1. < Hypertrophic Cardiomyopathy (HCM)
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camzyos side effect?

Posted by ptmaxi @ptmaxi, 3 days ago

My wife has been on camzyos for about 6 months now. She has one
possible side effect, or not! Every time after she eats anything, she gets nauseous and stay that way for many hours. She only eats a little for
breakfast and a little for lunch. She doesn't eat dinner ever so that
at least she doesn't usually still feel nauseous by the time she goes to
bed. There has been no confirmed diagnosis of the cause of this
nausea as of yet. Stomach doctors have tried various safe meds but
nothing has stopped the nausea. Thank you so much. Help if you can please.......................

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christine270 | @christine270 | 2 days ago

Hi there...I started Camzyos in Oct 2025 and had an upset stomach after breakfast (somewhat nauseous but mostly indigestion followed by bouts of diarrhea through out the day). Tried to eat a bit of lunch and mostly skipped dinner...I just wanted to try to settle my stomach. This continued for four months then started to taper off in February. It became my "new normal"...I lost ten pounds and didn't have much energy especially from around 2 pm until bedtime. The indigestion has all but disappeared. I eat three small meals a day, a snack if I feel hungry in between meals and a bedtime tea & toast. I don't know if time and adjustment to the med was the answer for me... Still careful not to over eat and also mindful of foods that trigger an upset. Citrus fruit especially oranges seemed to create upset...Looking back I probably should have called my doc but I just hoped that each day would get better. Hope your wife finds some relief...all the best, Christine

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doctorboo1 | @doctorboo1 | 2 days ago

I don't know if my experience is helpful but I'll share. I have had basically chronic indigestion for some weeks prior to my diagnosis with flashes of nausea that I could get of sometimes by relieving gas. After starting Camzyos the condition persisted so I started taking over the counter pro and prebiotic gummies. Just a combo from Walmart. It has almost completely stopped the issue which totally surprised me. It may be worth a try. I suppose the problem could be related to either the drug or the HCM itself, but it has helped. Good luck.

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2 replies
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ptmaxi | @ptmaxi | 2 days ago
In reply to @doctorboo1 "I don't know if my experience is helpful but I'll share. I have had basically chronic..." + (show)
Profile picture for doctorboo1 @doctorboo1

I don't know if my experience is helpful but I'll share. I have had basically chronic indigestion for some weeks prior to my diagnosis with flashes of nausea that I could get of sometimes by relieving gas. After starting Camzyos the condition persisted so I started taking over the counter pro and prebiotic gummies. Just a combo from Walmart. It has almost completely stopped the issue which totally surprised me. It may be worth a try. I suppose the problem could be related to either the drug or the HCM itself, but it has helped. Good luck.

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@doctorboo1

Thank you so much. Very kind of you. God bless you............

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ptmaxi | @ptmaxi | 2 days ago
In reply to @christine270 "Hi there...I started Camzyos in Oct 2025 and had an upset stomach after breakfast (somewhat nauseous..." + (show)
Profile picture for christine270 @christine270

Hi there...I started Camzyos in Oct 2025 and had an upset stomach after breakfast (somewhat nauseous but mostly indigestion followed by bouts of diarrhea through out the day). Tried to eat a bit of lunch and mostly skipped dinner...I just wanted to try to settle my stomach. This continued for four months then started to taper off in February. It became my "new normal"...I lost ten pounds and didn't have much energy especially from around 2 pm until bedtime. The indigestion has all but disappeared. I eat three small meals a day, a snack if I feel hungry in between meals and a bedtime tea & toast. I don't know if time and adjustment to the med was the answer for me... Still careful not to over eat and also mindful of foods that trigger an upset. Citrus fruit especially oranges seemed to create upset...Looking back I probably should have called my doc but I just hoped that each day would get better. Hope your wife finds some relief...all the best, Christine

Jump to this post

@christine270
Thank you so much!
god bless you..............

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1 reply
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christine270 | @christine270 | 2 days ago
In reply to @doctorboo1 "I don't know if my experience is helpful but I'll share. I have had basically chronic..." + (show)
Profile picture for doctorboo1 @doctorboo1

I don't know if my experience is helpful but I'll share. I have had basically chronic indigestion for some weeks prior to my diagnosis with flashes of nausea that I could get of sometimes by relieving gas. After starting Camzyos the condition persisted so I started taking over the counter pro and prebiotic gummies. Just a combo from Walmart. It has almost completely stopped the issue which totally surprised me. It may be worth a try. I suppose the problem could be related to either the drug or the HCM itself, but it has helped. Good luck.

Jump to this post

@doctorboo1 Thank you...every time I see the commercials for pre and pro biotics I wonder if I should give it a try...Glad it worked well for you and so quickly...Blessings to you as well!

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christine270 | @christine270 | 2 days ago
In reply to @ptmaxi "@christine270 Thank you so much! god bless you.............." + (show)
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@christine270
Thank you so much!
god bless you..............

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@ptmaxi

Blessings to you as well...Hope you are doing well! Christine

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