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Hypertrophic Cardiomyopathy (HCM) Support Group

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Discussion
Patient Intro-Camzyos
Hi, I’m a 65 yo woman who was diagnosed with HOCM in summer of2024. My brother was diagnosed over 20 years ago and had alcohol...
Last active: Nov 9, 2025
Discussion
camzyos side effect?
My wife has been on camzyos for about 6 months now. She has one possible side effect, or not! Every time after she eats anything,...
Last active: Jun 3 8:38pm
Discussion
Camzyos and heart murmur
I have been on Camzyos for 7 months and it took me almost 5 months to really feel the benefit, despite the fact that my...
Last active: Aug 7, 2025
Discussion
Camzyos thoughts? Good or bad
Camzyos has been offered as a treatment for my HCM. Those that have tried or are taking this medication, what are you thoughts? Can you...
Last active: Jun 24 8:22pm
Discussion
Camzyos vs. Surgery
Hi, everyone. I had a follow up appointment at a COE this week and am going to enroll in the Camzyos program. My stress echo...
Last active: Feb 7 8:12am
Discussion
Infections while on Camzyos?
Has anyone on Camzyos had repeated UTI infections? Thank you
Last active: Dec 29, 2025
Discussion
Camzyos mg increase
Im a 58 yr old female. I've been on camzyos 5 mg for over a yr. I've been feeling pretty good although I still feel...
Last active: May 14 1:12pm
Discussion
HOCM & 8th month on Camzyos...how long will Camzyos work?
My HOCM became obstructive at the beginning of 2025. Started Camzyos shortly after. Now 8 months on it. Whenever I have stress, chest aches. Working...
Last active: Dec 13, 2025
Discussion
Camzyos and Covid Vaccines/Boosters
Has anyone had a covid booster since they started camzyos and had any unusual reactions? I started camzyos almost 2 months ago and several days...
Last active: Apr 25, 2025
Discussion
Camzyos side effect of itchiness?
Has anyone experienced itchiness after starting Camzyos? I have. I started Camzyos one week ago on a Monday. On Thursday, I had itchiness around most...
Last active: Mar 26, 2025