Connect
Public Support Group 625 total results
Discussions (40)
How do I find an EBV Specialist
How can I find an EBV specialist in my area? I’m 54 and was diagnosed with chronic EBV, lupus and mixed connective tissue disease 10...
Treatment for chronic Epstein-Barr virus (EBV)
My son has been suffering with Epstein-Barr virus (EBV) for over a year. I have taken him to an immunologist and infectious disease doctor with...
EBV-Reactivation/Chronic? What does normal look like anymore?
I turn 48 next Wednesday and I am not living my best life. I am someone that tested positive for mono back in middle school,...
I think my 29 y/o Son has Chronic EBV
I’m trying to help my Son, who at 25 y/o was diagnosed with a Splenic Mass occupying 2/3s of his Spleen. An Oncology Surgeon stated...
how do you deal with the fear and frustration as months of ebv go by?
I am 70 and tested positive for EBv antibodies including IGM while my DO was trying to find cause of high fatigue. T 7 months...
EBV Labs. Am I contagious, are results serious or am I crazy?
Hi everyone, I consulted with Functional Medicine NP because I’ve been sick for over 3 years and PCP has been no help. NP tested me...
EBV in dormant stage, can it still wreak havoc on our body?
https://connect.mayoclinic.org/discussion/ebv-in-dormant-stage-can-it-still-wreak-havoc-on-our-body/
I have been dealing with EBV for the past 5 years (almost 21 now) and had constant bouts of fatigue and sore throat. July 2021...
I’ve had mono/EBV since 2005. In the last 2 years it’s reactivated 4x
I’m 33 year old woman. I had my first encounter in 2005 with mono, then relapsed a few weeks after I returned back to school...
Anyone diagnosed with Epstein-Barr virus infection later in life?
56 yrs old diagnosed with a current (new) EBVI was recently hospitalized with sepsis and pneumonia, and during my hospitalization I was tested for EBV....
Please help interpret results
CURRENTOVER TIME EBV VIRAL CAPSID AG (VCA) AB (IGM) <36.00 U/mL U/mL Interpretation ---- -------------- <36.00 Negative ... Show More EBV VIRAL CAPSID AG (VCA)...
Has anyone used Monolaurin for Epstein Barre Virus?
Have any of you used monolaurin for EBV? And if you found it effective, could you let me know what supplement brand you used? Thanks!
I’m in Daytona Beach FL area looking for specialist
Diagnosed with Reoccurring EBV, May 2022. (Based on EBV VIRAL CAPSID AG (VCA) AB (IGG) blood test results)I asked PCP to run newer tests that...
Have Had Mono-Like/CFS Symptoms for 15 Months: Need Help
https://connect.mayoclinic.org/discussion/have-had-mono-likecfs-symtpoms-for-15-months-with-no-help/
I'm looking for a specialist to help me with this and the only institution that seems to acknowledge it has been Mayo. The only somewhat...
I’ve been sick over 2 month.
I’ve been sick for over two months with er dr saying I have Lyme disease. Went to see infectious disease specialist last week . Did...
8 months in and no relief
I feel like a hot mess of medical issues. 10 yr Chromophobe renal cell carcinoma survivor. Shortly after that, I was exhausted 24/7 and had...
I have elevated Epstein-Barr virus. What proven treatments help?
I am a VERY active older adult and was blindsided by EBV about 6 months ago. Symptoms include fatigue, weight gain, limited concentration, depression and...
Epstein Barr Nuclear AG AB IGG result of over 600
Hello, I am searching for information and also input because of my hideously high lab results for EBNA Nuclear AB IGG. My result was given...
Whether or not to treat epstein barr symptoms
Hello, I am interested if anyone has perspectives to share on how to manage…. I am a 49 year old male who is in excellent...
Teen with weird mono...or not?
My 16 year old son started to feel weak a few weeks ago. So weak, he could not get out of the bed. He also...
Viral or bacterial maybe?
I have to say, for long post I need to cut the story and part of it write in comments section. And sorry for profanity...
Connect