Hypertrophic Cardiomyopathy (HCM) Support Group

Hello, Is anyone experiencing daily dizziness from Camzyos? My heart is better from the drug but I am dizzy most days. Just wanting to see...

I'm starting 5 mg of camzyos on Saturday and I'm really nervous about the side effects. I have other health issues as well and I...

I’ve developed tingling in my feet, no swelling. Been on Camzyos 8 months. Also on Metoprolol Succinate ER for a year. anyone else experiencing this?...

I was lucky enough to be accepted in the BMS Cover My Meds program for the last year. I’m not sure if I’ll meet the...

Recently (10 days ago) started an increased (doubled from 5 mg to 10 mg) dose of Camzyos and wondering if my energy might improve…hopeful…

I’ve been taking Camzyos since 7/26/23. I have had 4 consecutive nights that I cannot sleep. I usually sleep very well. Has anyone else dealt...

Hi. Does anyone know if an SSRI like Zoloft can be taken safely with Camzyos? Have you experienced any side effects of this combination? The...

Hi, I’m a 65 yo woman who was diagnosed with HOCM in summer of2024. My brother was diagnosed over 20 years ago and had alcohol...

I have been on Camzyos for 7 months and it took me almost 5 months to really feel the benefit, despite the fact that my...

I have only in my life had a UTI once 40 years ago, as soon as I started Camzyos I got a UTI... coincidence?

My HOCM became obstructive at the beginning of 2025. Started Camzyos shortly after. Now 8 months on it. Whenever I have stress, chest aches. Working...

Has anyone on Camzyos had repeated UTI infections? Thank you

Im a 58 yr old female. I've been on camzyos 5 mg for over a yr. I've been feeling pretty good although I still feel...

I expect to travel to a tropical country in the next few weeks and wondering how best to store the Camzyos tablets. Read somewhere that...

I am taking Entresto for nonobstructive HCM, but its benefits/effects are rather subtle.... and I don't notice any side effects. However, it's expensive (along with...

Has anyone taken Camzyos for months then stopped? Did you experience any effects of stopping it suddenly. I just stopped it last week and am...

I am just curious - once HOCM is diagnosed, why is Camzyos recommended instead of other treatments - like myectomy? (is that what once treated...

Has anyone experienced itchiness after starting Camzyos? I have. I started Camzyos one week ago on a Monday. On Thursday, I had itchiness around most...

Has anyone had a covid booster since they started camzyos and had any unusual reactions? I started camzyos almost 2 months ago and several days...

Just starting 5mg. First day I got really woozy an hour after, stayed in and out of that for maybe 4-5 hours, but evening felt...