Blood Cancers & Disorders Support Group

Hello, I have just been diagnosed with MPN with JAK2 mutation and negative for the other BCR/ABL 1 mutations. Platelets are 639 on 4/22/24. Everything...

Polycythemia with all negative results???????? I am a 29 year old female and have been feeling not myself for almost 2 years now. Below I...

Hello, am I crazy? I'm a 23-year-old biological female with a complex medical history. I'm going to list my pre-existing conditions, before I started hematological...

Has anyone taken Vonjo (pacritinib) a JAK 2 Inhibitor? If so what were the effects and how long were you able to take the medication?...

I have just recently been diagnosed with JAK 2 positive ET and I am only 48. Coming to terms with the “c” word has been...

I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...

We all know when we’re sick, right? Well, I’m sick, but I can’t get a diagnosis of my illness. My symptoms have been going on...

Hi everyone. I’m 70, diagnosed with ET in June, 2022, and JAK 2 positive. I’m only taking 2 low-dose aspirin a day because my platelets...

I was diagnosed with MPN JAK-2 last year. Polycythemia Vera and/or essential thrombocytopenia Initially needed 2 phlebotomy’s and 2 Gm/day Hydroxyurea. Labs tanked so slowly...

I am 47 & received my official diagnose today. I am JAK 2 mutation only & after a bone marrow biopsy & further genetic testing...