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Hypertrophic Cardiomyopathy (HCM) Support Group

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Discussion
Increased dose of Camzyos
Recently (10 days ago) started an increased (doubled from 5 mg to 10 mg) dose of Camzyos and wondering if my energy might improve…hopeful…
Last active: Jun 25, 2025
Discussion
Symptoms getting worse on Camzyos
Diagnosed with symptomatic OHCM early January. After trying Metoprolol and Verapamil with horrible side effects, I started Camzyos one month ago. Initially I felt the...
Last active: 7 hours ago
Discussion
Camzyos mg increase
Im a 58 yr old female. I've been on camzyos 5 mg for over a yr. I've been feeling pretty good although I still feel...
Last active: May 30, 2025
Discussion
Infections while on Camzyos?
Has anyone on Camzyos had repeated UTI infections? Thank you
Last active: Dec 29, 2025
Discussion
HOCM & 8th month on Camzyos...how long will Camzyos work?
My HOCM became obstructive at the beginning of 2025. Started Camzyos shortly after. Now 8 months on it. Whenever I have stress, chest aches. Working...
Last active: Dec 13, 2025
Discussion
Camzyos and Covid Vaccines/Boosters
Has anyone had a covid booster since they started camzyos and had any unusual reactions? I started camzyos almost 2 months ago and several days...
Last active: Apr 25, 2025
Discussion
Camzyos side effect of itchiness?
Has anyone experienced itchiness after starting Camzyos? I have. I started Camzyos one week ago on a Monday. On Thursday, I had itchiness around most...
Last active: Mar 26, 2025
Discussion
Why Camzyos instead of surgery?
I am just curious - once HOCM is diagnosed, why is Camzyos recommended instead of other treatments - like myectomy? (is that what once treated...
Last active: Jan 16, 2025
Discussion
Effects after stopping Camzyos
Has anyone taken Camzyos for months then stopped? Did you experience any effects of stopping it suddenly. I just stopped it last week and am...
Last active: Feb 18 7:40am
Discussion
UTI after starting Camzyos?
I have only in my life had a UTI once 40 years ago, as soon as I started Camzyos I got a UTI... coincidence?
Last active: Dec 18, 2025