Hypertrophic Cardiomyopathy (HCM) Support Group

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I can’t comment on why your gradient might have increased but will share my experience. I’m...

https://connect.mayoclinic.org/comment/1307803/

Discussion: Camzyos mg increase

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 19, 2025

I know everyone experiences camzyos differently! There’s definitely more information coming out for people to view...

https://connect.mayoclinic.org/comment/1303421/

Discussion: Side Effects starting on Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 13, 2025

Susanml, How are your symptoms taking Diltiazen (Cardizem) and Candesartan? My doc is wanting to put...

https://connect.mayoclinic.org/comment/1300494/

Discussion: Diltiazem

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 9, 2025

Hello there @par4rosy, and WELCOME to Mayo Connect!! I'm so glad you are here and that...

https://connect.mayoclinic.org/comment/996731/

Discussion: What numbers to expect on Echo after starting Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 13, 2024

Hi @valkyrie28 . What a nice feel-good story to see first thing in the morning! I...

https://connect.mayoclinic.org/comment/1434273/

Discussion: Patient Intro-Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 9, 2025

I’m not on Camzyos so unfortunately I won’t be too helpful! I’m surprised it’s not being...

https://connect.mayoclinic.org/comment/936228/

Discussion: Fitness Programs with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 25, 2023

Yes, I am on Whidbey Island. I have not hiked at altitudes over 5,000 feet yet....

https://connect.mayoclinic.org/comment/1111926/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 25, 2024

I am still searching for answers input or anybody on Camzyos who has had a total...

https://connect.mayoclinic.org/comment/1044473/

Discussion: HCM, Camzyos & Knee Replacement: What are the risks?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 2, 2024

I am also on Camzyos and, after the initial $2000 it is covered by Medicare and...

https://connect.mayoclinic.org/comment/1370598/

Discussion: Cost of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 14, 2025

@nnanakpm thank you for your advise. I am now 3rd day of camzyos 5 mg one...

https://connect.mayoclinic.org/comment/1043204/

Discussion: MEDS FOR HCM - DOSAGE

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 31, 2024

https://connect.mayoclinic.org/comment/878666/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 14, 2023

Thank you Susan for your reply. What mg amount of Camzyos are you taking? How long...

https://connect.mayoclinic.org/comment/1079004/

Discussion: Has Anyone taking Camzyos Experienced Higher Blood Pressure Readings?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 1, 2024

I was taking Camzyos for 10 days with side effects joint pain dizziness and not sleeping...

https://connect.mayoclinic.org/comment/1073510/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 23, 2024

I found this article about this medication and availibleaty is mentioned in Japan here is the...

https://connect.mayoclinic.org/comment/1004407/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 26, 2024

New here and scared was Dx 2 months ago. Starting camzyos but side effects are scaring...

https://connect.mayoclinic.org/comment/948585/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 16, 2023

That makes a lot of sense to me. How long did it take you to feel...

https://connect.mayoclinic.org/comment/877211/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 12, 2023

That's good news @avcowie, I'm glad you are feeling better. I hope you have a pleasant...

https://connect.mayoclinic.org/comment/867298/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 26, 2023

Hello @mbi . Back on July 17 the same question was posted to the related conversation...

https://connect.mayoclinic.org/comment/1215023/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 17, 2025

Hi @maryelizabethp, Yes, I saw notes here of patients who after surgery they had to take...

https://connect.mayoclinic.org/comment/1071552/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 20, 2024

Hi. I’m also at Peter Munk Centre. May I ask who your doctor is? I thought...

https://connect.mayoclinic.org/comment/936214/

Discussion: Fitness Programs with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 25, 2023

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