Hypertrophic Cardiomyopathy (HCM) Support Group

Just started taking camzyos. Anyone noticed mood issues?

I’ve developed tingling in my feet, no swelling. Been on Camzyos 8 months. Also on Metoprolol Succinate ER for a year. anyone else experiencing this?...

I’ve been taking Camzyos since 7/26/23. I have had 4 consecutive nights that I cannot sleep. I usually sleep very well. Has anyone else dealt...

Hello, Is anyone experiencing daily dizziness from Camzyos? My heart is better from the drug but I am dizzy most days. Just wanting to see...

I'm starting 5 mg of camzyos on Saturday and I'm really nervous about the side effects. I have other health issues as well and I...

I was lucky enough to be accepted in the BMS Cover My Meds program for the last year. I’m not sure if I’ll meet the...

Hi. Does anyone know if an SSRI like Zoloft can be taken safely with Camzyos? Have you experienced any side effects of this combination? The...

Hi, I’m a 65 yo woman who was diagnosed with HOCM in summer of2024. My brother was diagnosed over 20 years ago and had alcohol...

I have been on Camzyos for 7 months and it took me almost 5 months to really feel the benefit, despite the fact that my...

Hi, everyone. I had a follow up appointment at a COE this week and am going to enroll in the Camzyos program. My stress echo...

Recently (10 days ago) started an increased (doubled from 5 mg to 10 mg) dose of Camzyos and wondering if my energy might improve…hopeful…

Diagnosed with symptomatic OHCM early January. After trying Metoprolol and Verapamil with horrible side effects, I started Camzyos one month ago. Initially I felt the...

Im a 58 yr old female. I've been on camzyos 5 mg for over a yr. I've been feeling pretty good although I still feel...

Has anyone on Camzyos had repeated UTI infections? Thank you

My HOCM became obstructive at the beginning of 2025. Started Camzyos shortly after. Now 8 months on it. Whenever I have stress, chest aches. Working...

Has anyone had a covid booster since they started camzyos and had any unusual reactions? I started camzyos almost 2 months ago and several days...

Has anyone experienced itchiness after starting Camzyos? I have. I started Camzyos one week ago on a Monday. On Thursday, I had itchiness around most...

I am just curious - once HOCM is diagnosed, why is Camzyos recommended instead of other treatments - like myectomy? (is that what once treated...

Has anyone taken Camzyos for months then stopped? Did you experience any effects of stopping it suddenly. I just stopped it last week and am...

I have only in my life had a UTI once 40 years ago, as soon as I started Camzyos I got a UTI... coincidence?