Hypertrophic Cardiomyopathy (HCM) Support Group

Just started taking camzyos. Anyone noticed mood issues?

I’ve developed tingling in my feet, no swelling. Been on Camzyos 8 months. Also on Metoprolol Succinate ER for a year. anyone else experiencing this?...

Anyone have headaches on Camzyos? On it for 2 weeks and am having pretty bad headaches daily. My blood pressure is also going up and...

I was lucky enough to be accepted in the BMS Cover My Meds program for the last year. I’m not sure if I’ll meet the...

I'm starting 5 mg of camzyos on Saturday and I'm really nervous about the side effects. I have other health issues as well and I...

Hello, Is anyone experiencing daily dizziness from Camzyos? My heart is better from the drug but I am dizzy most days. Just wanting to see...

Hi. Does anyone know if an SSRI like Zoloft can be taken safely with Camzyos? Have you experienced any side effects of this combination? The...

I’ve been taking Camzyos since 7/26/23. I have had 4 consecutive nights that I cannot sleep. I usually sleep very well. Has anyone else dealt...

I have been treating HoCM with Verapamil for years and lately it has taken a nose dive. My cardiologist has previously sent me to Anschutz...

Recently (10 days ago) started an increased (doubled from 5 mg to 10 mg) dose of Camzyos and wondering if my energy might improve…hopeful…

Hi, I’m a 65 yo woman who was diagnosed with HOCM in summer of2024. My brother was diagnosed over 20 years ago and had alcohol...

My wife has been on camzyos for about 6 months now. She has one possible side effect, or not! Every time after she eats anything,...

I have been on Camzyos for 7 months and it took me almost 5 months to really feel the benefit, despite the fact that my...

Camzyos has been offered as a treatment for my HCM. Those that have tried or are taking this medication, what are you thoughts? Can you...

Hi, everyone. I had a follow up appointment at a COE this week and am going to enroll in the Camzyos program. My stress echo...

Has anyone on Camzyos had repeated UTI infections? Thank you

Im a 58 yr old female. I've been on camzyos 5 mg for over a yr. I've been feeling pretty good although I still feel...

My HOCM became obstructive at the beginning of 2025. Started Camzyos shortly after. Now 8 months on it. Whenever I have stress, chest aches. Working...

Has anyone had a covid booster since they started camzyos and had any unusual reactions? I started camzyos almost 2 months ago and several days...

Has anyone experienced itchiness after starting Camzyos? I have. I started Camzyos one week ago on a Monday. On Thursday, I had itchiness around most...