Illusive Diagnosis, Pain Increasing
I visited Mayo in Rochester this past Fall and was diagnosed with small and large fiber peripheral neuropathy. However, the neurologist said what I am experiencing could not all be explained by that diagnosis. He felt there was a skeletal muscular component, as well. The doctor who took me into the clinic felt I could find the answers at home and no longer needed Mayo. I have since gotten some additional diagnosis. The foot and ankle doc did some tapping and mentioned tarsal tunnel syndrome. He later said it is not ordinary TTS as my symptoms are more widespread. He also suspects there may be some mild CRPS in the left foot (everything is worse on the left than the right). He put me in an ankle brace until we can learn more and the brace has been very effective. It has confirmed my suspicion that ankle movement triggers many of my foot symptoms. In the meantime, I am noticing increasing pain in my other joints. My shoulder pain is uncomfortable enough that I have an appt to see my GP tomorrow to make sure I didn’t knock it partway out of its socket. I spent last year going from doctor to doctor, feeling like I am crazy. Now that I am finally starting to put together pieces of the puzzle I am nervous about adding more symptoms/information to the list of my complaints. I am worried that I will be seen as attention seeking or a hypochondriac We know there is odd nerve stuff going on but with the increased joint pain, I feel there is more to the story. The phrase muscular skeletal is thrown around often but no official diagnosis . . . yet. Anyone else dealing with an overlap of neurological and muscular skeletal issues? I am not looking to replace my doctors. Just want to feel less “crazy”.