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Comments (2,482)

I am reporting back after my Dr's appointment yesterday. This Dr is new to me and...

https://connect.mayoclinic.org/comment/275029/

the blood tests are for the Discoid Lupus

Discussion: Scalp and hair problems possibly from discoid lupus

Support Group: Autoimmune Diseases

Posted: Sep 17, 2019

I'm so sorry to hear of your continued battle with the evil EBV virus. As for...

https://connect.mayoclinic.org/comment/183976/

life after years of mis-diagnosis (lupus

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Sep 24, 2018

I had my last colonoscopy a 2-3 years ago and told my GI I was having...

https://connect.mayoclinic.org/comment/865038/

Lupus and Sjogrens have helped themself

Discussion: Living with diverticulitis

Support Group: Digestive Health

Posted: May 23, 2023

Have you been tested for Celiac Disease? I had suffered for 12 years with bouts of...

https://connect.mayoclinic.org/comment/1092804/

rheumatologist who tested me for Lyme, MS, Lupus

Discussion: Sedimentación Rate elevated, Proteína C Reactive elevated for 3 years

Support Group: Autoimmune Diseases

Posted: Jun 23, 2024

Your history is quite interesting and a lot of puzzle pieces might fit. I would bet...

https://connect.mayoclinic.org/comment/1152710/

I I have chronic EBV, lupus, RA, PN

Discussion: Illusive Diagnosis, Pain Increasing

Support Group: Bones, Joints & Muscles

Posted: Oct 6, 2024

I've been suffering with this thing popping out on the left side of my throat for...

https://connect.mayoclinic.org/comment/1042359/

have hypermobility Fibromyalgia Lupus

Discussion: Something in my neck is popping out of place

Support Group: Ear, Nose & Throat (ENT)

Posted: Mar 29, 2024

Have you explored autoimmune conditions (antibody tests) through a rheumatologist to make sure your long Covid...

https://connect.mayoclinic.org/comment/995682/

I developed the lupus anticoagulant

Discussion: Anyone think that it’s no longer long Covid? just permanent damage?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 11, 2024

I had "focal" lymphovascular invasion and one report specified lymph vessels. Grade 3, highish ki67%, but...

https://connect.mayoclinic.org/comment/797482/

were risks to it for lungs and with lupus

Discussion: Lymphovascular invasion

Support Group: Breast Cancer

Posted: Jan 16, 2023

Hi I suffered from severe hives from 19 to early 40s when i tested for hashimotos....

https://connect.mayoclinic.org/comment/609577/

Now i have lupus-like CKD.

Discussion: Sjogren's, Hashimoto's and Thyroid Dysfunction: Got questions

Support Group: Autoimmune Diseases

Posted: Jun 17, 2021

I absolutely did. I spent the entire month of February in Rochester & after countless testing,...

https://connect.mayoclinic.org/comment/50601/

I am also a lupus patient on Plaquenil

Discussion: Cerebral venous sinus thrombosis (cvst)

Support Group: Stroke & Cerebrovascular Diseases

Posted: Apr 8, 2020

Hi. I have Fibro, RA, Sjogren's, spinal stenosis, depression and now Lupus. I use Trazadone to...

https://connect.mayoclinic.org/comment/118788/

spinal stenosis, depression and now Lupus

Discussion: Fibromyalgia pain: Let's connect

Support Group: Fibromyalgia

Posted: Jul 3, 2017

4 days after getting the vaccine I became suddenly ill. Lost vision in my left eye...

https://connect.mayoclinic.org/comment/1269745/

have also now been recently dx with Lupus ... I had also tested positive for Lupus ... I found out in January 2025 I have Lupus

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 30 2:39am

Well ladies, add me to the group of ANA anomalies. I’m 61, I’ve been on prednisone...

https://connect.mayoclinic.org/comment/1336067/

She said, “I think you have Lupus, and

Discussion: ANA test follow up results - anyone else experience this

Support Group: Autoimmune Diseases

Posted: Jun 27 5:48am

It all started with dizziness about 10 years ago. I went to a Neurologist first to...

https://connect.mayoclinic.org/comment/225321/

lot of autoimmune diseases but SLE Lupus ... suggest I get done to rule out MS and Lupus

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Dec 17, 2019

@jrp11948 and @321design -- good morning -- may I ask - are you in a Groundhog...

https://connect.mayoclinic.org/comment/1054148/

but today is the standard drug in lupus

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 20, 2024

George1969, On my knees praying for you right now. God Bless You. I have a lot...

https://connect.mayoclinic.org/comment/972543/

cannot give me a definite diagnosis of Lupus

Discussion: Lack of diagnosis

Support Group: Just Want to Talk

Posted: Nov 29, 2023

Hello @mnina, It's great your taking care of your husband. My better half, Jo was getting...

https://connect.mayoclinic.org/comment/185736/

She has had Lupus for about 20 years

Discussion: Struggling To Care for COPD Patient

Support Group: Caregivers

Posted: Feb 19, 2018

Hello, new here! Hope to make some friends. When I talk to my family( I have...

https://connect.mayoclinic.org/comment/96122/

chronic pain brought on by ms and lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Aug 31, 2017

Hi Missey, I have: Encephalitis Rheumatoid Arthritis Sjogren’s Syndrome Lupus Hashimoto’s CVID Per literature, significant flares...

https://connect.mayoclinic.org/comment/1293358/

Rheumatoid Arthritis Sjogren’s Syndrome Lupus

Discussion: Prolia dangers for those with autoimmune disease

Support Group: Bones, Joints & Muscles

Posted: Apr 30 9:45am

To be sure, autoimmune diseases can be the cause of so many unique symptoms and often...

https://connect.mayoclinic.org/comment/1129026/

have you had besides checking for lupus

Discussion: Dr suspects lymphoma but labs aren't abnormal enough yet

Support Group: Blood Cancers & Disorders

Posted: Aug 22, 2024