Blood Cancers & Disorders Support Group

I just got back from my blood doctor appt and i advised her that I cannot keep going every month to have a pint of...

Has anyone had a DNA marker test to see when the JAK2 might have appeared? I'm curious about what the "when" and "what" environmental factors...

My doctor has given me conflicting opinions on whether or not JAK2 testing would advisable. My platelets have been high normal (394-399) since 2016. This...

Hello, my 22 year old son had a DVST about five months ago and following with all the testing his blood test showed less than...

I read there is a study of affects of Vitamin D3 and the JaK2 mutation. They have found correlation w D3 and bone morrow??? Anybody...

I have MDS/MPN Overlap. On the MPN side I have ET and MF. I recently developed a heart problem and had an ablation at the...

JAK2 test performed due to high hematocrit and hemoglobin. With negative results, what questions should I pose to my hematologist? He has not yet commented...

Have JAK2 mutation verified twice; one year apart and from different labs. As I understand, it may cause polycythemia vera, essential thrombocytosis, or leukemia. My...

I was diagnosed with ET with Jak2 mutation about eight months ago and I am on hydroxyurea. Some days I am so itchy I feel...

I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...