1. < Hypertrophic Cardiomyopathy (HCM)

HCM patient on 5 mg Camzyos since 8/16/23 and need knee replacement.

Posted by newtosohcm @newtosohcm, Oct 5 9:45am

What are the risks of undergoing spinal anesthesia and other meds as well during and after surgery?

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Mentor
Debra, Volunteer Mentor | @karukgirl | Oct 5 10:30am

Hi @newtosohcm,
Those are some good questions. I would want to know the exact same thing if I were having surgery!
Connect does not delve into dispensing medical advice, we share our stories and opinions and what worked or didn't work for us. This seems like a question for both your physicians, so if you have not yet, I would be sure to let your cardiologist know, and also the orthopedic surgeon. They both need to be on board long before you undergo surgery. The anesthesiologist is also a major player in this deal…so going forward, I would say you need to get all the main characters involved.
When is your surgery scheduled?

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1 reply
newtosohcm | @newtosohcm | Oct 5 11:23am
In reply to @karukgirl "Hi @newtosohcm, Those are some good questions. I would want to know the exact same thing..." + (show)
@karukgirl

Hi @newtosohcm,
Those are some good questions. I would want to know the exact same thing if I were having surgery!
Connect does not delve into dispensing medical advice, we share our stories and opinions and what worked or didn't work for us. This seems like a question for both your physicians, so if you have not yet, I would be sure to let your cardiologist know, and also the orthopedic surgeon. They both need to be on board long before you undergo surgery. The anesthesiologist is also a major player in this deal…so going forward, I would say you need to get all the main characters involved.
When is your surgery scheduled?

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Thank you for your reply🏊‍♂️ We are in total agreement and I’m moving forward cautiously since this is such a new drug. I will self advocate to make sure the doctors are all on the same page. I only want to have surgery if a cardiologist who is familiar with HCM and Camzyos is on call if my heart goes south during surgery. Just wondered if anyone else had had to have surgery while on Camzyos and how it went. I understand though about the parameters of this site and respect everyone’s privacy. Thanks again.

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