Hypertrophic Cardiomyopathy (HCM) Support Group

Just started taking camzyos. Anyone noticed mood issues?

Anyone have headaches on Camzyos? On it for 2 weeks and am having pretty bad headaches daily. My blood pressure is also going up and...

I’ve developed tingling in my feet, no swelling. Been on Camzyos 8 months. Also on Metoprolol Succinate ER for a year. anyone else experiencing this?...

Hello, Is anyone experiencing daily dizziness from Camzyos? My heart is better from the drug but I am dizzy most days. Just wanting to see...

I have been treating HoCM with Verapamil for years and lately it has taken a nose dive. My cardiologist has previously sent me to Anschutz...

Hi. Does anyone know if an SSRI like Zoloft can be taken safely with Camzyos? Have you experienced any side effects of this combination? The...

I’ve been taking Camzyos since 7/26/23. I have had 4 consecutive nights that I cannot sleep. I usually sleep very well. Has anyone else dealt...

I was lucky enough to be accepted in the BMS Cover My Meds program for the last year. I’m not sure if I’ll meet the...

I'm starting 5 mg of camzyos on Saturday and I'm really nervous about the side effects. I have other health issues as well and I...

Recently (10 days ago) started an increased (doubled from 5 mg to 10 mg) dose of Camzyos and wondering if my energy might improve…hopeful…

Im a 58 yr old female. I've been on camzyos 5 mg for over a yr. I've been feeling pretty good although I still feel...

Hi, I’m a 65 yo woman who was diagnosed with HOCM in summer of2024. My brother was diagnosed over 20 years ago and had alcohol...

I have been on Camzyos for 7 months and it took me almost 5 months to really feel the benefit, despite the fact that my...

Hi, everyone. I had a follow up appointment at a COE this week and am going to enroll in the Camzyos program. My stress echo...

Has anyone on Camzyos had repeated UTI infections? Thank you

Diagnosed with symptomatic OHCM early January. After trying Metoprolol and Verapamil with horrible side effects, I started Camzyos one month ago. Initially I felt the...

Just started Camzyos (today is 4th day) and am having dizziness, low blood pressure and increased heart rate. Are these typical side effects? Hoping this...

My HOCM became obstructive at the beginning of 2025. Started Camzyos shortly after. Now 8 months on it. Whenever I have stress, chest aches. Working...

Has anyone had a covid booster since they started camzyos and had any unusual reactions? I started camzyos almost 2 months ago and several days...

Has anyone experienced itchiness after starting Camzyos? I have. I started Camzyos one week ago on a Monday. On Thursday, I had itchiness around most...