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Public Support Group 1,173 total results
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Im recently diagnosed with acquired von Willebrand and Jak2, my platelets are around 600. I was...
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Welcome to Connect, @sunbird09 Over time, some people with PV may develop MF. This occurs if...
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Essential Thrombocythemia (ET) and viruses
I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...
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Lightheaded with ET
Hi everyone. I’m 70, diagnosed with ET in June, 2022, and JAK 2 positive. I’m only taking 2 low-dose aspirin a day because my platelets...
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Sudden gross hematuria
I was diagnosed with MPN JAK-2 last year. Polycythemia Vera and/or essential thrombocytopenia Initially needed 2 phlebotomy’s and 2 Gm/day Hydroxyurea. Labs tanked so slowly...
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What are pros of hydroxyurea vs other methods of lowering platelets?
I am 47 & received my official diagnose today. I am JAK 2 mutation only & after a bone marrow biopsy & further genetic testing...
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