Whether or not to treat epstein barr symptoms
Hello, I am interested if anyone has perspectives to share on how to manage…. I am a 49 year old male who is in excellent shape and started experiencing extreme fatigue 7 months ago, after a terrible cold that lasted a month. In addition to the fatigue I was having asthma like symptoms, chest pressure, pounding heart feeling and mental fog/clarity/confusion issues. A round of oral steriods knocked the symptoms out but they quickly returned once off the prednisone. Specialist visits, blood tests, tests, MRIs etc let me know what I didnt have (no cardiac issues, no asthma, no MS, etc), but no clarity on what was happening. Finally, 3 months in, in my third round of blood work I tested positive for active EBV infection (it didnt show up in the prior 2 tests but my PCP that EBV could be the cause so he kept retesting). I have found that Symbicort, which I was given early on for the potential asthma, makes my symptoms much more manageable. I am still extremely fatigued, requiring 9+ hours of sleep plus a 30-90 minute nap everyday between 2-5pm, depending on my level of activity (I know its time to sleep as my head “buzzes” and I get a sore throat), but I can work at my job, live life and do some level of light excercise-swimming for 15 mins, occasionally. Without the Symbicort I am non-functioning, unable to work / live daily life due to lack of mental sharpness and other symptoms. PCP says the small amount of steroids in Symbicort may be helping me address the inflammation and associated symptoms. I am concerned that by masking the symptoms I may be pushing myself too much, postponing actually getting better but I’m concerned about losing job, being non-functioning for my wife/kids if I just go off of it. Even missing one dose creates a dead zone in my day. I have adjusted my diet (no alcohol, caffeine, eggs, daily, gluten) to try to improve immune system etc but curious if others have better ideas given the circumstances. PCP says to just wait it out and should be gone after 12 months. Thanks for any thoughts.