own decision.

Good luck,
crowc

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Greetings from Texas!

After I received an EPV IGG result of 750 today, my husband found YOU!!! I could not be more grateful. Dr. Google, through no fault of his own, happened to catch my eye with an article (first in a new career of research) that this result indicates chronic EBVc and that it is fatal.

'Scuse my language, but…wtf?!?!?!?!?!?!?? My husband is having g a lung biopsy Wednesday and we anticipate removal — malignant or benign — shortly after. A Saturday result like this has me in something of a panic…am I highly contagious? Am I posing a risk to my husband? Is this really THE indicator for chronic EBV?

All of my symptoms fit the bill to the letter. Had this a year ago, but never sought treatment as I was convinced it was depression.

I have great medical care and access to medical answers – so thankful! But assuming this is not a lab mistake, my octopus brain (the amygdala-driven monster!!) Is wondering how it is possible to actually LIVE LIFE with this continual exhaustion and weakness. HOW????

For once I am thankful for Texas heat (high 90s and heat alerts about six weeks early), since my reaction to it drove me.to the doctor. Better to have clarity and truth, rather than continuing to assume I really had covid with a slow recovery. This would seem to be a very different animal.

Blessings to each and every one of you dealing with this. It feels like a well-kept secret, so your "fellowship" and positive exchanges are truly making a difference.

Thanks for any thoughts you wish to share.

Nela/texgarden

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Also have extremely high Epstein Barr titer. Have had it for 30 years. After all sorts of tests and trips to doctors,
the differential diagnosis is Chronic Fatigue Syndrome or ME/CFS as it's now known. New name, no known cure.
Aches, pains, foggy brain galore. Have never been told I'm contagious. However, I don't kiss or hug friends and
stay far away from newborns. Have visited experts in the field, virologists, rhumatologists, neurologists. Afraid no one has an answer so I sympathize with you. Wish someone could find some
treatment to do. One thing I have learned is not to knock myself out. I have a two hour bank of energy and that's it.This goes for exercise, too. Find out what you can tolerate. I learned if I pushed myself, I paid. Some people do
recover. Some don't. Good luck to both you and your spouse.

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